#150562 - 06/09/12 12:03 PM
YouAreMySunshine
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Patient Advocate (old timer, 2000 posts)
Registered: 11/03/06
Posts: 2671
Loc: TN
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Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)
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#150568 - 06/09/12 01:50 PM
Re: YouAreMySunshine
[Re: Anne-Marie]
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Administrator, Senior Patient Advocate
Patient Advocate (old timer, 2000 posts)
Registered: 09/28/06
Posts: 8311
Loc: Gulfport, Florida
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Ok I got to get me some of that gum. ERIC were are you????
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David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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#150569 - 06/09/12 02:14 PM
Re: YouAreMySunshine
[Re: Anne-Marie]
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Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)
Registered: 06/23/07
Posts: 9245
Loc: PA
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I was impressed by the OCF newsfeed article about dental oncology. Looks like Sloan Kettering in NY is on the ball and realizes the importance of special dental needs for OC patients. Here is the link to the newsfeed. OCF Newsfeed
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ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07, no caregiver Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo extended hospital stay, ICU & burn unit PICC line w/ IV antibiotics 8 mo 10/4/10, 2/14/11 reconst surg OC 3 times in 3 years very happy to be alive 
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#150571 - 06/09/12 02:32 PM
gum
[Re: davidcpa]
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Senior Member (100+ posts)
Registered: 02/25/11
Posts: 117
Loc: Huntley, IL
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David, you're right...it doesn't say how/where to get the gum, does it ? I'm wondering if I could even chew gum now with dentures...I haven't tried.
p.s. (I know where Eric is......he's at my house !! tomorrow is the FIRST EVER Chicago OCF walk)
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DX 12/6/10 of T3 SCC Tongue.
Surgery 1/3/11 was hemigloss & forearm free flap, midline mandibulectomy, Neck Disection-All nodes clear.
Ended rads 5/11/11. Taste buds back to about 80%. PEG removed 4/5/12, experimenting eating real food again. If I can do this, so can you !! Stay Strong.
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#150581 - 06/09/12 04:23 PM
Re: gum
[Re: Anne-Marie]
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Senior Member (100+ posts)
Registered: 05/11/12
Posts: 161
Loc: Illinois
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Hi Ingrid....I just googled, found the link to the manufacturer, copied below. It's an interesting article, will be looking into this product more as my husband heads into radiation in a few weeks. Ana http://sanammad.com/index.htmlP.S. I wish I could be with you and Eric on the walk tomorrow, especially as ya'll are just down the road. Instead, I'll be taking Vince for his neulasta shot (love whoever invented that stuff!) & giving him his home IV as this is a particularly rough chemo week. All 4 of us will be there next year, stronger than ever...:) Hugs to both of you and thank you for walking for all of us!
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wife/caregiver to Vince, dx 4/12 Stage IV BOT HPV+ SCC, poorly diff.; T4N2cMo; U of C; Clinical trial, Everolimus; 6 wks ind. chemo (Cetuximab, Cisplatin & Taxol), 50 x IMRT, 75 gy chemorad w/5FU, Hydrea & Taxol; Completed tx 9/12; Just completed 18 mo scans, completely clear, thank God.
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#150584 - 06/09/12 06:48 PM
Re: gum
[Re: AnaD]
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Senior Member (100+ posts)
Registered: 02/25/11
Posts: 117
Loc: Huntley, IL
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Ana, thanks for the info. Interesting; I have emailed them for more info. Sorry about the walk not working out; you will be with us in spirit. Best Wishes to hubby also.
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DX 12/6/10 of T3 SCC Tongue.
Surgery 1/3/11 was hemigloss & forearm free flap, midline mandibulectomy, Neck Disection-All nodes clear.
Ended rads 5/11/11. Taste buds back to about 80%. PEG removed 4/5/12, experimenting eating real food again. If I can do this, so can you !! Stay Strong.
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