Previous Thread
Next Thread
Print Thread
Page 2 of 2 1 2
#148936 - 05/01/12 06:09 PM Re: Feeding Tubes [Re: Maria]  
Joined: Apr 2012
Posts: 60
itsoktoday Offline
Supporting Member (50+ posts)
itsoktoday  Offline
Supporting Member (50+ posts)

Joined: Apr 2012
Posts: 60
California
Everyone,
Thank you for all the helpful tips. Do any of you have problems with reflux or asperation? They want to put my tube in my small intestine. I just found that out.


10/10 IV OSCC metastatic to lymph nodes. 10/10 Peg,Port,Trech. due to rad scarring cannot swallow. 9/12 Pet clean. SCC back again 11/12. Tumor attached to jugular, Rad DX left side of neck 11/19/12. No Chemo or Rads. MRI on 1/11/13 for chronic pain w/pet scan 2/15/13.
#148937 - 05/01/12 06:10 PM Re: Feeding Tubes [Re: Charm2017]  
Joined: Apr 2012
Posts: 60
itsoktoday Offline
Supporting Member (50+ posts)
itsoktoday  Offline
Supporting Member (50+ posts)

Joined: Apr 2012
Posts: 60
California
Hi Charm,
What do you mean again by a button tube? Never heard of it. I shall do some research on that.
Thanks


10/10 IV OSCC metastatic to lymph nodes. 10/10 Peg,Port,Trech. due to rad scarring cannot swallow. 9/12 Pet clean. SCC back again 11/12. Tumor attached to jugular, Rad DX left side of neck 11/19/12. No Chemo or Rads. MRI on 1/11/13 for chronic pain w/pet scan 2/15/13.
#148939 - 05/01/12 06:41 PM Re: Feeding Tubes [Re: itsoktoday]  
Joined: Dec 2010
Posts: 5,260
Cheryld Offline
"OCF Canuck"
Cheryld  Offline
"OCF Canuck"
Patient Advocate (old timer, 2000 posts)

Joined: Dec 2010
Posts: 5,260
Toronto canada
Hi there again... to the people talking about formula's etc. Is it not possible to make healthy blended food on your own? I know it's a lot of prep work but ultimately from a health stand point you would be eating food that's prepared fresh by you and gives you more control... there is a website for tube feeders that offers nutritious options with no additives and chemicals.

As for you - Itsokay.... Mine was placed in my small intestine during treatment... the bad thing about that is you are then stuck on a formula feed I think... since - i was told by a dietician that you have to have a special type of feed for that as it has to be predigested? Of course there are probably many different brands, but I would ask. good luck.


Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
#148942 - 05/01/12 07:07 PM Re: Feeding Tubes [Re: itsoktoday]  
Joined: Mar 2008
Posts: 3,082
Charm2017 Offline
Patient Advocate (old timer, 2000 posts)
Charm2017  Offline
Patient Advocate (old timer, 2000 posts)

Joined: Mar 2008
Posts: 3,082
Alexandria VA
Robin

Regular G or J tubes have a long tube dangling out the front.
Buttons or skin level devices do not.
I did not realize that you were talking about a J or Jejunum tube. Those tubes go into the small intestine.
J tubes require a special type of "button". Here is a link to one woman's J button story J button
Here is a link to pictures of the two most popular G or gastronomy"buttons". They go directly into the stomach Mickey vs AMT button

As you can see, the J button has a tube on the inside since the intestine does not have the storage of the stomach. The G button has no tube. Both use a balloon to hold it in.

There are also combo J and G tubes. J tubes almost always require very slow feed drip with a pump. You need a tube first to let the stoma heal properly before you can get a button
Charm


65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin

Passed away 4-29-13
#148950 - 05/01/12 09:44 PM Re: Feeding Tubes [Re: Charm2017]  
Joined: Jun 2007
Posts: 9,653
ChristineB Offline
Administrator, Director of Patient Support Services
ChristineB  Offline
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 9,653
PA
I have a J/G tube which has a port for the stomach and another one for my large intestine. I usually use the smaller one (stomach) for meds and the larger one for the feeding formula. The J/G tubes are great but they do wear out quickly. That is a huge disadvantage of them, having to go every 2 or 3 months for a new one. Its done on an outpatient basis where you are awake for the whole thing. It can be uncomfortable, but it is fast. I usually walk out of there with a brand new one about 25 minutes after I walk into the hospital.

Good luck!!!


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
#149029 - 05/03/12 03:50 PM Re: Feeding Tubes [Re: ChristineB]  
Joined: Feb 2009
Posts: 20
sandisays Offline
Member
sandisays  Offline
Member

Joined: Feb 2009
Posts: 20
missouri
I m not sure what kind of information you are looking for. I've had a tube for three years and will have it for the rest of my life. The last replacement was the newer button type which I like better than the "hanging tube" type. I use Jevity and other than coffee and chicken noodle soup broth thats about it. Most liquids (and I mean thin liquid) doesn't taste good. I just accepted the idea and have learned to live with it, I still go out with family and friends but just order coffee. I have traveled extensively with it. Some things in life just can't be changed, the sooner you accept the idea the better off you are. I have always taken the thought if thats the worse thats going to happen to me I pretty lucky.

#149277 - 05/08/12 06:15 PM Re: Feeding Tubes [Re: sandisays]  
Joined: Apr 2012
Posts: 60
itsoktoday Offline
Supporting Member (50+ posts)
itsoktoday  Offline
Supporting Member (50+ posts)

Joined: Apr 2012
Posts: 60
California
I have not yet had the J tube put in. I am getting a second opinion by doing aonther Barium Swallow Test and Barium Swallow test through the tube I currently have to see if it is truly a swallowing problem versus a reflux problem that is causing my asperations. I did a little test last weekend eating a bit of food and drinking some liquids. I asperated that evening and had a stomach ache and was ill that night and the following day. I just want to check out all my options before I completely give myself up to having a feeding tube the rest of my life.
Robin


10/10 IV OSCC metastatic to lymph nodes. 10/10 Peg,Port,Trech. due to rad scarring cannot swallow. 9/12 Pet clean. SCC back again 11/12. Tumor attached to jugular, Rad DX left side of neck 11/19/12. No Chemo or Rads. MRI on 1/11/13 for chronic pain w/pet scan 2/15/13.
Page 2 of 2 1 2

Moderated by  Brian Hill 

Support OCF


Help OCF

Shop Amazon and Help OCF

Who's Online Now
0 registered members (), 15 guests, and 0 spiders.
Key: Admin, Global Mod, Mod
Forum Statistics
Forums23
Topics16,957
Posts190,119
Members11,280
Most Online306
Aug 21st, 2016
Top Posters(All Time)
ChristineB 9,653
davidcpa 8,311
Cheryld 5,260
Brian Hill 4,736
Gary 3,552
Newest Members
sister_strong, A123, 70Mav, Daun, GG87
11279 Registered Users
Brag Box
Powered by UBB.threads™ PHP Forum Software 7.6.0