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#148420 - 04/17/12 05:21 PM Hello from Bath (UK)
Will.I.AM Offline
"OCF across the pond"

Registered: 04/17/12
Posts: 2
Loc: UK
Hi Everyone,

My name is Will, 37, from the UK, was diagnosed with Mucoid Epidermoid Carcinoma in January 2012 - 6 weeks ago had a partial maxillectomy (left side) - clear margins no further treatment required (which of course is good). I'm fine, back to riding my Motorbike!

Currently getting used to an interim obturator - the size of mount Everest! Anyone with the same, please get in touch, would be good to chat about these things...

Hope all who read this are doing well!


#148429 - 04/17/12 08:16 PM Re: Hello from Bath (UK) [Re: Will.I.AM]
ChristineB Offline
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

Registered: 06/23/07
Posts: 8855
Loc: PA
Welcome to OCF Will. Sorry to hear of your going thru such a big surgery. There are a couple of members on here who use the obturator. Hope you are dong well and are adjusting to your new normal.
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07, no caregiver
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo extended hospital stay, ICU & burn unit
PICC line w/ IV antibiotics 8 mo
10/4/10, 2/14/11 reconst surg
OC 3 times in 3 years
very happy to be alive smile

#148441 - 04/18/12 02:07 AM Re: Hello from Bath (UK) [Re: ChristineB]
Cheryld Offline
"OCF Canuck"
Patient Advocate (old timer, 2000 posts)

Registered: 12/22/10
Posts: 5249
Loc: Toronto canada
Hi there are a few with similar cancers, and orburators I'm sure they'll be along... Welcome, and congrats on getting through it!
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan

#148464 - 04/18/12 03:24 PM Re: Hello from Bath (UK) [Re: ChristineB]
Will.I.AM Offline
"OCF across the pond"

Registered: 04/17/12
Posts: 2
Loc: UK
Thanks Christine - I'm ok, could be a lot worse I guess and there are many out there a lot worse than I am, so can't really complain!\

Thanks Cheryl!!

Edited by Will.I.AM (04/18/12 03:25 PM)

#148467 - 04/18/12 04:07 PM Re: Hello from Bath (UK) [Re: Will.I.AM]
David2 Offline
Patient Advocate (1000+ posts)

Registered: 07/12/09
Posts: 1312
Loc: Los Angeles
Will, I add my good thoughts and congratulations for getting through a very tough treatment. Your attitude is commendable and humbling to me. I wish you all the best with your continued recovery.
David 2
SCC of occult origin 1/09 (age 55)| Stage III TXN1M0 | HPV 16+, non-smoker, moderate drinker | Modified radical neck dissection 3/09 | 31 days IMRT finished 6/09 | Hit 6 years all clear in 6/15


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