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#136467 - 07/09/11 05:25 AM Re: Manuka not proven but may be logical [Re: Cheryld]
Cheryld Offline
"OCF Canuck"
Patient Advocate (old timer, 2000 posts)

Registered: 12/22/10
Posts: 4976
Loc: Toronto canada
_________________________
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan

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#136482 - 07/09/11 01:47 PM Re: Manuka not proven but may be logical [Re: Cheryld]
Cheryld Offline
"OCF Canuck"
Patient Advocate (old timer, 2000 posts)

Registered: 12/22/10
Posts: 4976
Loc: Toronto canada
It's been brought to my attention the link above isn't working (thanks Anne Marie!!) I am not sure if it's related to this site (I know they block some thinks here) or what - originally I confirmed this link in a pm - went back and checked it so its working for me...
But ill try again.... Also I would like to reiterate TEASPOONS - I'm sorry I can't edit the original posting! I majke that mistake a lot - chemotherapy brain???? Dunno


http://www.uhn.ca/Patients_&_Visitor..._RT_English.pdf




Edited by Cheryld (07/09/11 01:49 PM)
_________________________
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan

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#136485 - 07/09/11 01:55 PM Re: Manuka not proven but may be logical [Re: Cheryld]
Anne-Marie Offline
Patient Advocate (old timer, 2000 posts)

Registered: 11/03/06
Posts: 2604
Loc: TN
It's working for me, too, Cheryl - thanks!
_________________________
Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)




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#147046 - 03/11/12 05:03 PM Re: Manuka not proven but may be logical [Re: Cheryld]
Brenda N. Offline
Member

Registered: 02/05/12
Posts: 24
Loc: Missouri/Florida
Cheryl,
What type and brand of Manuka honey. It is hard to find UMF 16+ anywhere but online. Will bio active 5+ from New Zealand work just as well?
_________________________
BrendaN. 58. Dx2/2/12 Non-smoker Mod drinker Avid exercise- Maui 1/2 marathon1/22/12- Not HPV. Prob cause- 35 yr amalgams-.2/8/2012 SCC, partial glossectomy (right side) SG IVa, 29 nodes, one w/cancer Erbitux 2/29/12 1/week-7 weeks. RAD 3/7/12 M-F for 6wks-clr PET 7/12-2ndclear CT 10/25/12

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#147070 - 03/12/12 11:28 PM Re: Manuka not proven but may be logical [Re: Brenda N.]
Cheryld Offline
"OCF Canuck"
Patient Advocate (old timer, 2000 posts)

Registered: 12/22/10
Posts: 4976
Loc: Toronto canada
Try whole foods they'll have it. I don't know abut the 5+ it may not be strong enough. But seriously - try whole foods.

Good luck!
_________________________
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan

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#148882 - 04/30/12 02:18 PM Re: Manuka not proven but may be logical [Re: Cheryld]
SEANA Offline
Contributing Member (25+ posts)

Registered: 04/30/12
Posts: 29
Loc: europe
my Husband will be starting 7 weeks of radiation 30mts per day ,5 days a week plus 2 and half hours on drip of cisplaten per week for 7 weeks.he has stage 4 on base of tongue and in one sliva gland,he is 50yrs old very fit and healthy. he is on Warfren as he has "lumpy blood". He hade 4 teeth removed 10 days ago and will be starting treatment 14th may 2012 or may week before.will the manuka honey not do damage to teeth as so much suger in it?

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#148890 - 04/30/12 03:12 PM Re: Manuka not proven but may be logical [Re: SEANA]
ChristineB Offline
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

Registered: 06/23/07
Posts: 8516
Loc: PA
Your husband should see a dentist and have flouride trays made asap! He will need to use them every single day to help his teeth withstand the effects of radiation. This is very very important! My teeth werent so lucky and had severe radiation damage to them. I eventually had them pulled as they were crooked and all loose.

Have your husband enjoy all his favorite foods now as his sense of taste will change for a few months.
_________________________
Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07, no caregiver
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo extended hospital stay, ICU & burn unit
PICC line w/ IV antibiotics 8 mo
10/4/10, 2/14/11 reconst surg
OC 3 times in 3 years
very happy to be alive smile

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#148920 - 05/01/12 02:16 AM Re: Manuka not proven but may be logical [Re: ChristineB]
Cheryld Offline
"OCF Canuck"
Patient Advocate (old timer, 2000 posts)

Registered: 12/22/10
Posts: 4976
Loc: Toronto canada
Actually I was worried about the same thing the study I read said no (go figure!!!) I cant remember the details but it had something of sugar (as its not really a sugar) but I used it from week 3- 8 (two weeks post rads) and then stopped now I only us it if I have an oral irritation, (not often!!!) I think maybe long term use - might possibly cause issues but I also rinsed frequently and brushed x 2 and used a water pik to Clean around my gums (still do) so far so good... My dentist says he's happy ! smile
_________________________
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan

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#148986 - 05/02/12 09:20 PM Re: Manuka not proven but may be logical [Re: Cheryld]
klo Offline
"OCF Down Under"
"Above & Beyond" Member (500+ posts)

Registered: 05/18/10
Posts: 638
Loc: Sydney Australia
my understanding of dental decay is that it is bacteria which goes on to produce acids that causes the problem. Sucrose in table sugar (and much of the additives in food) allows development of bacteria and plaque. Manuka is known to have antibacterial properties which is why it was tested in leg ulcers all those years ago. So, if honey has antibacterial properties making it difficult or impossible for bacteria to grow, and bacteria cause cavities, then the logical leap is that honey doesn't have the same issues as other sugars. Just joining the dots here - I might be missing something though.

This is my understanding only and I could have the concept wrong so would be pleased if one of the dental professionals might explain this better.
_________________________
Karen
Love of Life to Alex T4N2M0 SCC Tonsil, BOT, R lymph nodes
Dx March 2010 51yrs. Unresectable. HPV+ve
Tx Chemo x 3+1 cycles(cisplatin,docetaxel,5FU)- complete May 31
Chemoradiation (IMRTx35 + weekly cisplatin)
Finish Aug 27
Return to work 2 years on
3 years out Aug 27 2013 NED smile
Still underweight

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#148997 - 05/03/12 12:04 AM Re: Manuka not proven but may be logical [Re: klo]
Cheryld Offline
"OCF Canuck"
Patient Advocate (old timer, 2000 posts)

Registered: 12/22/10
Posts: 4976
Loc: Toronto canada
Thanks KLO... smile
_________________________
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan

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