#150826 - 06/14/12 05:23 AM
Bloody cheek!
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Joined: May 2010
Posts: 638
klo
"OCF Down Under"
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"OCF Down Under"
"Above & Beyond" Member (500+ posts)
Joined: May 2010
Posts: 638
Sydney Australia
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After lurking on these boards almost exactly 2 years, Alex has finally posted!! A pearl of wisdom for all those who come after? A word of comfort for those currently going through it? Or maybe comiserations for those similarly determined to move forward? No! A complaint that the survey didn't have metric measurements and he had to recalculate his height and weight into feet, inches and pounds!! I say again. Bloody cheek!!  His idea of humour. So the OsbLow team now has a 100% participation in the survey at least
Karen Love of Life to Alex T4N2M0 SCC Tonsil, BOT, R lymph nodes Dx March 2010 51yrs. Unresectable. HPV+ve Tx Chemo x 3+1 cycles(cisplatin,docetaxel,5FU)- complete May 31 Chemoradiation (IMRTx35 + weekly cisplatin) Finish Aug 27 Return to work 2 years on 3 years out Aug 27 2013 NED Still underweight
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#150838 - 06/14/12 10:55 AM
Re: Bloody cheek!
[Re: klo]
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Joined: Nov 2006
Posts: 2,671
Anne-Marie
Patient Advocate (old timer, 2000 posts)
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Patient Advocate (old timer, 2000 posts)
Joined: Nov 2006
Posts: 2,671
TN
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Yay! Hurray for Karen's Love of Life! and Welcome, Alex!
Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)
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#150842 - 06/14/12 12:39 PM
Re: Bloody cheek!
[Re: klo]
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Joined: Dec 2010
Posts: 5,260
Cheryld
"OCF Canuck"
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"OCF Canuck"
Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010
Posts: 5,260
Toronto canada
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Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
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#150869 - 06/14/12 06:53 PM
Re: Bloody cheek!
[Re: klo]
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Joined: Jun 2007
Posts: 9,649
ChristineB
Administrator, Director of Patient Support Services
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Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007
Posts: 9,649
PA
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I was a bit confused by his post. Thanks for the explanation! I am also very thankful for both of you completing the survey. It is very important to future oral cancer patients.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive
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#150870 - 06/14/12 06:56 PM
Re: Bloody cheek!
[Re: ChristineB]
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Joined: Mar 2008
Posts: 3,082
Charm2017
Patient Advocate (old timer, 2000 posts)
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Patient Advocate (old timer, 2000 posts)
Joined: Mar 2008
Posts: 3,082
Alexandria VA
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Klo
As if any of us were surprised that Alex is a cheeky fellow.
(for some reasons, my British friends all call me a cheeky bastard so it must be a compliment right?)
Good for him
Charm
65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin
Passed away 4-29-13
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#150929 - 06/16/12 10:52 AM
Re: Bloody cheek!
[Re: klo]
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Joined: May 2010
Posts: 638
klo
"OCF Down Under"
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"OCF Down Under"
"Above & Beyond" Member (500+ posts)
Joined: May 2010
Posts: 638
Sydney Australia
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Charm I would probably use slightly stronger language to compliment you Karen
Karen Love of Life to Alex T4N2M0 SCC Tonsil, BOT, R lymph nodes Dx March 2010 51yrs. Unresectable. HPV+ve Tx Chemo x 3+1 cycles(cisplatin,docetaxel,5FU)- complete May 31 Chemoradiation (IMRTx35 + weekly cisplatin) Finish Aug 27 Return to work 2 years on 3 years out Aug 27 2013 NED Still underweight
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