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#148988 - 05/02/12 09:30 PM The Beast Walks Again.
Cookey Offline
"OCF across the pond"
Patient Advocate (1000+ posts)

Registered: 02/20/07
Posts: 1940
Loc: Harewood -Yorkshire, UK
For those of you who remember, my shelter and support after Robins death was my mum.Since January she has been brought to her knees with a fracture in her spine,pneumonia,Norovirus and now after all that we find that lurking beneath all this is Breast Cancer. So it looks like it's saddle up and here we go again. This time last year she was packing for her 80 th birthday Norwegian Cruise. Today she is a tiny frail old lady in her bed,living on morphine and liquid food supplements.
Life can be cruel .
Liz in the UK

Husband Robin aged 44 years Dx 8th Dec 2006 poorly differentiated SCC tongue with met to neck T1N2cM0 Surgery and Radiation.Finished TX April 2007
Recurrence June/07 died July 29th/07.

Never take your eye off the ball, it may just smack you in the mouth.

#148989 - 05/02/12 10:46 PM Re: The Beast Walks Again. [Re: Cookey]
helen.c Offline
Patient Advocate (1000+ posts)

Registered: 09/15/03
Posts: 1244
Loc: Leicester . U.K.
I was so sorry to hear this devastating news, I do hope that they can find a way of helping your Mum back to better health, it's so hard isn't it, to see one's Mum like that,

Love and Hugs
Helen x x
SCC Base of tongue, (TISN0M0) laser surgery, 10/01 and 05/03 no clear margins. Radial free flap graft to tonsil pillar, partial glossectomy, left neck dissection 08/04

#148993 - 05/02/12 11:48 PM Re: The Beast Walks Again. [Re: helen.c]
Cheryld Offline
"OCF Canuck"
Patient Advocate (old timer, 2000 posts)

Registered: 12/22/10
Posts: 5260
Loc: Toronto canada
Hugs - you need them big time... I'm sorry to hear about your mom, it's devastating to lose someone you love as you well know... Think positively - you will get through this. Take care and we're here for you.
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan

#148998 - 05/03/12 01:16 AM Re: The Beast Walks Again. [Re: Cheryld]
KP5 Offline
"Above & Beyond" Member (500+ posts)

Registered: 10/09/11
Posts: 805
Loc: NY
So sorry for all you are going through. I'm sure it brings back memories and fears and sadness. Prayers for peace for you and your mum.
Kathy wife/caregiver to:
Kevin age:53
Dx 7/15/11
Non smoker, casual drinker
7/27/11 Cistplatin, taxotere,5FU 2/3week sessions, followed by IMRT 125cgy x 60 (2x daily) w/Erbitux weekly. Last rad 10/26/11. Last Erbitux 10/27/11
PEG placed 9/1/11 Removed 11/8/11
Clear PET 10/12 and 10/13 and ct in 6/14

#149005 - 05/03/12 02:17 AM Re: The Beast Walks Again. [Re: KP5]
ChristineB Offline
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

Registered: 06/23/07
Posts: 9435
Loc: PA
Oh Liz! I am so terribly sorry to hear that cancer is part of your family yet again. I wish you and your mother all the very best with fighting this horrible disease.
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07, no caregiver
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo extended hospital stay, ICU & burn unit
PICC line w/ IV antibiotics 8 mo
10/4/10, 2/14/11 reconst surg
OC 3 times in 3 years
very happy to be alive smile

#149010 - 05/03/12 04:35 AM Re: The Beast Walks Again. [Re: ChristineB]
julieann Offline
"Above & Beyond" Member (500+ posts)

Registered: 06/24/09
Posts: 875
Loc: Alabama
You have my prayers for your Mom to be able to get through yet another horrible time in her life, and you too. No, it isn't fair and I hate it! Please keep us in touch and you both are on my nightly prayer list starting tonight.
Please give her a big hug from julieann
Nov 2007 SCC on right tonsil following tonsillectomy. Was smoker, QUIT. (Stage IV T2 N2b) 7 weeks radiation one day/wk chemo (carboplatin and 5-FU). Allergic to Taxol; PEG in, lost 30 lbs. TX completed January 2008. PEG out mid- 2008. PET/CT 1/17/2011;2/3/12 NEGATIVE for cancer smile

#149015 - 05/03/12 10:16 AM Re: The Beast Walks Again. [Re: julieann]
Anne-Marie Offline
Patient Advocate (old timer, 2000 posts)

Registered: 11/03/06
Posts: 2671
Loc: TN
So sorry to hear about your Mom, Liz. I do hope that something can be done to help her through this and to help you, too in finding some peaceful moments ahead in this newest fight. Life can certainly be cruel, but know that we are all here for you. So stay close and let us know what's happening. Lots of love and prayers going your way right now!
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)

#149075 - 05/04/12 04:40 PM Re: The Beast Walks Again. [Re: Anne-Marie]
AnitaFrances Offline
"Above & Beyond" Member (500+ posts)

Registered: 09/25/09
Posts: 695
Loc: Media, PA
Gee, Liz, seeing your vibrant Mom suffering and fighting so hard has got to be awful for you. You are among friends, so please rely on us to support you. I wish you both peace and comfort as you navigate her care.
Anita (62)
CG to husband, Clark, 73,
DX SCC 11/07, T4N0Mx, PEG 1/08, RAD, post rad infection 3/08,
HBOT 40 dives, ORN, Surg 11/09 mandibulectomy w/fibular graft.
Plastic Surg 4/10, 12/10, 3/11, 10/11, 4/12, 10/12. All PETS clear,
PEG out 1/11. 6/11 non union jaw fracture
Fractured jaw w/surgery 7/14

#149104 - 05/04/12 10:46 PM Re: The Beast Walks Again. [Re: AnitaFrances]
klo Offline
"OCF Down Under"
"Above & Beyond" Member (500+ posts)

Registered: 05/18/10
Posts: 638
Loc: Sydney Australia
Not fair! We are all here to support you Liz
Love of Life to Alex T4N2M0 SCC Tonsil, BOT, R lymph nodes
Dx March 2010 51yrs. Unresectable. HPV+ve
Tx Chemo x 3+1 cycles(cisplatin,docetaxel,5FU)- complete May 31
Chemoradiation (IMRTx35 + weekly cisplatin)
Finish Aug 27
Return to work 2 years on
3 years out Aug 27 2013 NED smile
Still underweight

#149106 - 05/04/12 11:37 PM Re: The Beast Walks Again. [Re: klo]
Gabe Offline
"OCF Down Under"
Patient Advocate (1000+ posts)

Registered: 08/02/07
Posts: 1301
Loc: Sydney NSW Australia
I am so very sorry to read that you are again dealing with cancer Liz.
There is nothing that I can write that has not been said and I hope that something can be done for your mother.
Sending lots of love and hugs,
History Leukoplakia bx 8/2006 SCC floor mouth T3N0M0- Verrucous Carcinoma.
14 hour 0p SCC-Right ND/excision/marginal mandibulectomy 9/2006, 4 teeth removed, flap from wrist, trach-ng 6 days- no chemo/rad.
6 ops and debulking (flap/tongue join) + bx's 2006-2012.
bx Jan 2012 Hyperkeratosis-Epithelial Dysplasia
24cm GIST tumour removed 8/2013. Indefinite Oral Chemo.

1/31/16 passed away peacefully surrounded by family

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