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#148657 - 04/23/12 12:40 AM An odd question
Marly Offline
Contributing Member (25+ posts)

Registered: 03/31/12
Posts: 37
Loc: Rocky Point New York
We (Hubby & I) have asked 4 different doctors about this and no-one seems to know why, so now I'm going to ask if anyone here has had this problem so here goes. June 18th will be 2 years since my surgery, every time I eat or drink anything I have to blow my nose, this has been happening ever since the feeding tube was removed. We have no clue why.
_________________________
Female- Age 49, Non-smoker, I Had 6 weeks of rad/30 treatments, No Chemo.
1/2 of my tongue had to be removed as well as Lymph Nodes. Surgery was 11 & 1/2 Hours long. 40 Lymph Nodes where removed, only one was cancerous. smile

My Motto since my diagnoses- It's All In The Attitude!!!

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#148662 - 04/23/12 03:01 AM Re: An odd question [Re: Marly]
Cheryld Offline
"OCF Canuck"
Patient Advocate (old timer, 2000 posts)

Registered: 12/22/10
Posts: 4863
Loc: Toronto canada
Hee hee..l me too! Mine runs! I also have post nasal drip. It's definitely because of the radiation damage to the membrabpnes bout maybe because you are also drinking and some fluid goes up?
_________________________
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan

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#148664 - 04/23/12 03:09 AM Re: An odd question [Re: Cheryld]
Happy Birthday ChristineB Online   content
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

Registered: 06/23/07
Posts: 8342
Loc: PA
You are not alone, I have the same problem. Ive seen many others here who have it too. My doc told me it was post radiation sinus damage. For me, it isnt just when I eat or drink. Its like I have a head cold 24/7, Im always congested. I take singulair most days and also benedryl to help with the congestion.
_________________________
Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07, no caregiver
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo extended hospital stay, ICU & burn unit
PICC line w/ IV antibiotics 8 mo
10/4/10, 2/14/11 reconst surg
OC 3 times in 3 years
very happy to be alive smile

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#148674 - 04/23/12 08:05 AM Re: An odd question [Re: ChristineB]
Gabe Offline
"OCF Down Under"
Patient Advocate (1000+ posts)

Registered: 08/02/07
Posts: 1282
Loc: Sydney NSW Australia
_________________________
History Leukoplakia bx 8/2006 SCC floor mouth T3N0M0- Verrucous Carcinoma.
14 hour 0p SCC-Right ND/excision/marginal mandibulectomy 9/2006, 4 teeth removed, flap from wrist, trach-ng 6 days- no chemo/rad.
6 ops and debulking (flap/tongue join) + bx's 2006-2012.
bx Jan 2012 Hyperkeratosis-Epithelial Dysplasia
Surgery GIST 8/2013

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#148684 - 04/23/12 08:00 PM Re: An odd question [Re: Gabe]
SUEZ Offline
"Above & Beyond" Member (500+ posts)

Registered: 07/21/10
Posts: 531
Loc: AURORA, OH
OK how bout Ron drools when he talks, like alot! He has to carry a rag OR papertowel or napkin to catch it. I'm used to it and we joke bout using the grandkids Sesame Street Bibs that pull over head. But does anybody else drool? I hear alot of folks being dry but not him he's got enough to share! I know Gross Sue smile He can't swallow while he is talking with his flap I guess is why he drools and it's a good thing he has saliva but it makes him nuts. I've never asked bout this nor heard of anybody else drooling. So anybody else?


Edited by SUEZ (04/23/12 08:01 PM)
Edit Reason: Oh spelling so much for good grades in spelling in school must be age
_________________________
CG to Ron
Out of Pain 4/3/13
4/12-lung and under chin growth no treatment
1/13/12 lung biopsy
6/11 recur 6/30 resection #2 Clear margins
Clear 12/10
Surg 5/13/10 neck dis/nodes part gloss/flap R thigh all teeth out
RAD 30 8/10
DX 4/2/10 "Oral Cavity" T3NOMO
12/28/07 Non Hodg Lymph remission 7/08

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#148688 - 04/23/12 09:16 PM Re: An odd question [Re: SUEZ]
EzJim Offline
Patient Advocate (old timer, 2000 posts)

Registered: 06/12/07
Posts: 5260
Loc: Mingo Jct., Ohio
This is a good question and I am glad you can drink now. I tried it yesterday and my flapping lip just let it run back down my shirt. Keep up the good work.
_________________________
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here

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#148689 - 04/23/12 09:21 PM Re: An odd question [Re: EzJim]
EzJim Offline
Patient Advocate (old timer, 2000 posts)

Registered: 06/12/07
Posts: 5260
Loc: Mingo Jct., Ohio
Suez, I know how Ron feels about that drool. I carry a supply of kleenex, which I buy by the 10 pack at Sam's Club plua a couple of handerkerchefs too. I drip everywhere and had to cover my carpet with thro rugs. Some of the drool has to be acidic as I burned holse in one of my shirts from the drool landing on it. Good luck and Ron seems to be doing good with it,.
_________________________
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here

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#148700 - 04/24/12 12:16 AM Re: An odd question [Re: EzJim]
MikeM Offline
Contributing Member (25+ posts)

Registered: 01/21/12
Posts: 39
Loc: California
It's everywhere, no rads and the nose drips every day. I actually think it started before tonsil surgery, just after the neck gland became swollen. Go figure.
_________________________
Nov2011Tonsil Cancer Stage3 T1N1 HPV+, Non-smoker, slight drinker
Dec2011 Radical Tonsilectomy (TORS),
Jan2012 Neck Disection areas 2,3,4
Feb2012 Opinions from 5 RO's decision for No Rads/No Chemo
Jan2013 all clear at 1 year , continue regular check-ups
Jan2014 all clear at 2 years, only patient smiling at ENT office

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#148836 - 04/29/12 05:43 AM Re: An odd question [Re: MikeM]
Marly Offline
Contributing Member (25+ posts)

Registered: 03/31/12
Posts: 37
Loc: Rocky Point New York
Thank You all for the fed back, it's nice to know that I'm not going crazy with this, it really amazes me that the doctors had know answers for us... smile
_________________________
Female- Age 49, Non-smoker, I Had 6 weeks of rad/30 treatments, No Chemo.
1/2 of my tongue had to be removed as well as Lymph Nodes. Surgery was 11 & 1/2 Hours long. 40 Lymph Nodes where removed, only one was cancerous. smile

My Motto since my diagnoses- It's All In The Attitude!!!

Top
#148840 - 04/29/12 02:36 PM Re: An odd question [Re: Marly]
Cheryld Offline
"OCF Canuck"
Patient Advocate (old timer, 2000 posts)

Registered: 12/22/10
Posts: 4863
Loc: Toronto canada
Only a dr who's been there would know - and frankly most of them don't. Most of them do one thing.. Whatever their job is - radiation, surgery, or chemo - to try and cure you. And they leave it at that. Ask about nutrition and fall out and they don't see beyond what their part in all this is.

Hugs!
_________________________
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan

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