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#148605 - 04/21/12 02:03 PM freezer feet  
Joined: Jun 2011
Posts: 188
Caco Offline
Senior Member (100+ posts)
Caco  Offline
Senior Member (100+ posts)

Joined: Jun 2011
Posts: 188
eastern us
hey guys, questions about treatment and da feet?

cacopop's chemo trial is (likely) the cause of sudden cold feet, mostly at night. he gets lots of exercise, and it does not bother him then, but at rest he complains. they are warm to the touch.

i'm reading vitamins, exercise, and we're finding him a heated massager --an electric one ;o} ...any other advise?


Caco
CG to Dad. Biopsy 5/11 non-op, SCC stage IV poorly dif at base of tongue with nodes, quit smoking in '85, ChemoRad began 8/2/11 ended 9/22/11 with NED. Distant mets 11/11, clinical trials. War raging on!
#148615 - 04/21/12 06:38 PM Re: freezer feet [Re: Caco]  
Joined: Jan 2012
Posts: 42
MikeM Offline
Contributing Member (25+ posts)
MikeM  Offline
Contributing Member (25+ posts)

Joined: Jan 2012
Posts: 42
California
During the few day post-op stay in the hospital they used a leg compression device, ran on air pressure, pulsates 2 or 3 times a minute to keep blood flow and prevent blood clots. Ran all night (and day if you didn't get exercise) Was pretty easy to use. Might help the feet.


Nov2011Tonsil Cancer Stage3 T1N1 HPV+, Non-smoker, slight drinker
Dec2011 Radical Tonsilectomy (TORS),
Jan2012 Neck Disection areas 2,3,4
Feb2012 Opinions from 5 RO's decision for No Rads/No Chemo
Jan2013 all clear at 1 year , continue regular check-ups
Jan2014 all clear at 2 years, less frequent check-ups
Jan2015 all clear at 3 years, MRI, chest x-ray, blood work all good
#148618 - 04/21/12 09:41 PM Re: freezer feet [Re: MikeM]  
Joined: Jun 2007
Posts: 9,772
ChristineB Offline
Administrator, Director of Patient Support Services
ChristineB  Offline
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 9,772
PA
It could be a circulation issue. Your idea about a heated massager sounds like a good idea. Maybe having your dad do some short walks and not do prolonged periods of sitting or lying down so it will keep the circulation going.



Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
#148655 - 04/23/12 12:30 AM Re: freezer feet [Re: ChristineB]  
Joined: Mar 2012
Posts: 37
Marly Offline
Contributing Member (25+ posts)
Marly  Offline
Contributing Member (25+ posts)

Joined: Mar 2012
Posts: 37
Rocky Point New York
It also sounds like it could be neuropathy which is nerve damage and makes your feet ice cold. When this happens I use heavy socks.


Female- Age 49, Non-smoker, I Had 6 weeks of rad/30 treatments, No Chemo.
1/2 of my tongue had to be removed as well as Lymph Nodes. Surgery was 11 & 1/2 Hours long. 40 Lymph Nodes where removed, only one was cancerous. smile

My Motto since my diagnoses- It's All In The Attitude!!!
#148682 - 04/23/12 01:34 PM Re: freezer feet [Re: Marly]  
Joined: Jun 2011
Posts: 188
Caco Offline
Senior Member (100+ posts)
Caco  Offline
Senior Member (100+ posts)

Joined: Jun 2011
Posts: 188
eastern us
thx everyone. the massager helped a bit. and yes, likely neuropathy as he has no other issues (diabetes, heart etc).





Caco
CG to Dad. Biopsy 5/11 non-op, SCC stage IV poorly dif at base of tongue with nodes, quit smoking in '85, ChemoRad began 8/2/11 ended 9/22/11 with NED. Distant mets 11/11, clinical trials. War raging on!
#148738 - 04/25/12 06:37 AM Re: freezer feet [Re: Caco]  
Joined: Dec 2011
Posts: 60
lam007 Offline
"OCF Down Under"
lam007  Offline
"OCF Down Under"
Supporting Member (50+ posts)

Joined: Dec 2011
Posts: 60
NSW Australia
Just be REALLY careful about heat and feet with neuropathy. Don't want to have any sort of heat injury.


CG to husband Stage IV SCC left tonsil 11/11. Mets to 7 nodes on left, 2 on right, no distant mets. PEG, 7 weeks radiation and weekly Cisplatin ended Feb 10, 2012. PET 04/12 areas consistent with inflammation, complete response in nodes. Recurrence 09/13 pulmonary lymphatics. Died 22 Oct following an allergic reaction to Erbitux.
#148749 - 04/25/12 05:28 PM Re: freezer feet [Re: lam007]  
Joined: Jul 2011
Posts: 945
Maria Offline
"Above & Beyond" Member (500+ posts)
Maria  Offline
"Above & Beyond" Member (500+ posts)

Joined: Jul 2011
Posts: 945
Ohio
Make sure it's not thyroid problems from the previos rads contributing to the problem. What is your dad's TSH level?


CG to husband - SCC Tonsil T1N2M0 HPV+ Never Smoker
First symptoms 7/2010, DX 12/2010
TX 40 IRMT (1.8 gy) + 10 Cetuximab
PET Scans 6/2011 + 3/2012 clear, 5 year physical exam clear; chest CT's clear of cancer. On thyroid pills. Life is good.
#148756 - 04/25/12 09:37 PM Re: freezer feet [Re: Maria]  
Joined: Jan 2009
Posts: 1,844
EricS Offline
Patient Advocate (1000+ posts)
EricS  Offline
Patient Advocate (1000+ posts)

Joined: Jan 2009
Posts: 1,844
Idaho
Pain medications suppress the central nervous system, slowing the cardiovascular system affecting circulation and causing cold extremities. Makes sense that its not an issue when he's moving. Had the same issue myself. If his hands or feet turn blue and he's using fentanyl, get him to the ER as its a sign of an overdose. Almost lost me twice that way. Subsequently, if he's on the fentanyl patch make sure its in an area that he doesn't lay on or gets hot (shower etc) as they are body heat activated.

Eric

Last edited by EricS; 04/25/12 09:39 PM.

Young Frack, SCC T4N2M0, Cisplatin,35+ rads,ND, RT Mandiblectomy w fibular free flap, facial paralysis, "He who has a "why" to live can bear with almost any "how"." -Nietzche "WARNING" PG-13 due to Sarcasm & WAY too much attitude, interact at your own risk.

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