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#148750 - 04/25/12 06:18 PM Eating problems  
Joined: Apr 2012
Posts: 16
defeatingin2010 Offline
Member
defeatingin2010  Offline
Member

Joined: Apr 2012
Posts: 16
TX
My husband says anything sweet tastes bitter now. He cannot swallow meat, pasta, rice, corn, breads, etc. They all either get stuck when he tries to swallow or they choke him. Sure, he can drink water to wash it down, but I've seen him have to drink 5 large glasses of water with a meal, and by the time you drink all of that water, you feel miserable. Does anyone have any recipes for something they can eat that tastes good and won't need several glasses of water to get it down? Please help. (his diet now mostly consists of sauteed vegetables in olive oil, oatmeal, grits, eggs, cheeses and low sugar cereal) I feel horrible fixing the same thing for him every day! But I've run out of ideas and he is so limited.

Last edited by ChristineB; 04/25/12 09:40 PM.

T3 N3 squamous cell carcinoma of the right base of tongue. He was treated with induction chemotherapy followed by definitive chemoradiation, which he completed in December 2010. non-smoker, non-drinker.
#148751 - 04/25/12 06:40 PM RE: Eating problems [Re: defeatingin2010]  
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Maria Offline
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Maria  Offline
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Ohio
Hi, defeating -
proteins - seafood such as shrimp or scallops seems to go down easier than land-based protein. Try a mild chinese stir-fry with celery (strap off the strings), brocolli stalks (not the tops, which get stuck), and long skinny carrot pieces (cook them too long for proper chinses). Use unspiced chicken broth, soy sauce and sesame oil for the sauce; thicken a bit with corn starch. Add cooked shrimp at the very end. Serve with udon or ramen noodles.

You can do a similar combination in the Italian style. Do not add paprika or any other capsesin containing pepper just yet!

If he can eat grits, risotto may also work.


CG to husband - SCC Tonsil T1N2M0 HPV+ Never Smoker
First symptoms 7/2010, DX 12/2010
TX 40 IRMT (1.8 gy) + 10 Cetuximab
PET Scans 6/2011 + 3/2012 clear, 5 year physical exam clear; chest CT's clear of cancer. On thyroid pills. Life is good.
#148757 - 04/25/12 09:39 PM RE: Eating problems [Re: Maria]  
Joined: Jun 2007
Posts: 9,467
ChristineB Offline
Administrator, Director of Patient Support Services
ChristineB  Offline
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Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 9,467
PA
Here is a list of easy to eat foods which should help.

List of Easy to Eat Foods



Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07, no caregiver
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo extended hospital stay, ICU & burn unit
PICC line w/ IV antibiotics 8 mo
10/4/10, 2/14/11 reconst surg
OC 3 times in 3 years
very happy to be alive smile
#148773 - 04/26/12 03:00 PM Re: RE: Eating problems [Re: ChristineB]  
Joined: Jul 2010
Posts: 531
SUEZ Offline
"Above & Beyond" Member (500+ posts)
SUEZ  Offline
"Above & Beyond" Member (500+ posts)

Joined: Jul 2010
Posts: 531
AURORA, OH
Try baked beans! Don't know anything about your husband can you put in a signature? It took Ron a long time before he could eat what he eats now after what he went thru.


CG to Ron
Out of Pain 4/3/13
4/12-lung and under chin growth no treatment
1/13/12 lung biopsy
6/11 recur 6/30 resection #2 Clear margins
Clear 12/10
Surg 5/13/10 neck dis/nodes part gloss/flap R thigh all teeth out
RAD 30 8/10
DX 4/2/10 "Oral Cavity" T3NOMO
12/28/07 Non Hodg Lymph remission 7/08
#148784 - 04/27/12 12:43 AM Re: RE: Eating problems [Re: SUEZ]  
Joined: Apr 2012
Posts: 16
defeatingin2010 Offline
Member
defeatingin2010  Offline
Member

Joined: Apr 2012
Posts: 16
TX
Thanks everyone!! I will post my husband's info when i can figure out how... Thank you again! I can't wait to try your ideas!


T3 N3 squamous cell carcinoma of the right base of tongue. He was treated with induction chemotherapy followed by definitive chemoradiation, which he completed in December 2010. non-smoker, non-drinker.
#148787 - 04/27/12 03:04 AM Re: RE: Eating problems [Re: defeatingin2010]  
Joined: Jun 2007
Posts: 9,467
ChristineB Offline
Administrator, Director of Patient Support Services
ChristineB  Offline
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 9,467
PA
To add a signature its very easy. Go to the my stuff tab, on the drop down menu select profile. Scroll to the bottom and type the info in the white box and submit. Dont worry about medical terms, check out what others have written and make something that tells the history. A signature greatly help when answering questions, especially with new members.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07, no caregiver
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo extended hospital stay, ICU & burn unit
PICC line w/ IV antibiotics 8 mo
10/4/10, 2/14/11 reconst surg
OC 3 times in 3 years
very happy to be alive smile
#148788 - 04/27/12 04:22 AM Re: RE: Eating problems [Re: ChristineB]  
Joined: Apr 2012
Posts: 16
defeatingin2010 Offline
Member
defeatingin2010  Offline
Member

Joined: Apr 2012
Posts: 16
TX
I think I got it added now. smile


T3 N3 squamous cell carcinoma of the right base of tongue. He was treated with induction chemotherapy followed by definitive chemoradiation, which he completed in December 2010. non-smoker, non-drinker.
#148806 - 04/27/12 08:42 PM Re: RE: Eating problems [Re: defeatingin2010]  
Joined: Sep 2006
Posts: 8,311
davidcpa Offline
Administrator, Senior Patient Advocate
davidcpa  Offline
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Patient Advocate (old timer, 2000 posts)

Joined: Sep 2006
Posts: 8,311
Gulfport, Florida
Try all things with added gravy.


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
#148823 - 04/28/12 07:49 PM Re: RE: Eating problems [Re: davidcpa]  
Joined: Nov 2006
Posts: 2,671
Anne-Marie Offline
Patient Advocate (old timer, 2000 posts)
Anne-Marie  Offline
Patient Advocate (old timer, 2000 posts)

Joined: Nov 2006
Posts: 2,671
TN
Hi defeating - Don't worry about fixing the same thing every day. Tastes have a way of changing overnite. When I was trying to fix stuff my son could tolerate and found some he liked, before I knew it, his tastes changed and he didn't like it anymore. I remember buying a blender to make milk shakes and I got some protein powder to add to the milk shake. I think he probably had or three milk shakes and didn't like the protein powder in it, so if you do find something, don't buy a lot of it. Everyone is different with their reactions to taste. At the end of Paul's Tx, we had to give away a lot of stuff to someone else he knew going through a similar experience. Christine's list of easy foods is a really good one. Another thing my son like was grilled cheese fried in a LOT of butter. And he used a lot of gravy or other sauces, too. He liked chicken noodle soup but only sipped the broth. The day he was able to eat two noodles with it, we celebrated! I think you just have to try different things to see what works. It does get better.


Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)




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