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#148657 - 04/23/12 12:40 AM An odd question  
Joined: Mar 2012
Posts: 37
Marly Offline
Contributing Member (25+ posts)
Marly  Offline
Contributing Member (25+ posts)

Joined: Mar 2012
Posts: 37
Rocky Point New York
We (Hubby & I) have asked 4 different doctors about this and no-one seems to know why, so now I'm going to ask if anyone here has had this problem so here goes. June 18th will be 2 years since my surgery, every time I eat or drink anything I have to blow my nose, this has been happening ever since the feeding tube was removed. We have no clue why.


Female- Age 49, Non-smoker, I Had 6 weeks of rad/30 treatments, No Chemo.
1/2 of my tongue had to be removed as well as Lymph Nodes. Surgery was 11 & 1/2 Hours long. 40 Lymph Nodes where removed, only one was cancerous. smile

My Motto since my diagnoses- It's All In The Attitude!!!
#148662 - 04/23/12 03:01 AM Re: An odd question [Re: Marly]  
Joined: Dec 2010
Posts: 5,260
Cheryld Offline
"OCF Canuck"
Cheryld  Offline
"OCF Canuck"
Patient Advocate (old timer, 2000 posts)

Joined: Dec 2010
Posts: 5,260
Toronto canada
Hee hee..l me too! Mine runs! I also have post nasal drip. It's definitely because of the radiation damage to the membrabpnes bout maybe because you are also drinking and some fluid goes up?


Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
#148664 - 04/23/12 03:09 AM Re: An odd question [Re: Cheryld]  
Joined: Jun 2007
Posts: 9,648
ChristineB Online content
Administrator, Director of Patient Support Services
ChristineB  Online Content
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 9,648
PA
You are not alone, I have the same problem. Ive seen many others here who have it too. My doc told me it was post radiation sinus damage. For me, it isnt just when I eat or drink. Its like I have a head cold 24/7, Im always congested. I take singulair most days and also benedryl to help with the congestion.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
#148674 - 04/23/12 08:05 AM Re: An odd question [Re: ChristineB]  
Joined: Aug 2007
Posts: 1,301
Gabe Offline
"OCF Down Under"
Gabe  Offline
"OCF Down Under"
Patient Advocate (1000+ posts)

Joined: Aug 2007
Posts: 1,301
Sydney NSW Australia


History Leukoplakia bx 8/2006 SCC floor mouth T3N0M0- Verrucous Carcinoma.
14 hour 0p SCC-Right ND/excision/marginal mandibulectomy 9/2006, 4 teeth removed, flap from wrist, trach-ng 6 days- no chemo/rad.
6 ops and debulking (flap/tongue join) + bx's 2006-2012.
bx Jan 2012 Hyperkeratosis-Epithelial Dysplasia
24cm GIST tumour removed 8/2013. Indefinite Oral Chemo.

1/31/16 passed away peacefully surrounded by family

#148684 - 04/23/12 08:00 PM Re: An odd question [Re: Gabe]  
Joined: Jul 2010
Posts: 531
SUEZ Offline
"Above & Beyond" Member (500+ posts)
SUEZ  Offline
"Above & Beyond" Member (500+ posts)

Joined: Jul 2010
Posts: 531
AURORA, OH
OK how bout Ron drools when he talks, like alot! He has to carry a rag OR papertowel or napkin to catch it. I'm used to it and we joke bout using the grandkids Sesame Street Bibs that pull over head. But does anybody else drool? I hear alot of folks being dry but not him he's got enough to share! I know Gross Sue smile He can't swallow while he is talking with his flap I guess is why he drools and it's a good thing he has saliva but it makes him nuts. I've never asked bout this nor heard of anybody else drooling. So anybody else?

Last edited by SUEZ; 04/23/12 08:01 PM. Reason: Oh spelling so much for good grades in spelling in school must be age

CG to Ron
Out of Pain 4/3/13
4/12-lung and under chin growth no treatment
1/13/12 lung biopsy
6/11 recur 6/30 resection #2 Clear margins
Clear 12/10
Surg 5/13/10 neck dis/nodes part gloss/flap R thigh all teeth out
RAD 30 8/10
DX 4/2/10 "Oral Cavity" T3NOMO
12/28/07 Non Hodg Lymph remission 7/08
#148688 - 04/23/12 09:16 PM Re: An odd question [Re: SUEZ]  
Joined: Jun 2007
Posts: 5,260
EzJim Offline
Patient Advocate (old timer, 2000 posts)
EzJim  Offline
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 5,260
Mingo Jct., Ohio
This is a good question and I am glad you can drink now. I tried it yesterday and my flapping lip just let it run back down my shirt. Keep up the good work.


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
#148689 - 04/23/12 09:21 PM Re: An odd question [Re: EzJim]  
Joined: Jun 2007
Posts: 5,260
EzJim Offline
Patient Advocate (old timer, 2000 posts)
EzJim  Offline
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 5,260
Mingo Jct., Ohio
Suez, I know how Ron feels about that drool. I carry a supply of kleenex, which I buy by the 10 pack at Sam's Club plua a couple of handerkerchefs too. I drip everywhere and had to cover my carpet with thro rugs. Some of the drool has to be acidic as I burned holse in one of my shirts from the drool landing on it. Good luck and Ron seems to be doing good with it,.


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
#148700 - 04/24/12 12:16 AM Re: An odd question [Re: EzJim]  
Joined: Jan 2012
Posts: 42
MikeM Offline
Contributing Member (25+ posts)
MikeM  Offline
Contributing Member (25+ posts)

Joined: Jan 2012
Posts: 42
California
It's everywhere, no rads and the nose drips every day. I actually think it started before tonsil surgery, just after the neck gland became swollen. Go figure.


Nov2011Tonsil Cancer Stage3 T1N1 HPV+, Non-smoker, slight drinker
Dec2011 Radical Tonsilectomy (TORS),
Jan2012 Neck Disection areas 2,3,4
Feb2012 Opinions from 5 RO's decision for No Rads/No Chemo
Jan2013 all clear at 1 year , continue regular check-ups
Jan2014 all clear at 2 years, less frequent check-ups
Jan2015 all clear at 3 years, MRI, chest x-ray, blood work all good
#148836 - 04/29/12 05:43 AM Re: An odd question [Re: MikeM]  
Joined: Mar 2012
Posts: 37
Marly Offline
Contributing Member (25+ posts)
Marly  Offline
Contributing Member (25+ posts)

Joined: Mar 2012
Posts: 37
Rocky Point New York
Thank You all for the fed back, it's nice to know that I'm not going crazy with this, it really amazes me that the doctors had know answers for us... smile


Female- Age 49, Non-smoker, I Had 6 weeks of rad/30 treatments, No Chemo.
1/2 of my tongue had to be removed as well as Lymph Nodes. Surgery was 11 & 1/2 Hours long. 40 Lymph Nodes where removed, only one was cancerous. smile

My Motto since my diagnoses- It's All In The Attitude!!!
#148840 - 04/29/12 02:36 PM Re: An odd question [Re: Marly]  
Joined: Dec 2010
Posts: 5,260
Cheryld Offline
"OCF Canuck"
Cheryld  Offline
"OCF Canuck"
Patient Advocate (old timer, 2000 posts)

Joined: Dec 2010
Posts: 5,260
Toronto canada
Only a dr who's been there would know - and frankly most of them don't. Most of them do one thing.. Whatever their job is - radiation, surgery, or chemo - to try and cure you. And they leave it at that. Ask about nutrition and fall out and they don't see beyond what their part in all this is.

Hugs!


Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
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