#14994 02-26-2004 07:29 AM | Joined: Feb 2004 Posts: 40 Contributing Member (25+ posts) | OP Contributing Member (25+ posts) Joined: Feb 2004 Posts: 40 | Hi! I've been lurking on this site since I found out I had cancer mid-July. Which really suprised me! I don't drink/smoke/drugs. I don't even eat fast foods ~ yesh. Somehow my tofu/soymilk health food & exercise loving self got cancer. The experience is just weird. Never cried about it either, it's all too weird. So I figure it's gotta be God's will so I'll go w/the flow & trust in his love.
My treatments started in August. Had a cancerous tumor lasered off on my tongue & a radical neck disscetion. Both left & right lymphs were cancerous. The remaining mini nodes some cancerous some not. Followed up w/Rad & Chemo. Radition was completed on Dec 2. Only just now the mucus is subsiding - but I still can't quite eat just yet.
This board helped me feel not alone & given the determination to survive. Thanx guys.
Dig.7/03 3cm+ lymph nodes & base of tongue tumor. Radical neck dissection w/removal of one neck muscle, laser removal of tumor. 47 sessions of radiation, 2 doses of Cisplatin & PEG tube 40yrs old non-smoker/drinker
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#14995 02-26-2004 07:37 AM | Joined: Nov 2002 Posts: 3,552 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Nov 2002 Posts: 3,552 | Welcome Minky, We're glad you finally came out of the closet! We're here if you need any help. Keep us updated on your progress. I am sure that some of us would like to hear more about laser procedure.
Gary Allsebrook *********************************** Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2 Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy) ________________________________________________________ "You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
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#14996 02-26-2004 07:57 AM | Anonymous Unregistered | Anonymous Unregistered | Minky,
Glad you decided to post. Welcome. Good to hear you are healing. I'm sure you will gradually be eating again soon.
Stay around, vent with us, give adivise with us. We're pleased to have you.
Take care, Dinah | | |
#14997 02-26-2004 09:20 AM | Joined: Mar 2002 Posts: 1,140 Likes: 1 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Mar 2002 Posts: 1,140 Likes: 1 | Welcome, Minky. I am so glad you found us. And it is great that your mucus is subsiding -- you can be sure other patients will be very happy to read about that. You are at a very good place now, finished with treatments and getting better every day. I suggest that you pick one day of the week on which to evaluate your progress. Sometimes you are not aware on a day-to-day basis how much you really are progressing. If you have any questions, there will always be someone here to answer. Do post again, as new patients need to hear from those of us who have gone through it and come out the other side. You are now officially a survivor, Minky! | | |
#14998 02-26-2004 11:59 AM | Joined: Jul 2003 Posts: 1,163 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Jul 2003 Posts: 1,163 | Welcome Minky,
As someone once said, "Welcome to the club no one wants to join" Glad to hear you are feeling better. Also glad you posted. You must know us pretty well if you have been lurking since July. The more experience we share the better for all. Welcome again.
Dan
Daniel Bogan DX 7/16/03 Right tonsil,SCC T4NOMO. right side neck disection, IMRT Radiation x 33.
Recurrance in June 05 in right tonsil area. Now receiving palliative chemo (Erbitux) starting 3/9/06
Our good friend and loved member of the forum has passed away RIP Dannyboy 7-16-2006
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#14999 02-26-2004 02:39 PM | Joined: Sep 2003 Posts: 153 Gold Member (100+ posts) | Gold Member (100+ posts) Joined: Sep 2003 Posts: 153 | hi Minky,
your info says you like: anime, cats.
i give, what anime?
i got 3 cats...2 calico's and a black oriental kitten who keeps them straight.
cu, larryb | | |
#15000 02-27-2004 06:44 AM | Joined: Feb 2004 Posts: 40 Contributing Member (25+ posts) | OP Contributing Member (25+ posts) Joined: Feb 2004 Posts: 40 | Hi every1, thanx 4 responding!
Survivor is a great word 2 hear. I sort of did chart my progress when I started a video fitness diary w/the home-cam back in December '02. I started a weights & cardio program & wanted 2 visually see progress. It then became the before & after surgery in August '03. Oh man I was soo spacey-weak in December. It's good 2 see the swellings down, the scars fading & my bald patch where the radiation field exited growing hair again.
I'm kinda judging progress by how many tissues I go through 4 the mucus. Was 9 boxes per week, now it's 2. yay!
Anime TV series- Dragonball Z, Ruroni Kenshin, Big O, Cowboy Bebop, Macross. Anime Movies - Spirited Away, My Neighbor Totoro, Castle in the Sky, Kiki's Delivery Service, Millineum Actress.
I've got one black kitty in the house who plays fetch (great neck exercise 4 me!) & whose curled up purrs on my lap kept me relaxed.
Dig.7/03 3cm+ lymph nodes & base of tongue tumor. Radical neck dissection w/removal of one neck muscle, laser removal of tumor. 47 sessions of radiation, 2 doses of Cisplatin & PEG tube 40yrs old non-smoker/drinker
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#15001 08-08-2006 03:48 AM | Joined: Feb 2004 Posts: 40 Contributing Member (25+ posts) | OP Contributing Member (25+ posts) Joined: Feb 2004 Posts: 40 | Hee! hi again, I came by for a jaunt! So now I
Dig.7/03 3cm+ lymph nodes & base of tongue tumor. Radical neck dissection w/removal of one neck muscle, laser removal of tumor. 47 sessions of radiation, 2 doses of Cisplatin & PEG tube 40yrs old non-smoker/drinker
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#15002 08-08-2006 03:59 AM | Joined: Aug 2003 Posts: 1,627 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Aug 2003 Posts: 1,627 | That's awesome Minky! You are only a couple months after me, I was diagnosed April of 2003.............and my docs say the same thing............I'm in great health. Congrats!
SCC Left Mandible. Jaw replaced with bone from leg. Neck disection, 37 radiation treatments. Recurrence 8-28-07, stage 2, tongue. One third of tongue removed 10-4-07. 5-23-08 chemo started for tumor behind swallowing passage, Our good friend and much loved OCF member Minnie has been lost to the disease (RIP 10-29-08). We will all miss her greatly.
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#15003 08-08-2006 06:11 PM | Joined: Nov 2002 Posts: 3,552 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Nov 2002 Posts: 3,552 | Fantastic Minky! Come around more often we miss you - especially your sense of humor!
Gary Allsebrook *********************************** Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2 Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy) ________________________________________________________ "You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
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