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#148420 - 04/17/12 05:21 PM Hello from Bath (UK)
Will.I.AM Offline
"OCF across the pond"
Member

Registered: 04/17/12
Posts: 2
Loc: UK
Hi Everyone,

My name is Will, 37, from the UK, was diagnosed with Mucoid Epidermoid Carcinoma in January 2012 - 6 weeks ago had a partial maxillectomy (left side) - clear margins no further treatment required (which of course is good). I'm fine, back to riding my Motorbike!

Currently getting used to an interim obturator - the size of mount Everest! Anyone with the same, please get in touch, would be good to chat about these things...

Hope all who read this are doing well!

Best,
Will

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#148429 - 04/17/12 08:16 PM Re: Hello from Bath (UK) [Re: Will.I.AM]
ChristineB Offline
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

Registered: 06/23/07
Posts: 7940
Loc: PA
Welcome to OCF Will. Sorry to hear of your going thru such a big surgery. There are a couple of members on here who use the obturator. Hope you are dong well and are adjusting to your new normal.
_________________________
Christine

SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 rad end 9/27/07, no caregiver
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
total of 185 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo hospital extended stay, ICU & burn unit
PICC line w/ IV antibiotics 8 mo
10/4/10, 2/14/11 reconst surg
OC 3 times in 3 years
very happy to be alive smile

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#148441 - 04/18/12 02:07 AM Re: Hello from Bath (UK) [Re: ChristineB]
Cheryld Offline
"OCF Canuck"
Patient Advocate (old timer, 2000 posts)

Registered: 12/22/10
Posts: 4599
Loc: Toronto canada
Hi there are a few with similar cancers, and orburators I'm sure they'll be along... Welcome, and congrats on getting through it!
_________________________
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan

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#148464 - 04/18/12 03:24 PM Re: Hello from Bath (UK) [Re: ChristineB]
Will.I.AM Offline
"OCF across the pond"
Member

Registered: 04/17/12
Posts: 2
Loc: UK
Thanks Christine - I'm ok, could be a lot worse I guess and there are many out there a lot worse than I am, so can't really complain!\

Thanks Cheryl!!


Edited by Will.I.AM (04/18/12 03:25 PM)

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#148467 - 04/18/12 04:07 PM Re: Hello from Bath (UK) [Re: Will.I.AM]
David2 Offline
Patient Advocate (1000+ posts)

Registered: 07/12/09
Posts: 1196
Loc: Los Angeles
Will, I add my good thoughts and congratulations for getting through a very tough treatment. Your attitude is commendable and humbling to me. I wish you all the best with your continued recovery.
_________________________
David 2
SCC of occult origin 1/09 (age 55)| Stage II TXN1M0 | HPV 16+, non-smoker, moderate drinker | Modified radical neck dissection 3/09 | 31 days IMRT finished 6/09 | PET-CTs clear through 1/13!

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