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#148619 - 04/21/12 10:32 PM Re: New to OCF [Re: ilyse]  
Joined: Aug 2011
Posts: 596
Kerri Offline
"Above & Beyond" Member (500+ posts)
Kerri  Offline
"Above & Beyond" Member (500+ posts)

Joined: Aug 2011
Posts: 596
Hello, Ilyse.

Thank you for sharing your story and emphasizing that it is so important to listen to your own body. You certainly are a survivor. Best of luck with the gamma knife. I don't know a lot about it either, but I'm sure there are some people here that could give you some advice/info.

Be well,

37 y/o fem at Dx (23 wks preg @ dx on 3/16/11)
SCC L oral tongue (no risk factors)
L partial gloss/MND 3/28/11 @ 25 wks preg
T1-2N0M0; no rads/chemo
Tonsillectomy on 8/6/12 +SCC L tonsil T2-3N1M0 (HPV-)
Treated with 35 rads/7 carbo & taxol (Rx ended 10/31/12), but many hospitalizations d/t complications from rx.
Various scans since rx ended are NED!
Part of genetic study for rare cancers @ MGH.
44 years old now...I wasn't sure I would make it! Hoping for 40 more!
#148625 - 04/22/12 02:40 AM Re: New to OCF [Re: ilyse]  
Joined: Jan 2012
Posts: 112
braziliangirl82 Offline
Senior Member (100+ posts)
braziliangirl82  Offline
Senior Member (100+ posts)

Joined: Jan 2012
Posts: 112

December, 2011 - T1N0M0 SSC Oral Tongue sugery (Dec 07, 2011). Partial glossectomy, primary closure. Selective Neck dissection, all 57 nodes free. 29 at diagnosis, no risk factors at all. No smoking, drinking and HPV negative. Can you explain? I can't.
#148911 - 04/30/12 10:47 PM Re: New to OCF [Re: ilyse]  
Joined: Apr 2006
Posts: 583
DM32ASA Offline
"Above & Beyond" Member (500+ posts)
DM32ASA  Offline
"Above & Beyond" Member (500+ posts)

Joined: Apr 2006
Posts: 583
Hi Ilyse,

Wow!! Good for you that you were listening to your self. I think that is something we all need to learn and remember.

Welcome to OCF. I am sure your story will help many here. Thanks..

Diane smile

2004 SCC R.tip 1/4 tongue Oct. 2005 R. Neck SCC cancer/Chemo Cisplatin 2x/8wks. Rad. Removed Jugular vein, Lymph gland & some neck muscle. TX finished 1/20/06... B.Cancer 3/29/07 Finished 6/07 Bi-op 7/15/09 SCC in-situ, laser surgery removed from 1st. sight. Right jaw replacement 11/3/14. 9 yrs cancer free as of Jan. 2015
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