#148420 - 04/17/12 10:21 AM
Hello from Bath (UK)
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"OCF across the pond"
Member
Registered: 04/17/12
Posts: 2
Loc: UK
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Hi Everyone,
My name is Will, 37, from the UK, was diagnosed with Mucoid Epidermoid Carcinoma in January 2012 - 6 weeks ago had a partial maxillectomy (left side) - clear margins no further treatment required (which of course is good). I'm fine, back to riding my Motorbike!
Currently getting used to an interim obturator - the size of mount Everest! Anyone with the same, please get in touch, would be good to chat about these things...
Hope all who read this are doing well!
Best,
Will
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#148429 - 04/17/12 01:16 PM
Re: Hello from Bath (UK)
[Re: Will.I.AM]
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Administrator, OCF Ambassador at Large
Patient Advocate (old timer, 2000 posts)
Registered: 06/23/07
Posts: 6698
Loc: PA
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Welcome to OCF Will. Sorry to hear of your going thru such a big surgery. There are a couple of members on here who use the obturator. Hope you are dong well and are adjusting to your new normal.
_________________________
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 rad end 9/27/07, no caregiver Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 155 HBO,trismus 3/09 teeth out 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma, 2 mo hospital PICC line IV antibiotics 8 mo 10/4/10, 2/14/11 reconst surg OC 3 times in 3 years very happy to be alive 
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#148441 - 04/17/12 07:07 PM
Re: Hello from Bath (UK)
[Re: ChristineB]
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"OCF Canuck"
Patient Advocate (old timer, 2000 posts)
Registered: 12/22/10
Posts: 3446
Loc: Toronto canada
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Hi there are a few with similar cancers, and orburators I'm sure they'll be along... Welcome, and congrats on getting through it!
_________________________
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
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#148464 - 04/18/12 08:24 AM
Re: Hello from Bath (UK)
[Re: ChristineB]
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"OCF across the pond"
Member
Registered: 04/17/12
Posts: 2
Loc: UK
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Thanks Christine - I'm ok, could be a lot worse I guess and there are many out there a lot worse than I am, so can't really complain!\
Thanks Cheryl!!
Edited by Will.I.AM (04/18/12 08:25 AM)
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#148467 - 04/18/12 09:07 AM
Re: Hello from Bath (UK)
[Re: Will.I.AM]
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Patient Advocate (1000+ posts)
Registered: 07/12/09
Posts: 1042
Loc: Los Angeles
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Will, I add my good thoughts and congratulations for getting through a very tough treatment. Your attitude is commendable and humbling to me. I wish you all the best with your continued recovery.
_________________________
David 2
SCC of occult origin 1/09 (age 55)| Stage II TXN1M0 | HPV 16+, non-smoker, moderate drinker | Modified radical neck dissection 3/09 | 31 days IMRT finished 6/09 PET-CTs clear through 1/13!
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