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#150562 - 06/09/12 12:03 PM YouAreMySunshine
Anne-Marie Offline
Patient Advocate (old timer, 2000 posts)

Registered: 11/03/06
Posts: 2503
Loc: TN
_________________________
Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)




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#150568 - 06/09/12 01:50 PM Re: YouAreMySunshine [Re: Anne-Marie]
davidcpa Offline

Administrator, Senior Patient Advocate
Patient Advocate (old timer, 2000 posts)

Registered: 09/28/06
Posts: 8023
Loc: Gulfport, Florida
Ok I got to get me some of that gum. ERIC were are you????
_________________________
David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT w/ 2 nodes, non smoker, casual drinker and exercise nut, Cisplatin x 3 w/ concurrent IMRT x 35, (70 Gy), no surgery, no Peg, Tx at Moffitt over 8/28/06. June 2007, back to riding my bike 100 miles a week. Now doing 12 Spin classes and 60 outdoor miles per week. Nov 2013 completed Hilly Century ride for Cancer, 104 miles, and took 1st Place in my age group. Apr 2013, Spun for 9 straight hours to raise $$ for YMCA's Livestrong Program.

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#150569 - 06/09/12 02:14 PM Re: YouAreMySunshine [Re: Anne-Marie]
ChristineB Offline
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

Registered: 06/23/07
Posts: 7925
Loc: PA
I was impressed by the OCF newsfeed article about dental oncology. Looks like Sloan Kettering in NY is on the ball and realizes the importance of special dental needs for OC patients.

Here is the link to the newsfeed.

OCF Newsfeed
_________________________
Christine

SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 rad end 9/27/07, no caregiver
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
total of 185 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo hospital extended stay, ICU & burn unit
PICC line w/ IV antibiotics 8 mo
10/4/10, 2/14/11 reconst surg
OC 3 times in 3 years
very happy to be alive smile

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#150571 - 06/09/12 02:32 PM gum [Re: davidcpa]
Ingrid K Offline
Senior Member (100+ posts)

Registered: 02/25/11
Posts: 117
Loc: Huntley, IL
David, you're right...it doesn't say how/where to get the gum, does it ? I'm wondering if I could even chew gum now with dentures...I haven't tried.

p.s. (I know where Eric is......he's at my house !! tomorrow is the FIRST EVER Chicago OCF walk)
_________________________
DX 12/6/10 of T3 SCC Tongue.
Surgery 1/3/11 was hemigloss & forearm free flap, midline mandibulectomy, Neck Disection-All nodes clear.
Ended rads 5/11/11. Taste buds back to about 80%. PEG removed 4/5/12, experimenting eating real food again. If I can do this, so can you !! Stay Strong.

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#150581 - 06/09/12 04:23 PM Re: gum [Re: Anne-Marie]
AnaD Offline
Senior Member (100+ posts)

Registered: 05/11/12
Posts: 158
Loc: Illinois
Hi Ingrid....I just googled, found the link to the manufacturer, copied below. It's an interesting article, will be looking into this product more as my husband heads into radiation in a few weeks. Ana

http://sanammad.com/index.html

P.S. I wish I could be with you and Eric on the walk tomorrow, especially as ya'll are just down the road. Instead, I'll be taking Vince for his neulasta shot (love whoever invented that stuff!) & giving him his home IV as this is a particularly rough chemo week. All 4 of us will be there next year, stronger than ever...:) Hugs to both of you and thank you for walking for all of us!
_________________________
wife/caregiver to Vince, dx 4/12 Stage IV BOT HPV+ SCC, poorly diff.; T4N2cMo; U of C; Clinical trial, Everolimus; 6 wks ind. chemo (Cetuximab, Cisplatin & Taxol), 50 x IMRT, 75 gy chemorad w/5FU, Hydrea & Taxol; Completed tx 9/12; Just completed 18 mo scans, completely clear, thank God.

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#150584 - 06/09/12 06:48 PM Re: gum [Re: AnaD]
Ingrid K Offline
Senior Member (100+ posts)

Registered: 02/25/11
Posts: 117
Loc: Huntley, IL
Ana, thanks for the info. Interesting; I have emailed them for more info. Sorry about the walk not working out; you will be with us in spirit. Best Wishes to hubby also.
_________________________
DX 12/6/10 of T3 SCC Tongue.
Surgery 1/3/11 was hemigloss & forearm free flap, midline mandibulectomy, Neck Disection-All nodes clear.
Ended rads 5/11/11. Taste buds back to about 80%. PEG removed 4/5/12, experimenting eating real food again. If I can do this, so can you !! Stay Strong.

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