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#148420 - 04/17/12 05:21 PM Hello from Bath (UK)  
Joined: Apr 2012
Posts: 2
Will.I.AM Offline
"OCF across the pond"
Will.I.AM  Offline
"OCF across the pond"
Member

Joined: Apr 2012
Posts: 2
UK
Hi Everyone,

My name is Will, 37, from the UK, was diagnosed with Mucoid Epidermoid Carcinoma in January 2012 - 6 weeks ago had a partial maxillectomy (left side) - clear margins no further treatment required (which of course is good). I'm fine, back to riding my Motorbike!

Currently getting used to an interim obturator - the size of mount Everest! Anyone with the same, please get in touch, would be good to chat about these things...

Hope all who read this are doing well!

Best,
Will

#148429 - 04/17/12 08:16 PM Re: Hello from Bath (UK) [Re: Will.I.AM]  
Joined: Jun 2007
Posts: 9,680
ChristineB Offline
Administrator, Director of Patient Support Services
ChristineB  Offline
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 9,680
PA
Welcome to OCF Will. Sorry to hear of your going thru such a big surgery. There are a couple of members on here who use the obturator. Hope you are dong well and are adjusting to your new normal.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
#148441 - 04/18/12 02:07 AM Re: Hello from Bath (UK) [Re: ChristineB]  
Joined: Dec 2010
Posts: 5,260
Cheryld Offline
"OCF Canuck"
Cheryld  Offline
"OCF Canuck"
Patient Advocate (old timer, 2000 posts)

Joined: Dec 2010
Posts: 5,260
Toronto canada
Hi there are a few with similar cancers, and orburators I'm sure they'll be along... Welcome, and congrats on getting through it!


Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
#148464 - 04/18/12 03:24 PM Re: Hello from Bath (UK) [Re: ChristineB]  
Joined: Apr 2012
Posts: 2
Will.I.AM Offline
"OCF across the pond"
Will.I.AM  Offline
"OCF across the pond"
Member

Joined: Apr 2012
Posts: 2
UK
Thanks Christine - I'm ok, could be a lot worse I guess and there are many out there a lot worse than I am, so can't really complain!\

Thanks Cheryl!!

Last edited by Will.I.AM; 04/18/12 03:25 PM.
#148467 - 04/18/12 04:07 PM Re: Hello from Bath (UK) [Re: Will.I.AM]  
Joined: Jul 2009
Posts: 1,370
David2 Offline
Patient Advocate (1000+ posts)
David2  Offline
Patient Advocate (1000+ posts)

Joined: Jul 2009
Posts: 1,370
Los Angeles
Will, I add my good thoughts and congratulations for getting through a very tough treatment. Your attitude is commendable and humbling to me. I wish you all the best with your continued recovery.


David 2
SCC of occult origin 1/09 (age 55)| Stage III TXN1M0 | HPV 16+, non-smoker, moderate drinker | Modified radical neck dissection 3/09 | 31 days IMRT finished 6/09 | Hit 8 years all clear in 6/17

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