Previous Thread
Next Thread
Print Thread
Joined: May 2012
Posts: 6
Member
OP Offline
Member

Joined: May 2012
Posts: 6
Have a question.

At the time of my surgery back in August 2008 I opted for the obturator rather than doing the jaw replacement and flap ...

They made me the temporary one and I came out of surgery with it in place.

Well, it is now 2012 and I still have the temp one. Which was only to be for 6 months and they would then construct the new permanent one ...

Well, life happened - it got busy, mom had just passed away, we moved 3 times and then a fourth time to a new state, started new jobs and well you know ... life happened smile

But now that things have settled down, this thing is driving me Nuts!!! It is so misaligned now my speech is not as it should be, food and drink get by it constantly etc ... and now the prong like things in front of it are rubbing and pushing against my tooth in front that has a veneer on it and it feels like it is about to displace it ... so i am really wanting to get the permanent started

but

when i looked up here in the phoenix az area who to go to for making a new obturator it listed dentists who specialize in it. i went in to one and they told me my dental will cover part of it but i need to pay $4500 cash before they will start it.

if medical would cover it, then i would be at 90-100% but they said it has to be dental

in WA when I had the work done on it at the UW where i had my surgery, everything was covered ... but now i am facing this...

anyone know a way to get medical to pay it or what everyone normally does for this?

i didn't dream of it being a problem.

we have good insurance - aetna

Thanks for any advice ... i want it fixed / remade before it breaks something or breaks itself - i have taken good care of it but it is starting to show signs of wear - heck it is 4 yrs old and was spose to be for 6 months LOL

thanks so much!


Joined: Jun 2007
Posts: 10,507
Likes: 6
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)
Offline
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 10,507
Likes: 6
Im sure someone with an obturator will be along to help you with this question. Sorry I am not familiar with the billing of this. I would guess it should be covered by insurance just like any other durable medical equipment or dentures.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
Joined: May 2012
Posts: 6
Member
OP Offline
Member

Joined: May 2012
Posts: 6
Thanks my dear smile Not sure how many opt to do the obturator route but thought it was worth asking in case someone has ran on to this before smile

Joined: May 2009
Posts: 132
Senior Member (100+ posts)
Offline
Senior Member (100+ posts)

Joined: May 2009
Posts: 132
You might have to fight with the medical insurance company to get them to pay for the obturator (I did -- had to write letters, had to get the prosthodontist to write letters), but it should be covered under medical. It's not dental -- it's cancer-related, and therefore medical! Good luck -- fight hard. Don't give up. The final obturator will be a big improvement over the temporary one!


Chrissy

Stage 2 SCC upper right palate
Hemi-palatectomy and maxillectomy 5/28/09
Six teeth gone
IMRT x30 starts July 13. Completed 8/26/09
Carboplatin and Taxol x6 starting 7/14/09. Completed 8/25/09.
Joined: Nov 2012
Posts: 5
jlc Offline
Member
Offline
Member

Joined: Nov 2012
Posts: 5
what is this obturator?? five years and 15 surgeries later i am at the end of the yellow brick road and they made me dentures!! Really? i don't have a tongue, how am i to use dentures... i cry every day .. my eyes open and i remember that and become depressed.. i was fine .. well, i was functioning at least. i am about to graduate college, wanna work, wanna find love, get my life back that has been paused. in todays technology you would think there would be some sort of prosthetic tongue.. or device to work with my flap... we're soooo.... close..... i was researching the web for info about alternate methods... when i found this web sight today. I haven't left here since!!! it is a blessing that i found ya'll!! after years of handling it.. thinking i was alone; i discover I am not--jc

Last edited by ChristineB; 11-03-2012 07:34 AM.
Joined: Mar 2002
Posts: 4,912
Likes: 52
OCF Founder
Patient Advocate (old timer, 2000 posts)
Offline
OCF Founder
Patient Advocate (old timer, 2000 posts)

Joined: Mar 2002
Posts: 4,912
Likes: 52
If you end up with an opening between your oral cavity and your sinus from a maxillary surgery on your palate, there are few great surgical or grafting solutions to close it. So an obturator is a prosthetic solution which is usually a combination plastic and silicone piece, that is removable for cleaning, that fits in the roof of your mouth to close things up and reduce debris getting where it shouldn't, infections, and so much more. It also makes nasal breathing so much easier for people with this kind of situation. If you don't have any upper/maxillary teeth left (or not many) the obturator can actually be on the underside (tissue side) of an upper denture, giving your mouth when you smile or open it, a more natural appearance.


Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
Joined: Mar 2002
Posts: 4,912
Likes: 52
OCF Founder
Patient Advocate (old timer, 2000 posts)
Offline
OCF Founder
Patient Advocate (old timer, 2000 posts)

Joined: Mar 2002
Posts: 4,912
Likes: 52
ritabrenke - get your oncology doctors to write a letter to your medical insurance company about your need for the obturator. This is definitely a medical need, though it is often made buy a dental prosthodontist. That prosthodontist that you talked to knows this. Dental professionals do not like to deal with medical insurance companies, and fill out all the forms, but at the end of the day this should be commonplace for a maxillofacial prosthodontist. If you saw a regular prosthodontist, look for another one that specializes in maxillofacial work. You will have way less issues with him taking your medical insurance. Another issue is that you may (I am guessing) have moved to someplace outside your coverage area, which creates a hole 'nuther bag of worms.

Also re geting the "final one" , this takes time. Your mouth is healing and going through many physical changes in shape as this takes place - particularly in the first year. That all has to settle down before you get the final appliance. Even that one will have to be remade (or at least the tissue side of it relined) every few years to stay nice and tight and sealed when you are wearing it.

Last edited by Brian Hill; 11-03-2012 07:47 PM.

Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
Joined: Apr 2011
Posts: 131
"OCF across the pond"
Senior Member (100+ posts)
Offline
"OCF across the pond"
Senior Member (100+ posts)

Joined: Apr 2011
Posts: 131
I have an obturator but here in the uk it is free on the nhs. I have had three in the past year the temp one then a more solid one and now one that fits the hole and pushes my nose up a bit!
Sorry I can't help with your question but just wanted to let you know you are not alone!


Scc nasal cavity /hard palate
Surgery removal of septum and roof of mouth 15/3/11 cl margins
Rt and cisplatin 6 weeks starting 24/5/11
Obturator

Age 45
Joined: Mar 2013
Posts: 5
Member
Offline
Member

Joined: Mar 2013
Posts: 5
I am in Mesa AZ, so kind of your area. I had surgery and received an obturator a week and a half ago. You may have resolved your problem by now, but the CCC treating me referred me to a dental college in my area (AT Still) which has two specialists in this type of problem. My initial one is working well and I am going for a check and some adjustment tomorrow.


2/13/13 biopsy tumor on palate
2/20/13 dx stg 4 adenocarcinoma minor salivary glnds
2/22/13 seen at cancer center
3/14/13 surgery w/obturator placement
3/22/13 new path rprt - downgraded to stg 1 - had expected radiationm, now not deemed necessary

Link Copied to Clipboard
Top Posters
ChristineB 10,507
davidcpa 8,311
Cheryld 5,260
EzJim 5,260
Brian Hill 4,912
Newest Members
Jina, VintageMel, rahul320, Sean916, Megm37
13,103 Registered Users
Forum Statistics
Forums23
Topics18,168
Posts196,924
Members13,103
Most Online458
Jan 16th, 2020
OCF Awards

Great Nonprofit OCF 2023 Charity Navigator OCF Guidestar Charity OCF

Powered by UBB.threads™ PHP Forum Software 7.7.5