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#145546 - 02/08/12 12:52 AM perineural invasion
Brian Hill Offline
OCF Founder
Patient Advocate (old timer, 2000 posts)

Registered: 03/18/02
Posts: 4654
Loc: Laguna Niguel, CA
_________________________
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.

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#145547 - 02/08/12 01:04 AM Re: perineural invasion [Re: Brian Hill]
braziliangirl82 Offline
Senior Member (100+ posts)

Registered: 01/26/12
Posts: 110
Loc: br
Great video... Thanks!
_________________________
December, 2011 - T1N0M0 SSC Oral Tongue sugery (Dec 07, 2011). Partial glossectomy, primary closure. Selective Neck dissection, all 57 nodes free. 29 at diagnosis, no risk factors at all. No smoking, drinking and HPV negative. Can you explain? I can't.

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#145549 - 02/08/12 01:25 AM Re: perineural invasion [Re: braziliangirl82]
ChristineB Offline
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

Registered: 06/23/07
Posts: 8246
Loc: PA
I love TED. They have such interesting videos. I love the diversity of so many different subjects.
_________________________
Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07, no caregiver
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo extended hospital stay, ICU & burn unit
PICC line w/ IV antibiotics 8 mo
10/4/10, 2/14/11 reconst surg
OC 3 times in 3 years
very happy to be alive smile

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#145554 - 02/08/12 02:00 AM Re: perineural invasion [Re: ChristineB]
debandbill Offline
"Above & Beyond" Member (500+ posts)

Registered: 07/12/07
Posts: 939
Loc: Punta Gorda, Florida
Wow! Like you say...a game changer.

Deg
_________________________
Deb..caregiver to husband, age 63 at diagnosis, former smoker who quit in 1997.
DIAGNOSIS: 6/26/07 SCC right tonsil/BOT T4N0M0
TREATMENT START: 8/9/07 cisplatin/taxol X 7..IMRT twice daily X 31.5.
TREATMENT END: 10/1/07
PEG OUT: 1/08
PORT OUT: 4/09
FOLLOWUP: Now only annual exams. ALL CLEAR!

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#145557 - 02/08/12 02:47 AM Re: perineural invasion [Re: debandbill]
Cheryld Offline
"OCF Canuck"
Patient Advocate (old timer, 2000 posts)

Registered: 12/22/10
Posts: 4794
Loc: Toronto canada
Absolutely!!!
_________________________
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan

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#145560 - 02/08/12 04:26 AM Re: perineural invasion [Re: Cheryld]
Kerri Offline
Platinum Member (300+ posts)

Registered: 08/08/11
Posts: 495
Loc: MA
I wish this forum had a "like" button!
_________________________
37 y/o fem at Dx (23 wks preg @ dx on 3/16/11)
SCC L oral tongue (no risk factors)
L partial gloss/SND 3/28/11 @ 25 wks preg
T1-2N0M0; no rads/chemo
Tonsillectomy on 8/6/12 +SCC L tonsil T2-3N1M0 (HPV-)
Treated with 35 rads/7 carbo & taxol (Rx ended 10/31/12), but many hospitalizations d/t complications from rx.
3 clear MRIs w/ & w/o contrast since Jan '13 NED!
Part of genetic study for rare cancers @ MGH.
Just turned 40 and grateful! Hoping for 40 more!

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#145570 - 02/08/12 01:26 PM Re: perineural invasion [Re: Kerri]
Cheryld Offline
"OCF Canuck"
Patient Advocate (old timer, 2000 posts)

Registered: 12/22/10
Posts: 4794
Loc: Toronto canada
I actually snagged the link and emailed it to the patient relations manager at my ccc - asked her to pass it on to those who might think its relevant. smile
_________________________
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan

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#145575 - 02/08/12 04:40 PM Re: perineural invasion [Re: Cheryld]
Mark B Offline
Member

Registered: 01/19/12
Posts: 14
Loc: San Diego, CA
As a person who just completed treatment and is waiting the 3 months for a PET/CT scan the hitchhiking video put the hebejebes into me. Another topic I am going to add to my list to discuss with my ENT and RO.
_________________________
Dx 11/19/2011, SCC T2(2cm)N0 M0,BOT,HPV+
Tx 35 Rad(6996cgy)IMRT, No Chemo, Tx Done 1/17/12,
Never smoked, rare drinker, 52-Male

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#148342 - 04/16/12 12:55 AM Re: perineural invasion [Re: Mark B]
KenEggman Offline
Contributing Member (25+ posts)

Registered: 04/14/12
Posts: 32
Loc: VA, USA
Thank you for sharing this. Very informative.
_________________________
48YO M, hlthy, xsmkr(quit 14yrs ago), mod drinkr
1 mo sore throat w/neck lump 3/12
SCC tonsil, lym nodes
4/12/12 rad tonslctmy, mets in lymph nodes
5/8 PEG, 5/10 PORT 7/3/12 Last Chemo (Cisplatin)| 7/10/12 Last RAD | 9/6/12 MRI=No New Cancer
BSA Scout Ldr w/strng desire to live & beat cancer

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#148435 - 04/17/12 10:05 PM Re: perineural invasion [Re: KenEggman]
David2 Offline
Patient Advocate (1000+ posts)

Registered: 07/12/09
Posts: 1250
Loc: Los Angeles
A sobering presentation indeed, Brian. Thank you for bringing it to our attention. Jeesh!

(oh and I remember seeing both the crows talk and the stroke talk - great stuff)
_________________________
David 2
SCC of occult origin 1/09 (age 55)| Stage II TXN1M0 | HPV 16+, non-smoker, moderate drinker | Modified radical neck dissection 3/09 | 31 days IMRT finished 6/09 | Hit 5 years all clear in 6/14

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