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#148866 - 04/30/12 01:36 AM Quick Update - Little Bad/Little Good
kellijojo Offline
Contributing Member (25+ posts)

Registered: 03/04/11
Posts: 30
Loc: MI
Well, when it rains, it pours. I lost my job March 22. I had dental work done (3 root canals) and apparently it wasn't covered by my FMLA or ADA leave, so they canned my a$$. I feel like I have a million pound weight lifted off my shoulders! I never realized what a brain-numbing, soul-sucking institution I worked for! I was without insurance for a month, so I missed my monthly checkup with my surgeon, and also my psych doctor. Fortunately, I was able to COBRA my insurance (amost $600/month) and I'm covered again. I went back to my orthopedic surgeon regarding my knee pain. I'm scheduled for a total knee replacement on June 4....can't wait!

I've been having problems with trismus since my root canals. I didn't really notice until I could barely fit a spoonful of mashed potatoes through my teeth! I'm also having a lot of jaw/ear pain, so I will be discussing that with my surgeon next time I see him. I went to eBay and bought a Molt mouthgag to help me stretch my oral opening ($14 as opposed to nearly $400 for the Orastretch or Therabite.) I've added a good 8mm to my mouth opening ability in just a little over a week of use. Now that I have my insurance back, I will see if my doctor will prescribe the Orastretch press for me. At least using the Molt mouthgag is keeping me from getting worse (thank goodness for my OR nurse experience...I knew what I was looking for!)

I'm still getting accupuncture for my back pain (putting off the recommended spinal fusion with instrumentation for as long as possible.) I have also been getting treatments for migraine from her. Will discuss my neck stiffness/trismus/pain when I see her next week.

The Cymbalta and Seroquel, light therapy and counseling must be working because I haven't been plotting my suicide anymore (couldn't do that to Dad again anyway.) Accupuncture and pain meds seem to be keeping my pain at a tolerable level, and the promise of no more knee pain is heavenly. And (most importantly) no more b*tchy boss!!!! Truly, my life still really sucks...but my attitude has much improved.

#148870 - 04/30/12 05:04 AM Re: Quick Update - Little Bad/Little Good [Re: kellijojo]
Shauneen Offline
"OCF Canuck"
Supporting Member (50+ posts)

Registered: 10/03/11
Posts: 67
Loc: Calgary, Alberta
I loved this post smile
Pain late 2009. Dx as change in altitude. Sore spot on tongue late 2010. Dx as irritation.
Leukoplakia Bx Feb 2011 - Lichen Planus.
Bx May 2011 - Hyperplasia. Same sample retested as SCC.
June 2011 Rt Hemigloss,ND,rff,33 Rads. Hosp for 15 days w/bi-lateral pneumonia.
T3N1M0 Stage IV.

#148878 - 04/30/12 11:25 AM Re: Quick Update - Little Bad/Little Good [Re: Shauneen]
Anne-Marie Offline
Patient Advocate (old timer, 2000 posts)

Registered: 11/03/06
Posts: 2671
Loc: TN
I really loved it, too! Especially the last paragraph of Kellijojo's last post! Just goes to show that changing one's attitude is very possible and doable! I had a "b*tchy boss", too and the joyful, enthusiastic celebration that went up after her "departure" was heard far and wide!! Good for you, Kellijojo!
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)

#148885 - 04/30/12 02:37 PM Re: Quick Update - Little Bad/Little Good [Re: Anne-Marie]
Cheryld Offline
"OCF Canuck"
Patient Advocate (old timer, 2000 posts)

Registered: 12/22/10
Posts: 5260
Loc: Toronto canada
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan


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