| | Joined: Feb 2011 Posts: 45 Contributing Member (25+ posts) | OP  Contributing Member (25+ posts)
Joined: Feb 2011 Posts: 45 | It's been exactly a year since I had 32 treatments TOMO radiation to kill cancer of the Larynx. I was doing great and voice came back about 60% of what it was which was certainly acceptable.The last month I was getting hoarse and kinda new the polyp was returning,We did a dive trip to Fiji mid May and I was thinking this could be my last dive ever.
My ENT during my 6 month check-up said if the polyp came back it would probably be cancer.
Well, its back.
I am preparing myself for the worse.Is it possible to radiate the same area? I did not have any chemo the first time.
Because of 16 surgeries to remove previous polyps my vocal cord has severe scarring and webbing.
I'm scared and hope this is not the event that takes my Vocal cord for good.
Thanks for all your input and help during my past rad treatment
SCC of larynx,2/1/2011 surgery 16 times to remove papilloma on vocal cords,started TOMO rad treatment 4/11.2011 T2N0M0 possible invasion onto cartilage tissue Cancer back 6/2012. Polyp removed Came back spindle cell carcenoma 6/22/12
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Im so sorry you have joined the recurrence club!!! It takes a while to get used to idea of dealing with the whole mess again. Once you get a treatment plan in place you will know whats going on and how invasive it will be. You have been thru alot! You now know all the jargon and hopefully have a top notch medical team in your corner. Those things will help you get thru this. Yes, some have had rads more than once, it can be done.
Good luck!!!
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Mar 2011 Posts: 1,024 "OCF Kiwi Down Under" Patient Advocate (1000+ posts) | | "OCF Kiwi Down Under" Patient Advocate (1000+ posts)
Joined: Mar 2011 Posts: 1,024 | Hello. I'm not sure from your post if you have seen your ENT since returning from Fiji. Have you had a biopsy? Have you had a CT/MRI ? Or are you just preempting it all?
A reoccurrence is very scary, but if this is the case you will get through it.
Don't jump to conclusions. Wait until you have a definitive diagnosis and treatment plan if one is needed.
Should you need a laryngectomy, you will survive that too. We went through this surgery in March and should you have to go down that path we will be here for you.
Tammy
Caregiver/advocate to Husband Kris age 59@ diagnosis
DX Dec '10 SCC BOT T4aN2bM0 HPV+ve.Cisplatin x3 35 IMRT.
PET 6/11 clear.
R) level 2-4 neck dissection 8/1/11 to remove residual node - necrotic with NED
Feb '12 Ca back.. 3/8/12 total glossectomy/laryngectomy/bilat neck dissection/partial pharyngectomy etc. clear margins. All nodes negative for disease. PEG in.
March 2017 - 5 years disease free. Woohoo!
| | | | | Joined: Dec 2010 Posts: 5,260 Likes: 3 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | | "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,260 Likes: 3 | Fingers crossed its not cancer!!!
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | | Joined: Feb 2011 Posts: 45 Contributing Member (25+ posts) | | OP Contributing Member (25+ posts)
Joined: Feb 2011 Posts: 45 | Thanks for all your support. Surgery the 13th CT scan Monday the 11th. You are right I should not put the cart before the horse but based on conversation with ENT and history I am preparing for the tests and biopsy to be not good news.
This polyp seems to be growing fast and I can feel the obstruction in my throat.
Based on the scarring and webbing of my vocal cord I really work harder than normal to talk.Keep you posted on results. Steve Hurlock
SCC of larynx,2/1/2011 surgery 16 times to remove papilloma on vocal cords,started TOMO rad treatment 4/11.2011 T2N0M0 possible invasion onto cartilage tissue Cancer back 6/2012. Polyp removed Came back spindle cell carcenoma 6/22/12
| | | | | Joined: Oct 2011 Posts: 805 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Oct 2011 Posts: 805 |
Kathy wife/caregiver to:
Kevin age:53
Dx 7/15/11
HPV16+ SCC Stage IV BOT/R
Non smoker, casual drinker
7/27/11 Cistplatin, taxotere,5FU 2/3week sessions, followed by IMRT 125cgy x 60 (2x daily) w/Erbitux weekly. Last rad 10/26/11. Last Erbitux 10/27/11
PEG placed 9/1/11 Removed 11/8/11
Clear PET 10/12 and 10/13 and ct in 6/14
| | | | | Joined: Oct 2011 Posts: 225 "OCF Down Under" Gold Member (200+ posts) | | "OCF Down Under" Gold Member (200+ posts)
Joined: Oct 2011 Posts: 225 | Hi Steve, I'm thinking of you, and hoping you're going OK. Linda
Brother 49yo DX 22/6/11 Tonsil SCC HPV+ Stage IV T4N1(?)M0. Carbo/docetaxel (Taxotere)19/7, 11/8 (with E-tux), 1/9; E-tux 11/8, 25/8, 15/9, 30/9, 14/10, 28/10; IMRT X 35 (70gy tumour;63gy nodes;56gy gen area) 19/9-4/11/11. Clear PET scan 1/2/12. 1 and 2 year post treatment checks good.
| | | | | Joined: Feb 2011 Posts: 45 Contributing Member (25+ posts) | | OP Contributing Member (25+ posts)
Joined: Feb 2011 Posts: 45 | I get biopsy results Monday the 18th. Had surgery last Wed to remove the new polyp growth. I had a CT scan last Monday. It shows Lymph nodes so far clean.ENT said the polyp was exact same place as one in 2011 that was cancer. I am sure that means certainly no more radiation in that area if the news is not good. I will keep you updated...and thank you all for guidance and prayers. Steve
SCC of larynx,2/1/2011 surgery 16 times to remove papilloma on vocal cords,started TOMO rad treatment 4/11.2011 T2N0M0 possible invasion onto cartilage tissue Cancer back 6/2012. Polyp removed Came back spindle cell carcenoma 6/22/12
| | | | | Joined: Jun 2012 Posts: 1 Member | | Member
Joined: Jun 2012 Posts: 1 | I will pray for you and add your name to a prayer line. | | | | | Joined: Oct 2011 Posts: 805 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Oct 2011 Posts: 805 |
Kathy wife/caregiver to:
Kevin age:53
Dx 7/15/11
HPV16+ SCC Stage IV BOT/R
Non smoker, casual drinker
7/27/11 Cistplatin, taxotere,5FU 2/3week sessions, followed by IMRT 125cgy x 60 (2x daily) w/Erbitux weekly. Last rad 10/26/11. Last Erbitux 10/27/11
PEG placed 9/1/11 Removed 11/8/11
Clear PET 10/12 and 10/13 and ct in 6/14
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