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#149523 - 05/14/12 02:20 PM Michael Douglas & OCF -  
Joined: Mar 2008
Posts: 3,082
Charm2017 Offline
Patient Advocate (old timer, 2000 posts)
Charm2017  Offline
Patient Advocate (old timer, 2000 posts)

Joined: Mar 2008
Posts: 3,082
Alexandria VA
Michael Douglas is partnering with OCF to make a Public Service announcement on the importance of Early Detection. Just another example of how hard Brian Hill works to get the message out for all of us who want to see this cancer end.
Although I know it will be on the OCF news feed, since far too many of the OCF forum members do not subscribe to the fantastic OCF news feed (hint !), I'm sharing this OCF news release
Michael Douglas Partners With Oral Cancer Foundation
As usual, Brian takes no credit for what he has done
Quote:
"The Foundation is indebted to Michael Douglas for partnering with us in the battle against oral cancer," said OCF Founder and Executive Director Brian Hill, who is a survivor of the same cancer Mr. Douglas had. "Michael is a highly visible, well known actor, and a consummate professional. Those qualities, when coupled with his personal cancer experience, yield a respected voice to this fight. His willingness right from the beginning of his journey, to openly talk about his difficult personal experience with oral cancer on TV and in print, has certainly created awareness in the public of a cancer too few have even heard of. That impact will be multiplied through this partnership with the foundation, and translate into increased early recognition of problems, avoidance of risk factors, and participation in annual opportunistic screenings by the public. His involvement will create a tipping point that will ultimately save lives

So I want to shout out: Way to go Brian.
Charm


65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin

Passed away 4-29-13
#149526 - 05/14/12 05:11 PM Re: Michael Douglas & OCF - [Re: Charm2017]  
Joined: Feb 2011
Posts: 117
Ingrid K Offline
Senior Member (100+ posts)
Ingrid K  Offline
Senior Member (100+ posts)

Joined: Feb 2011
Posts: 117
Huntley, IL
Charm, DITTO !! Brian does so much, yet claims he is not a hero. (I beg to differ) thanks for posting.


DX 12/6/10 of T3 SCC Tongue.
Surgery 1/3/11 was hemigloss & forearm free flap, midline mandibulectomy, Neck Disection-All nodes clear.
Ended rads 5/11/11. Taste buds back to about 80%. PEG removed 4/5/12, experimenting eating real food again. If I can do this, so can you !! Stay Strong.
#149530 - 05/14/12 06:18 PM Re: Michael Douglas & OCF - [Re: Ingrid K]  
Joined: Jul 2009
Posts: 1,370
David2 Offline
Patient Advocate (1000+ posts)
David2  Offline
Patient Advocate (1000+ posts)

Joined: Jul 2009
Posts: 1,370
Los Angeles
And thritto for Brian. A hero no matter what he says.


David 2
SCC of occult origin 1/09 (age 55)| Stage III TXN1M0 | HPV 16+, non-smoker, moderate drinker | Modified radical neck dissection 3/09 | 31 days IMRT finished 6/09 | Hit 8 years all clear in 6/17
#149531 - 05/14/12 06:23 PM Re: Michael Douglas & OCF - [Re: Ingrid K]  
Joined: Jan 2006
Posts: 740
Susan2992 Offline
"Above & Beyond" Member (500+ posts)
Susan2992  Offline
"Above & Beyond" Member (500+ posts)

Joined: Jan 2006
Posts: 740
Pennsylvania
Way to go Brian! Without you OCF would not exist and us OC survivors would not have this great website and forum to help us get through this awful disease.

And a big THANK YOU to Michael Douglas for doing the PSA and being a spokesperson on oral cancer -- you have done a lot to bring about awareness. Early detection does save lives!

Thank you both!


Susan

SCC R-Lateral tongue, T1N0M0
Age 47 at Dx, non-smoker, casual drinker, HPV-
Surgery: June 2005
RT: Feb-Apr 2006
HBOT: 45 in 2008; 30 in 2013
Recurrence/Surgeries: Jan & Apr 2010
Biopsy 2/2011: Moderate dysplasia
Surgery 4/2011: Mild dysplasia
Dental issues: 2013-2017
#149536 - 05/14/12 08:57 PM Re: Michael Douglas & OCF - [Re: Susan2992]  
Joined: Jun 2007
Posts: 9,676
ChristineB Offline
Administrator, Director of Patient Support Services
ChristineB  Offline
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 9,676
PA
Thanks Brian for everything you do!!!


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
#149537 - 05/14/12 09:03 PM Re: Michael Douglas & OCF - [Re: ChristineB]  
Joined: Aug 2011
Posts: 269
ngk Offline
Gold Member (200+ posts)
ngk  Offline
Gold Member (200+ posts)

Joined: Aug 2011
Posts: 269
CA
yes thank you brian,you are a hero indeed!


Nancy (53 at dx)
Metastatic SCC. Stage III. HPV positive with occult primary. N1, no ecs
7/1/11 - L-Selective neck dissection. Tonsillectomy. All clean. No rad, no chemo.
5/29/13 - Found primary
7/3/13 - TORS
7/8/13 - Emergency Surgery/Blood vessel burst in throat
8/9/13 - Peg in
9/3/13 - Radiation starts 30 IMRT, 60gy BOT, 56gy both sides of neck
10/14/13 - Radiation ended!
11/12/13 - PEG out!
#149548 - 05/14/12 11:20 PM Re: Michael Douglas & OCF - [Re: ngk]  
Joined: Dec 2010
Posts: 5,260
Cheryld Offline
"OCF Canuck"
Cheryld  Offline
"OCF Canuck"
Patient Advocate (old timer, 2000 posts)

Joined: Dec 2010
Posts: 5,260
Toronto canada
Brian you are fabuloso! smile and an inspiration!


Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
#149556 - 05/15/12 12:18 AM Re: Michael Douglas & OCF - [Re: Cheryld]  
Joined: Nov 2006
Posts: 2,671
Anne-Marie Offline
Patient Advocate (old timer, 2000 posts)
Anne-Marie  Offline
Patient Advocate (old timer, 2000 posts)

Joined: Nov 2006
Posts: 2,671
TN
This really is an awesome site. Just the way it was conceived and developed is amazing and so far above any other discussion or help site. Brian is at the top of my list of amazing and unforgettable people. Kudos and BIG thanks to Michael Douglas, too for being such a great part of OCF! I remember Michael's Dad (Kirk) visiting the camera company in Chicago where I worked in the mid to late 50's and noticing when he was grown how much Michael resembled his famous Dad. With wonderful people like we have at OCF, life is indeed Good!


Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)



#149563 - 05/15/12 03:06 AM Re: Michael Douglas & OCF - [Re: Anne-Marie]  
Joined: Mar 2002
Posts: 4,738
Brian Hill Offline
OCF Founder
Brian Hill  Offline
OCF Founder
Patient Advocate (old timer, 2000 posts)

Joined: Mar 2002
Posts: 4,738
Boise, ID and Portland, OR
The press release has been edited to show the release statement of the relationship on the Time Square billboard in NYC during rush hour today

http://oralcancernews.org/wp/actor-micha...n-psa-campaign/


Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
#149564 - 05/15/12 04:01 AM Re: Michael Douglas & OCF - [Re: Brian Hill]  
Joined: Jun 2007
Posts: 9,676
ChristineB Offline
Administrator, Director of Patient Support Services
ChristineB  Offline
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 9,676
PA
Great work Brian!!!! Way to go, putting it right there on the Times Square billboard. Thats sure to get some attention!!! So glad Mr Douglas has been part of the awareness campaign!!!


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
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