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#149403 - 05/11/12 12:08 PM Is thyroid cancer a head and neck cancer  
Joined: Sep 2009
Posts: 177
wendys Offline
Senior Member (100+ posts)
wendys  Offline
Senior Member (100+ posts)

Joined: Sep 2009
Posts: 177
MN
Hi all, I have a friend who 22 year old daughter just found out that she has thyroid cancer. Is this considerd a head and neck/oral cancer. I want to refer her to this site if it would be helpful for her.

Thanks


Wendy
46yrs@ DX 9/16/09 T1N0 SCC of leftlat tongue, poorly differentiated.Partial glosectomy 10/01/09 & 10/16/09 & 11/10/09 60-70% tongue removed, Radical fff, 38 nodes-clear, no rads/chemo. 3 petscans-clear

#149408 - 05/11/12 01:35 PM Re: Is thyroid cancer a head and neck cancer [Re: wendys]  
Joined: Dec 2010
Posts: 5,260
Cheryld Offline
"OCF Canuck"
Cheryld  Offline
"OCF Canuck"
Patient Advocate (old timer, 2000 posts)

Joined: Dec 2010
Posts: 5,260
Toronto canada
Hi there - I don't think it really is... It may scare the crap out of her to come here despite the great support offered. Thyroid cancer is a different treatment process, and generally a very very curable cancer. My husbands cousin had it at 25, and she's fine now, they removed lymph nodes and then emplanted radiation seeds, or gave her pills, so she was actually radioactive. I don't believe the do rads and chemo for thyroid, though often they do surgery and a thyroidectomy. She's more than welcome to drop in of course, but I'm not sure how much support other than emotional she'll get. I haven't seen a thyroid cancer here... Sorry she has to go through this but tell her she should be fine, it really is very very curable - though as with any cancer the treatment sucks. smile hugs


Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
#149411 - 05/11/12 02:43 PM Re: Is thyroid cancer a head and neck cancer [Re: Cheryld]  
Joined: Sep 2009
Posts: 177
wendys Offline
Senior Member (100+ posts)
wendys  Offline
Senior Member (100+ posts)

Joined: Sep 2009
Posts: 177
MN
Thanks, yep, I figured this site would scare the crap out of her, so I didn't want to recommend it without being sure.


Wendy
46yrs@ DX 9/16/09 T1N0 SCC of leftlat tongue, poorly differentiated.Partial glosectomy 10/01/09 & 10/16/09 & 11/10/09 60-70% tongue removed, Radical fff, 38 nodes-clear, no rads/chemo. 3 petscans-clear

#149419 - 05/11/12 05:29 PM Re: Is thyroid cancer a head and neck cancer [Re: wendys]  
Joined: Mar 2008
Posts: 3,082
Charm2017 Offline
Patient Advocate (old timer, 2000 posts)
Charm2017  Offline
Patient Advocate (old timer, 2000 posts)

Joined: Mar 2008
Posts: 3,082
Alexandria VA
Wendy

It's not that the OCF site is so scary IMO although thyroid cancer has good survival rates with less complications than our cancer. You'd be better off referring her to the rest of the ACS workup on their website
Thyroid cancer survival by type and stage

From my experience with two thryoid cancer patients, their issues did not have much in common with mine, so a lot of the advice here would not be relevant.
Charm

Last edited by Charm2017; 05/11/12 05:34 PM. Reason: typos

65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin

Passed away 4-29-13
#149421 - 05/11/12 05:38 PM Re: Is thyroid cancer a head and neck cancer [Re: Charm2017]  
Joined: Jun 2007
Posts: 9,676
ChristineB Offline
Administrator, Director of Patient Support Services
ChristineB  Offline
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 9,676
PA
I have briefly seen one or 2 thyroid patients over the past 5 years. Anyone is welcome but that illness is different than what most OC survivors deal with. I would follow Charm's link to get them some experienced assistance. Its very sad to hear your friend's daughter is only 22 and going to go thru cancer treatments. Best wishes to her and her family!


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
#149438 - 05/11/12 11:15 PM Re: Is thyroid cancer a head and neck cancer [Re: ChristineB]  
Joined: Mar 2002
Posts: 4,738
Brian Hill Offline
OCF Founder
Brian Hill  Offline
OCF Founder
Patient Advocate (old timer, 2000 posts)

Joined: Mar 2002
Posts: 4,738
Boise, ID and Portland, OR
Thyroid cancer IS a head and neck cancer. So are ocular, and auditory cancers, laryngeal cancers, and of course what we talk about here, oral cancer. Ironically brain cancers are NOT a head and neck cancer. Esophageal cancer when located in the neck is part of the group as well, but movers over to thoracic cancer when it gets closer to the stomach.

Thyroid cancers have very high survival rates, even if the thyroid has to be removed. Life long thyroid hormone supplements allow people that have that surgery to go on normally. Unlike oral and laryngeal cancers which are predominantly SCC, thyroid cancer is an endocrine system cancer and the causes are nothing like oral.

There are some groups out there for head and neck cancers, (with not so many people from each group represented, but to be the most specific I would turn her on to this group http://www.thyca.org/


Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.

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