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#148385 04-16-2012 05:43 PM
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EzJim Offline OP
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I went to Pittsburgh today and they removed the trach. It was in too long and now I have to wear a cork for 48 hrs to make sure my breathing is good and my swallowing works too. I went to the 8th floor where I lived from Oct 28 last year until almost New Years. That was the best welcome home I ever experienced. Just like before all of the nirse and staff had to give me a big hug and tell me how good I looked. We all know that tale. LOL I loved it anyway. Now for my Oncologist tomorrow in Wheeling, W Va for his check up. Then call the surgeon that did my Esophagus in 1996 for a scope if they say it's it to do it. I get to try my new tractor tomorrow. That's my present to myself, so I mow grass to make it feel good. LOL Luv ya all


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
EzJim #148386 04-16-2012 06:34 PM
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Jim - all sounds like good progress!! Especially the part about you getting to go out and mow your grass. That means the world is operating as it should be!! Miss seeing your posts - come by more often and keep us up to date!! Hugs

Donna


Donna,69, SCC L Tongue T2N1MO Stg IV 4/04 w/partial gloss;32 radtx; T2N2M0 Stg IV; R tongue-2nd partial gloss w/graft 10/07; 30 radtx/2 cispl 2/08. 3rd Oral Cancer surgery 1/22 - Stage 1. 2022 surgery eliminated swallowing and bottom left jaw. Now a “Tubie for Life”.no food envy - Thank God! Surviving isn't easy!!!! .Proudly Canadian - YES, UNIVERSAL HEALTH CARE IS WONDERFUL! (Not perfect but definitely WONDERFUL)
EzJim #148388 04-16-2012 06:40 PM
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Good for you, Jim! I hope the Oncologist gives you a good check-up tomorrow. You sure have had a lot of stuff done. Congratulations on the new tractor, too!


Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)



Anne-Marie #148399 04-16-2012 08:30 PM
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Glad you wrote an update. When you arent around for long periods of time we worry about you. Hope you are feeling ok. Heal quickly!


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
ChristineB #148404 04-17-2012 12:33 AM
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Hope your breathing is good enought to get rid of the cork soon like you did the trach Jim.
Sorry that you still have so much going on but it does give you a chance to catch up with all the nurses.
Enjoy your new boy toy mowing that grass wink
Please continue to keep us updated.
Love and hugs
Gabriele


History Leukoplakia bx 8/2006 SCC floor mouth T3N0M0- Verrucous Carcinoma.
14 hour 0p SCC-Right ND/excision/marginal mandibulectomy 9/2006, 4 teeth removed, flap from wrist, trach-ng 6 days- no chemo/rad.
6 ops and debulking (flap/tongue join) + bx's 2006-2012.
bx Jan 2012 Hyperkeratosis-Epithelial Dysplasia
24cm GIST tumour removed 8/2013. Indefinite Oral Chemo.

1/31/16 passed away peacefully surrounded by family

Gabe #148410 04-17-2012 05:25 AM
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So glad things are finally getting better!!! smile


Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
Cheryld #148416 04-17-2012 07:23 AM
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Goodness, Jim. You're getting to be a world traveler. It is so good hearing from you. Like the others said, we miss you and worry about you when we don't hear from you. Sounds like things are looking up - let us know what the doctors say and all of the latest results - it's about time things turn around for the good. I know you can't wait to get on that tractor - don't try to show off too much and get a speeding ticket - be careful and please keep in touch with us. We love you and miss hearing from you. Hugs from julieann
(((((((((((((((((((((((JIM)))))))))))))))))))))))))))))))


Julieann
Nov 2007 SCC on right tonsil following tonsillectomy. Was smoker, QUIT. (Stage IV T2 N2b) 7 weeks radiation one day/wk chemo (carboplatin and 5-FU). Allergic to Taxol; PEG in, lost 30 lbs. TX completed January 2008. PEG out mid- 2008. PET/CT 1/17/2011;2/3/12 NEGATIVE for cancer smile
julieann #148417 04-17-2012 08:05 AM
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Hi, Jim - what kind of tractor? We replace our Johne Deere last year when my husband was just out of therapy - he was the only one that could keep the old one running and was not up to it then. I got to do the first and half of the second mow, and then he took over.


CG to husband - SCC Tonsil T1N2M0 HPV+ Never Smoker
First symptoms 7/2010, DX 12/2010
TX 40 IRMT (1.8 gy) + 10 Cetuximab
PET Scans 6/2011 + 3/2012 clear, 5 year physical exam clear; chest CT's clear of cancer. On thyroid pills. Life is good.
Maria #148418 04-17-2012 08:16 AM
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Nothing like a new tractor to buck a man up!

That's all great to hear, Jim. I had a trache only for a week and it was a week too long. Really glad to hear that things are improving for you.

Now get out there on the North 40!


David 2
SCC of occult origin 1/09 (age 55)| Stage III TXN1M0 | HPV 16+, non-smoker, moderate drinker | Modified radical neck dissection 3/09 | 31 days IMRT finished 6/09 | Hit 14 years all clear in 6/23 | Radiation Fibrosis Syndrome kicked in a few years after treatment and has been progressing since | Prostate cancer diagnosis 10/18
David2 #148556 04-20-2012 05:39 AM
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That's great Jim.


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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