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#148605 - 04/21/12 02:03 PM freezer feet
Caco Offline
Senior Member (100+ posts)

Registered: 06/24/11
Posts: 188
Loc: eastern us
hey guys, questions about treatment and da feet?

cacopop's chemo trial is (likely) the cause of sudden cold feet, mostly at night. he gets lots of exercise, and it does not bother him then, but at rest he complains. they are warm to the touch.

i'm reading vitamins, exercise, and we're finding him a heated massager --an electric one ;o} ...any other advise?
_________________________
Caco
CG to Dad. Biopsy 5/11 non-op, SCC stage IV poorly dif at base of tongue with nodes, quit smoking in '85, ChemoRad began 8/2/11 ended 9/22/11 with NED. Distant mets 11/11, clinical trials. War raging on!

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#148615 - 04/21/12 06:38 PM Re: freezer feet [Re: Caco]
MikeM Offline
Contributing Member (25+ posts)

Registered: 01/21/12
Posts: 39
Loc: California
During the few day post-op stay in the hospital they used a leg compression device, ran on air pressure, pulsates 2 or 3 times a minute to keep blood flow and prevent blood clots. Ran all night (and day if you didn't get exercise) Was pretty easy to use. Might help the feet.
_________________________
Nov2011Tonsil Cancer Stage3 T1N1 HPV+, Non-smoker, slight drinker
Dec2011 Radical Tonsilectomy (TORS),
Jan2012 Neck Disection areas 2,3,4
Feb2012 Opinions from 5 RO's decision for No Rads/No Chemo
Jan2013 all clear at 1 year , continue regular check-ups
Jan2014 all clear at 2 years, only patient smiling at ENT office

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#148618 - 04/21/12 09:41 PM Re: freezer feet [Re: MikeM]
ChristineB Offline
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

Registered: 06/23/07
Posts: 8514
Loc: PA
It could be a circulation issue. Your idea about a heated massager sounds like a good idea. Maybe having your dad do some short walks and not do prolonged periods of sitting or lying down so it will keep the circulation going.

_________________________
Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07, no caregiver
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo extended hospital stay, ICU & burn unit
PICC line w/ IV antibiotics 8 mo
10/4/10, 2/14/11 reconst surg
OC 3 times in 3 years
very happy to be alive smile

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#148655 - 04/23/12 12:30 AM Re: freezer feet [Re: ChristineB]
Marly Offline
Contributing Member (25+ posts)

Registered: 03/31/12
Posts: 37
Loc: Rocky Point New York
It also sounds like it could be neuropathy which is nerve damage and makes your feet ice cold. When this happens I use heavy socks.
_________________________
Female- Age 49, Non-smoker, I Had 6 weeks of rad/30 treatments, No Chemo.
1/2 of my tongue had to be removed as well as Lymph Nodes. Surgery was 11 & 1/2 Hours long. 40 Lymph Nodes where removed, only one was cancerous. smile

My Motto since my diagnoses- It's All In The Attitude!!!

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#148682 - 04/23/12 01:34 PM Re: freezer feet [Re: Marly]
Caco Offline
Senior Member (100+ posts)

Registered: 06/24/11
Posts: 188
Loc: eastern us
thx everyone. the massager helped a bit. and yes, likely neuropathy as he has no other issues (diabetes, heart etc).



_________________________
Caco
CG to Dad. Biopsy 5/11 non-op, SCC stage IV poorly dif at base of tongue with nodes, quit smoking in '85, ChemoRad began 8/2/11 ended 9/22/11 with NED. Distant mets 11/11, clinical trials. War raging on!

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#148738 - 04/25/12 06:37 AM Re: freezer feet [Re: Caco]
lam007 Offline
"OCF Down Under"
Supporting Member (50+ posts)

Registered: 12/01/11
Posts: 60
Loc: NSW Australia
Just be REALLY careful about heat and feet with neuropathy. Don't want to have any sort of heat injury.
_________________________
CG to husband Stage IV SCC left tonsil 11/11. Mets to 7 nodes on left, 2 on right, no distant mets. PEG, 7 weeks radiation and weekly Cisplatin ended Feb 10, 2012. PET 04/12 areas consistent with inflammation, complete response in nodes. Recurrence 09/13 pulmonary lymphatics. Died 22 Oct following an allergic reaction to Erbitux.

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#148749 - 04/25/12 05:28 PM Re: freezer feet [Re: lam007]
Maria Offline
"Above & Beyond" Member (500+ posts)

Registered: 07/15/11
Posts: 874
Loc: Ohio
Make sure it's not thyroid problems from the previos rads contributing to the problem. What is your dad's TSH level?
_________________________
CG to husband - SCC Tonsil T1N2M0 HPV+ Never Smoker
First symptoms 7/2010, DX 12/2010
TX 40 IRMT (1.8 gy) + 10 Cetuximab
PET Scans 6/2011 + 3/2012 clear, 06/2014 physical exam clear; chest CT's clear of cancer. On thyroid pills. Saliva slowly returning. Life is good.

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#148756 - 04/25/12 09:37 PM Re: freezer feet [Re: Maria]
EricS Offline
Patient Advocate (1000+ posts)

Registered: 01/03/09
Posts: 1844
Loc: Idaho
Pain medications suppress the central nervous system, slowing the cardiovascular system affecting circulation and causing cold extremities. Makes sense that its not an issue when he's moving. Had the same issue myself. If his hands or feet turn blue and he's using fentanyl, get him to the ER as its a sign of an overdose. Almost lost me twice that way. Subsequently, if he's on the fentanyl patch make sure its in an area that he doesn't lay on or gets hot (shower etc) as they are body heat activated.

Eric


Edited by EricS (04/25/12 09:39 PM)
_________________________
Young Frack, SCC T4N2M0, Cisplatin,35+ rads,ND, RT Mandiblectomy w fibular free flap, facial paralysis, "He who has a "why" to live can bear with almost any "how"." -Nietzche "WARNING" PG-13 due to Sarcasm & WAY too much attitude, interact at your own risk.

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