| | Joined: May 2012 Posts: 6 Member | OP  Member
Joined: May 2012 Posts: 6 | Is anyone using Mugard for mouth sores? I start my radiation tomorrow and have chosen to use Mugard. I have read good reviews by some users on csn website.
I am posting here for the first time but have been reading all the posts for some time.
I have stage 3 sqamous tongue cancer ( on right side), had my surgery in first week of april and start radiation tomorrow (no chemo)
Thanks,
Sam
tounge cancer(right bottom), stage 3
Tongue sugery and Modified neck disection 4/12, out of 27 lymph nodes just one had .01 dot..doing radiation for that dot!
Radiation 5/12- 6/12
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Welcome to OCF, Sam! Sorry but I have not heard of Mugard before. Is this a new product? Maybe I know it by a generic name? If it works for you then maybe it could help others too.
Good luck tomorrow!!!
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Dec 2010 Posts: 5,260 Likes: 3 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | | "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,260 Likes: 3 | Hi Sam - welcome! Good luck with rads it's not easy but you'll get through it! And we'll help you when you need it!
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | | Joined: Aug 2011 Posts: 596 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Aug 2011 Posts: 596 | Hi, Sam.
Welcome to the OCF forums. I hope you are doing well post-operatively. Did they get clear margins? How did the tumour look? I'm assuming that you have nodal involvement since you are having radiation. I wish you the best of luck with your upcoming treatment. There are plenty of people here that share their big bag of tricks to get through the treatments.
Here's to a smooth recovery and best possible outcome!
Take care,
Kerri
37 y/o fem at Dx (23 wks preg @ dx on 3/16/11)
SCC L oral tongue (no risk factors)
L partial gloss/MND 3/28/11 @ 25 wks preg
T1-2N0M0; no rads/chemo
Tonsillectomy on 8/6/12 +SCC L tonsil T2-3N1M0 (HPV-)
Treated with 35 rads/7 carbo & taxol (Rx ended 10/31/12), but many hospitalizations d/t complications from rx.
Various scans since rx ended are NED!
Part of genetic study for rare cancers @ MGH.
44 years old now...I wasn't sure I would make it! Hoping for 40 more!
| | | | | Joined: May 2012 Posts: 6 Member | | OP Member
Joined: May 2012 Posts: 6 | Kerrie, they did get all clear margins. They took out 27 lymph nodes, out of that only one with a tiny dot .01 cm or something like that. That tiny dot made my doc to have me go thru radiation! If my kids were a bit older i would have refused radiation and tried natural ways.
Cheryl and Christine, thanks for welcome messages, i have read many many posts by you.
I will be sure to update everyone on my exp with mugard
Sam
tounge cancer(right bottom), stage 3
Tongue sugery and Modified neck disection 4/12, out of 27 lymph nodes just one had .01 dot..doing radiation for that dot!
Radiation 5/12- 6/12
| | | | | Joined: Apr 2011 Posts: 131 "OCF across the pond" Senior Member (100+ posts) | | "OCF across the pond" Senior Member (100+ posts)
Joined: Apr 2011 Posts: 131 | Hi
I tried the Mugard it was given at my hospital. To be honest I didn't get on with it and thinks it caused an allergic reaction but it's worth giving it a try. I just rinsed with bicard and water and salt, that helped and I also gargled with Manuka honey not that often but it did help me with the sores and I found that my mouth healed really quickly.
Hope radiotherapy is going ok we are all here to support you through this even me far away in the uk!
Hugs
Jayne x
Scc nasal cavity /hard palate
Surgery removal of septum and roof of mouth 15/3/11 cl margins
Rt and cisplatin 6 weeks starting 24/5/11
Obturator
Age 45
| | | | | Joined: Apr 2012 Posts: 32 Contributing Member (25+ posts) | | Contributing Member (25+ posts)
Joined: Apr 2012 Posts: 32 | Hi Sam, I was given Mugard by my Radiologist to begin using when radiation starts (in two days). I will post how it works.
Ken
48YO M, hlthy, xsmkr(quit 14yrs ago), mod drinkr
1 mo sore throat w/neck lump 3/12
SCC tonsil, lym nodes
4/12/12 rad tonslctmy, mets in lymph nodes
5/8 PEG, 5/10 PORT 7/3/12 Last Chemo (Cisplatin)| 7/10/12 Last RAD | 9/6/12 MRI=No New Cancer
BSA Scout Ldr w/strng desire to live & beat cancer
| | | | | Joined: Apr 2012 Posts: 32 Contributing Member (25+ posts) | | Contributing Member (25+ posts)
Joined: Apr 2012 Posts: 32 | Hi Jayne x, where is manuka honey available? I am preparing for the worst. My rad starts in a couple days and if I am like most people, will need a full toolbox to deal with side effects.
Thanks,
Ken
48YO M, hlthy, xsmkr(quit 14yrs ago), mod drinkr
1 mo sore throat w/neck lump 3/12
SCC tonsil, lym nodes
4/12/12 rad tonslctmy, mets in lymph nodes
5/8 PEG, 5/10 PORT 7/3/12 Last Chemo (Cisplatin)| 7/10/12 Last RAD | 9/6/12 MRI=No New Cancer
BSA Scout Ldr w/strng desire to live & beat cancer
| | | | | Joined: Aug 2011 Posts: 596 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Aug 2011 Posts: 596 | Hi, Sam!
I'm so ecstatic to hear that you got clear margins!
I know the prospect of radiation sucks, even though the met to your neck is so small...it's going to save your life!
Keep fighting and I'll be thinking of you,
Kerri
37 y/o fem at Dx (23 wks preg @ dx on 3/16/11)
SCC L oral tongue (no risk factors)
L partial gloss/MND 3/28/11 @ 25 wks preg
T1-2N0M0; no rads/chemo
Tonsillectomy on 8/6/12 +SCC L tonsil T2-3N1M0 (HPV-)
Treated with 35 rads/7 carbo & taxol (Rx ended 10/31/12), but many hospitalizations d/t complications from rx.
Various scans since rx ended are NED!
Part of genetic study for rare cancers @ MGH.
44 years old now...I wasn't sure I would make it! Hoping for 40 more!
| | | | | Joined: May 2012 Posts: 6 Member | | OP Member
Joined: May 2012 Posts: 6 | Finished 6 radiations, so far good..no mouth sores. I will definately keep updating this so everyone can see the results. Kerri, yeah that little .01 guy caused concern. They did take that out and everything else was negative. God only knows if this radiation was required or not Ken, it would be great if you could post your results as well. Did your radiologist asked you to take right before rads? My radiologist said i could not but another users radiologist said okay so i am not sure what is right. Sam Sam
tounge cancer(right bottom), stage 3
Tongue sugery and Modified neck disection 4/12, out of 27 lymph nodes just one had .01 dot..doing radiation for that dot!
Radiation 5/12- 6/12
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