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#149403 - 05/11/12 12:08 PM Is thyroid cancer a head and neck cancer
wendys Offline
Senior Member (100+ posts)

Registered: 09/24/09
Posts: 176
Loc: MN
Hi all, I have a friend who 22 year old daughter just found out that she has thyroid cancer. Is this considerd a head and neck/oral cancer. I want to refer her to this site if it would be helpful for her.

Thanks
_________________________
Wendy
46yrs@ DX 9/16/09 T1N0 SCC of leftlat tongue, poorly differentiated.Partial glosectomy 10/01/09 & 10/16/09 & 11/10/09 60-70% tongue removed, Radical fff, 38 nodes-clear, no rads/chemo. 3 petscans-clear


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#149408 - 05/11/12 01:35 PM Re: Is thyroid cancer a head and neck cancer [Re: wendys]
Cheryld Offline
"OCF Canuck"
Patient Advocate (old timer, 2000 posts)

Registered: 12/22/10
Posts: 4976
Loc: Toronto canada
Hi there - I don't think it really is... It may scare the crap out of her to come here despite the great support offered. Thyroid cancer is a different treatment process, and generally a very very curable cancer. My husbands cousin had it at 25, and she's fine now, they removed lymph nodes and then emplanted radiation seeds, or gave her pills, so she was actually radioactive. I don't believe the do rads and chemo for thyroid, though often they do surgery and a thyroidectomy. She's more than welcome to drop in of course, but I'm not sure how much support other than emotional she'll get. I haven't seen a thyroid cancer here... Sorry she has to go through this but tell her she should be fine, it really is very very curable - though as with any cancer the treatment sucks. smile hugs
_________________________
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan

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#149411 - 05/11/12 02:43 PM Re: Is thyroid cancer a head and neck cancer [Re: Cheryld]
wendys Offline
Senior Member (100+ posts)

Registered: 09/24/09
Posts: 176
Loc: MN
Thanks, yep, I figured this site would scare the crap out of her, so I didn't want to recommend it without being sure.
_________________________
Wendy
46yrs@ DX 9/16/09 T1N0 SCC of leftlat tongue, poorly differentiated.Partial glosectomy 10/01/09 & 10/16/09 & 11/10/09 60-70% tongue removed, Radical fff, 38 nodes-clear, no rads/chemo. 3 petscans-clear


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#149419 - 05/11/12 05:29 PM Re: Is thyroid cancer a head and neck cancer [Re: wendys]
Charm2017 Offline
Patient Advocate (old timer, 2000 posts)

Registered: 03/03/08
Posts: 3082
Loc: Alexandria VA
Wendy

It's not that the OCF site is so scary IMO although thyroid cancer has good survival rates with less complications than our cancer. You'd be better off referring her to the rest of the ACS workup on their website
Thyroid cancer survival by type and stage

From my experience with two thryoid cancer patients, their issues did not have much in common with mine, so a lot of the advice here would not be relevant.
Charm


Edited by Charm2017 (05/11/12 05:34 PM)
Edit Reason: typos
_________________________
65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin

Passed away 4-29-13

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#149421 - 05/11/12 05:38 PM Re: Is thyroid cancer a head and neck cancer [Re: Charm2017]
ChristineB Offline
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

Registered: 06/23/07
Posts: 8516
Loc: PA
I have briefly seen one or 2 thyroid patients over the past 5 years. Anyone is welcome but that illness is different than what most OC survivors deal with. I would follow Charm's link to get them some experienced assistance. Its very sad to hear your friend's daughter is only 22 and going to go thru cancer treatments. Best wishes to her and her family!
_________________________
Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07, no caregiver
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo extended hospital stay, ICU & burn unit
PICC line w/ IV antibiotics 8 mo
10/4/10, 2/14/11 reconst surg
OC 3 times in 3 years
very happy to be alive smile

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#149438 - 05/11/12 11:15 PM Re: Is thyroid cancer a head and neck cancer [Re: ChristineB]
Brian Hill Offline
OCF Founder
Patient Advocate (old timer, 2000 posts)

Registered: 03/18/02
Posts: 4685
Loc: Laguna Niguel, CA
Thyroid cancer IS a head and neck cancer. So are ocular, and auditory cancers, laryngeal cancers, and of course what we talk about here, oral cancer. Ironically brain cancers are NOT a head and neck cancer. Esophageal cancer when located in the neck is part of the group as well, but movers over to thoracic cancer when it gets closer to the stomach.

Thyroid cancers have very high survival rates, even if the thyroid has to be removed. Life long thyroid hormone supplements allow people that have that surgery to go on normally. Unlike oral and laryngeal cancers which are predominantly SCC, thyroid cancer is an endocrine system cancer and the causes are nothing like oral.

There are some groups out there for head and neck cancers, (with not so many people from each group represented, but to be the most specific I would turn her on to this group http://www.thyca.org/
_________________________
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.

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