#149896 - 05/22/12 03:33 PM
video: challenges as a head & neck cancer patient
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Supporting Member (50+ posts)
Registered: 07/16/10
Posts: 94
Loc: dc usa
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Enclosed is a link to the video of the grand rounds lecture I gave on May 16, 2012 for the Department of Surgery at Texas A&M in Temple Texas. I talked about my experiences as a patient with head and neck cancer, dealing with the medical and psychological aspects of life. The link to the presentation is: http://www.youtube.com/watch?v=uYRkHZQy7_4I hope that you will find the talk informative.
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#149905 - 05/22/12 06:23 PM
Re: video: challenges as a head & neck cancer patient
[Re: dribrook]
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Administrator, OCF Ambassador at Large
Patient Advocate (old timer, 2000 posts)
Registered: 06/23/07
Posts: 6728
Loc: PA
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Im looking forward to meeting you in September at Susan's walk. Here is another way for you to help other oral cancer patients. There is currently a very important study being done by Moffitt. Please help by taking a few minutes to complete the following survey. There is a minimum of 150 patients required for this study so every single one counts. It is done confidentially but there is a section at the end to add your input. I feel with your experiences this would be an excellent way to get your message heard. Moffitt Oral cancer Survey Thanks!
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ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 rad end 9/27/07, no caregiver Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 155 HBO,trismus 3/09 teeth out 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma, 2 mo hospital PICC line IV antibiotics 8 mo 10/4/10, 2/14/11 reconst surg OC 3 times in 3 years very happy to be alive
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#149956 - 05/24/12 09:22 AM
Re: video: challenges as a head & neck cancer patient
[Re: ChristineB]
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Member
Registered: 02/05/12
Posts: 24
Loc: Missouri/Florida
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Christine, Thanks! I just completed the survey.
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BrendaN. 58. Dx2/2/12 Non-smoker Mod drinker Avid exercise- Maui 1/2 marathon1/22/12- Not HPV. Prob cause- 35 yr amalgams-.2/8/2012 SCC, partial glossectomy (right side) SG IVa, 29 nodes, one w/cancer Erbitux 2/29/12 1/week-7 weeks. RAD 3/7/12 M-F for 6wks-clr PET 7/12-2ndclear CT 10/25/12
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#150012 - 05/25/12 03:47 PM
Re: video: challenges as a head & neck cancer patient
[Re: dribrook]
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"Above & Beyond" Member (500+ posts)
Registered: 07/15/11
Posts: 711
Loc: Ohio
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Dr. Brook - thanks for posting - very interesting talk. Thanks for posting. The concept of a wound as badge of honor or courage is not often spoken of in today's climate of physical perfection. I am reminded of Joshua Lawrence Chamberlain's life after the Civil War, living with pain from the shrapnel he still bore - but living a full, rich and meaningful life.
Maria
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CG to husband - SCC Tonsil T1N2M0 HPV+ Never Smoker First symptoms 7/2010, DX 12/2010 TX 40 IRMT (1.8 gy) + 10 Cetuximab PET Scans 6/2011 + 3/2012 clear, 5/2013 physical exam clear On thyroid pills. Can handle poblano peppers again. Life is good.
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