#150568 - 06/09/12 01:50 PM
Re: YouAreMySunshine
[Re: Anne-Marie]
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Joined: Sep 2006
Posts: 8,311
davidcpa
Administrator, Senior Patient Advocate
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Administrator, Senior Patient Advocate
Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006
Posts: 8,311
Gulfport, Florida
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Ok I got to get me some of that gum. ERIC were are you????
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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#150569 - 06/09/12 02:14 PM
Re: YouAreMySunshine
[Re: Anne-Marie]
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Joined: Jun 2007
Posts: 9,676
ChristineB
Administrator, Director of Patient Support Services
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Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007
Posts: 9,676
PA
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I was impressed by the OCF newsfeed article about dental oncology. Looks like Sloan Kettering in NY is on the ball and realizes the importance of special dental needs for OC patients. Here is the link to the newsfeed. OCF Newsfeed
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive 
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#150571 - 06/09/12 02:32 PM
gum
[Re: davidcpa]
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Joined: Feb 2011
Posts: 117
Ingrid K
Senior Member (100+ posts)
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Senior Member (100+ posts)
Joined: Feb 2011
Posts: 117
Huntley, IL
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David, you're right...it doesn't say how/where to get the gum, does it ? I'm wondering if I could even chew gum now with dentures...I haven't tried.
p.s. (I know where Eric is......he's at my house !! tomorrow is the FIRST EVER Chicago OCF walk)
DX 12/6/10 of T3 SCC Tongue.
Surgery 1/3/11 was hemigloss & forearm free flap, midline mandibulectomy, Neck Disection-All nodes clear.
Ended rads 5/11/11. Taste buds back to about 80%. PEG removed 4/5/12, experimenting eating real food again. If I can do this, so can you !! Stay Strong.
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#150581 - 06/09/12 04:23 PM
Re: gum
[Re: Anne-Marie]
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Joined: May 2012
Posts: 161
AnaD
Senior Member (100+ posts)
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Senior Member (100+ posts)
Joined: May 2012
Posts: 161
Illinois
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Hi Ingrid....I just googled, found the link to the manufacturer, copied below. It's an interesting article, will be looking into this product more as my husband heads into radiation in a few weeks. Ana http://sanammad.com/index.htmlP.S. I wish I could be with you and Eric on the walk tomorrow, especially as ya'll are just down the road. Instead, I'll be taking Vince for his neulasta shot (love whoever invented that stuff!) & giving him his home IV as this is a particularly rough chemo week. All 4 of us will be there next year, stronger than ever...:) Hugs to both of you and thank you for walking for all of us!
wife/caregiver to Vince, dx 4/12 Stage IV BOT HPV+ SCC, poorly diff.; T4N2cMo; U of C; Clinical trial, Everolimus; 6 wks ind. chemo (Cetuximab, Cisplatin & Taxol), 50 x IMRT, 75 gy chemorad w/5FU, Hydrea & Taxol; Completed tx 9/12; Just completed 18 mo scans, completely clear, thank God.
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#150584 - 06/09/12 06:48 PM
Re: gum
[Re: AnaD]
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Joined: Feb 2011
Posts: 117
Ingrid K
Senior Member (100+ posts)
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Senior Member (100+ posts)
Joined: Feb 2011
Posts: 117
Huntley, IL
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Ana, thanks for the info. Interesting; I have emailed them for more info. Sorry about the walk not working out; you will be with us in spirit. Best Wishes to hubby also.
DX 12/6/10 of T3 SCC Tongue.
Surgery 1/3/11 was hemigloss & forearm free flap, midline mandibulectomy, Neck Disection-All nodes clear.
Ended rads 5/11/11. Taste buds back to about 80%. PEG removed 4/5/12, experimenting eating real food again. If I can do this, so can you !! Stay Strong.
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