#150562 - 06/09/12 05:03 AM
YouAreMySunshine
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Patient Advocate (old timer, 2000 posts)
Registered: 11/03/06
Posts: 2214
Loc: TN
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I check the Oral Cancer News regularly and would encourage others to do so for the latest, accurate research information on Oral Cancer. Two that especially caught my eye were: 1) “Cannabis chewing gum targets oral side effects”. How I wish this had been available years ago when my son was in Rad Tx. Good to know that ways are being developed to help OC survivors survive the tortures of radiation. 2) “Throat cancer survivors sing to give thanks, encourage others”. One of the songs mentioned in this story about the North Texas Laryngectomy Choir –has found new meaning for me as I think of all that OCF has done for me, for my son and so many others: You are my sunshine, my only sunshine You make me happy, when skies are blue You’ll never know dear how much I love you Please don’t take my sunshine away. Thank You, OCF and all the awesome people here, you really are my sunshine! 
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Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)
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#150568 - 06/09/12 06:50 AM
Re: YouAreMySunshine
[Re: Anne-Marie]
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Administrator, Senior Patient Advocate
Patient Advocate (old timer, 2000 posts)
Registered: 09/28/06
Posts: 7390
Loc: Gulfport, Florida
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Ok I got to get me some of that gum. ERIC were are you????
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David
Age 58 at Dx, HPV 16+ SCC, T1N2bM0, Stage IV BOT and 2 nodes, non smoker, casual drinker and exercise nut, Cisplatin x 3 with concurrent IMRT x 35, (70 Gy), no surgery, no Peg, Tx at Moffitt over 8/28/06. June 2007, back to riding my bike 100 miles a week as if nothing happened.
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#150569 - 06/09/12 07:14 AM
Re: YouAreMySunshine
[Re: Anne-Marie]
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Administrator, OCF Ambassador at Large
Patient Advocate (old timer, 2000 posts)
Registered: 06/23/07
Posts: 6704
Loc: PA
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I was impressed by the OCF newsfeed article about dental oncology. Looks like Sloan Kettering in NY is on the ball and realizes the importance of special dental needs for OC patients. Here is the link to the newsfeed. OCF Newsfeed
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ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 rad end 9/27/07, no caregiver Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 155 HBO,trismus 3/09 teeth out 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma, 2 mo hospital PICC line IV antibiotics 8 mo 10/4/10, 2/14/11 reconst surg OC 3 times in 3 years very happy to be alive
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#150571 - 06/09/12 07:32 AM
gum
[Re: davidcpa]
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Senior Member (100+ posts)
Registered: 02/25/11
Posts: 116
Loc: Huntley, IL
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David, you're right...it doesn't say how/where to get the gum, does it ? I'm wondering if I could even chew gum now with dentures...I haven't tried.
p.s. (I know where Eric is......he's at my house !! tomorrow is the FIRST EVER Chicago OCF walk)
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DX 12/6/10 of T3 SCC Tongue.
Surgery 1/3/11 was hemigloss & forearm free flap, midline mandibulectomy, Neck Disection-All nodes clear.
Ended rads 5/11/11. Taste buds back to about 80%. PEG removed 4/5/12, experimenting eating real food again. If I can do this, so can you !! Stay Strong.
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#150581 - 06/09/12 09:23 AM
Re: gum
[Re: Anne-Marie]
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Senior Member (100+ posts)
Registered: 05/10/12
Posts: 138
Loc: Illinois
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Hi Ingrid....I just googled, found the link to the manufacturer, copied below. It's an interesting article, will be looking into this product more as my husband heads into radiation in a few weeks. Ana http://sanammad.com/index.htmlP.S. I wish I could be with you and Eric on the walk tomorrow, especially as ya'll are just down the road. Instead, I'll be taking Vince for his neulasta shot (love whoever invented that stuff!) & giving him his home IV as this is a particularly rough chemo week. All 4 of us will be there next year, stronger than ever...:) Hugs to both of you and thank you for walking for all of us!
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wife/caregiver to Vince, dx 4/12 Stage IV BOT HPV+ SCC, poorly diff.; T4N2cMo; Clinical trial, Everolimus; 6 wks ind. chemo (Cetuximab, Cisplatin & Taxol), 50 x IMRT, 75 gy chemorad w/5FU, Hydrea & Taxol; Completed tx 9/12; 10/12, 12/12 & 3/12 clear scans
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#150584 - 06/09/12 11:48 AM
Re: gum
[Re: AnaD]
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Senior Member (100+ posts)
Registered: 02/25/11
Posts: 116
Loc: Huntley, IL
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Ana, thanks for the info. Interesting; I have emailed them for more info. Sorry about the walk not working out; you will be with us in spirit. Best Wishes to hubby also.
_________________________
DX 12/6/10 of T3 SCC Tongue.
Surgery 1/3/11 was hemigloss & forearm free flap, midline mandibulectomy, Neck Disection-All nodes clear.
Ended rads 5/11/11. Taste buds back to about 80%. PEG removed 4/5/12, experimenting eating real food again. If I can do this, so can you !! Stay Strong.
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