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#149896 - 05/22/12 10:33 PM video: challenges as a head & neck cancer patient  
Joined: Jul 2010
Posts: 95
dribrook Offline
Supporting Member (50+ posts)
dribrook  Offline
Supporting Member (50+ posts)

Joined: Jul 2010
Posts: 95
dc usa
Enclosed is a link to the video of the grand rounds lecture I gave on May 16, 2012 for the Department of Surgery at Texas A&M in Temple Texas. I talked about my experiences as a patient with head and neck cancer, dealing with the medical and psychological aspects of life.

The link to the presentation is:

I hope that you will find the talk informative.

#149905 - 05/23/12 01:23 AM Re: video: challenges as a head & neck cancer patient [Re: dribrook]  
Joined: Jun 2007
Posts: 10,016
ChristineB Online content
Administrator, Director of Patient Support Services
ChristineB  Online Content
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 10,016
Im looking forward to meeting you in September at Susan's walk.

Here is another way for you to help other oral cancer patients. There is currently a very important study being done by Moffitt. Please help by taking a few minutes to complete the following survey. There is a minimum of 150 patients required for this study so every single one counts. It is done confidentially but there is a section at the end to add your input. I feel with your experiences this would be an excellent way to get your message heard.

Moffitt Oral cancer Survey


SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
#149956 - 05/24/12 04:22 PM Re: video: challenges as a head & neck cancer patient [Re: ChristineB]  
Joined: Feb 2012
Posts: 25
Brenda N. Offline
Contributing Member (25+ posts)
Brenda N.  Offline
Contributing Member (25+ posts)

Joined: Feb 2012
Posts: 25
Thanks! I just completed the survey.

BrendaN. 58. Dx2/2/12 Non-smoker Mod drinker Avid exercise- Maui 1/2 marathon1/22/12- Not HPV. Prob cause- 35 yr amalgams-.2/8/2012 SCC, partial glossectomy (right side) SG IVa, 29 nodes, one w/cancer Erbitux 2/29/12 1/week-7 weeks. RAD 3/7/12 M-F for 6wks-clr PET 7/12-2ndclear CT 10/25/12
#150012 - 05/25/12 10:47 PM Re: video: challenges as a head & neck cancer patient [Re: dribrook]  
Joined: Jul 2011
Posts: 945
Maria Offline
"Above & Beyond" Member (500+ posts)
Maria  Offline
"Above & Beyond" Member (500+ posts)

Joined: Jul 2011
Posts: 945
Dr. Brook - thanks for posting - very interesting talk. Thanks for posting. The concept of a wound as badge of honor or courage is not often spoken of in today's climate of physical perfection. I am reminded of Joshua Lawrence Chamberlain's life after the Civil War, living with pain from the shrapnel he still bore - but living a full, rich and meaningful life.


CG to husband - SCC Tonsil T1N2M0 HPV+ Never Smoker
First symptoms 7/2010, DX 12/2010
TX 40 IRMT (1.8 gy) + 10 Cetuximab
PET Scans 6/2011 + 3/2012 clear, 5 year physical exam clear; chest CT's clear of cancer. On thyroid pills. Life is good.

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