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#148774 - 04/26/12 03:06 PM Re: New here and glad I have found this site! [Re: davidcpa]
joseel Offline
"OCF Canuck"
Member

Registered: 04/23/12
Posts: 13
Loc: Ontario, Canada
thx David smile
_________________________
CG to Mike, diagnosed SSC base of tongue March 6/12, T2N2, Stage 4, 35 rads, 3 cisplatin, hospitalized end of treatment TPN nutrition lost 50lbs. lymph nodes in neck necrotic tissue Jan /13, radical neck dissection March 20 positive SCC could not remove all

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#148775 - 04/26/12 04:25 PM Re: New here and glad I have found this site! [Re: davidcpa]
Cheryld Offline
"OCF Canuck"
Patient Advocate (old timer, 2000 posts)

Registered: 12/22/10
Posts: 4976
Loc: Toronto canada
Hey! Cool... I'm in TO - PMH - smile so glad things are getting a bit better!
_________________________
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan

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#148946 - 05/01/12 09:01 PM Re: New here and glad I have found this site! [Re: davidcpa]
joseel Offline
"OCF Canuck"
Member

Registered: 04/23/12
Posts: 13
Loc: Ontario, Canada
Well, zofiran ODT are working well, so well they attempted an NG tube. He's tolerating it for flushing and meds, the pump is being delivered tonight and we will start feeding then... I'm encouraged.. he's not so much, more tubes sticking out of him. But at least he can get nutrition. Thanks for all the help. I will keep in touch with how things go from here.

Josee
_________________________
CG to Mike, diagnosed SSC base of tongue March 6/12, T2N2, Stage 4, 35 rads, 3 cisplatin, hospitalized end of treatment TPN nutrition lost 50lbs. lymph nodes in neck necrotic tissue Jan /13, radical neck dissection March 20 positive SCC could not remove all

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#148948 - 05/01/12 09:40 PM Re: New here and glad I have found this site! [Re: joseel]
ChristineB Offline
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

Registered: 06/23/07
Posts: 8512
Loc: PA
Once the nutrition is where it should be he will feel so much better! Glad it is working out. Dont forget you can always get hydrated at the hospital if you feel he is not getting enough water. Daily minimum is 48 oz of water and 2500 calories, more is even better. This will make a huge difference in how he does with treatments.

Best wishes!
_________________________
Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07, no caregiver
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo extended hospital stay, ICU & burn unit
PICC line w/ IV antibiotics 8 mo
10/4/10, 2/14/11 reconst surg
OC 3 times in 3 years
very happy to be alive smile

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#149011 - 05/03/12 04:36 AM Re: New here and glad I have found this site! [Re: davidcpa]
Kerri Offline
"Above & Beyond" Member (500+ posts)

Registered: 08/08/11
Posts: 508
Loc: MA
Hi, Josee.

I had a home suction unit that helped tremendously. There are lots of people who have "been there, done that" and they have lots first-hand experience to share. You husband is fortunate to have a person such as yourself taking care of him. Please remember to take care of yourself, too.

Hugs to you,
Kerri
_________________________
37 y/o fem at Dx (23 wks preg @ dx on 3/16/11)
SCC L oral tongue (no risk factors)
L partial gloss/SND 3/28/11 @ 25 wks preg
T1-2N0M0; no rads/chemo
Tonsillectomy on 8/6/12 +SCC L tonsil T2-3N1M0 (HPV-)
Treated with 35 rads/7 carbo & taxol (Rx ended 10/31/12), but many hospitalizations d/t complications from rx.
Various scans since rx ended are NED!
Part of genetic study for rare cancers @ MGH.
Just turned 40 and grateful! Hoping for 40 more!

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#149042 - 05/04/12 01:11 AM Re: New here and glad I have found this site! [Re: davidcpa]
KenEggman Offline
Contributing Member (25+ posts)

Registered: 04/14/12
Posts: 32
Loc: VA, USA
Hi Josee, I am pretty much a newbie also. I was diagnosed with SCC in the tonsil end of Mar 12. Had the tonsils removed. SCC metastasized to the L lymph nodes (PET had a light show). MY cancer center the Walter Reed National Military Medical Center will provide my treatment to beat cancer. I had 4 morals removed yesterday. I get my PEG next Tuesday. I get my mask fitted and do a rad simulation next Monday. I get a port installed on 10 May. I start rad/chemo 21 May.

I agreed with my team of providers I will need a PEG. For me hopefully it will be a back-up. I had some difficulties post-op and bled, a lot. Two times went back to ER. Last time was a charm. Dr. cauterized the bleeder but those two weeks were a noted challenge to eat or drink. Eating and drinking is required to live, so for me deciding to install a PEG was easy. I will muscle down whatever I can thru the mouth, but if I cannot, I got my backup already to go.

Most of my Dr's said the issues come up when a patient thinks they will be able to eat/drink but don't or cannot (but don't have the PEG already). I'm just preparing for the worst.

As I mentioned, I'm new to this, but a PEG might make thinks more tolerable.

Sincerely,

Ken
_________________________
48YO M, hlthy, xsmkr(quit 14yrs ago), mod drinkr
1 mo sore throat w/neck lump 3/12
SCC tonsil, lym nodes
4/12/12 rad tonslctmy, mets in lymph nodes
5/8 PEG, 5/10 PORT 7/3/12 Last Chemo (Cisplatin)| 7/10/12 Last RAD | 9/6/12 MRI=No New Cancer
BSA Scout Ldr w/strng desire to live & beat cancer

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