#148385 - 04/16/12 05:43 PM
Good bye trach
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Patient Advocate (old timer, 2000 posts)
Registered: 06/12/07
Posts: 5245
Loc: Mingo Jct., Ohio
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I went to Pittsburgh today and they removed the trach. It was in too long and now I have to wear a cork for 48 hrs to make sure my breathing is good and my swallowing works too. I went to the 8th floor where I lived from Oct 28 last year until almost New Years. That was the best welcome home I ever experienced. Just like before all of the nirse and staff had to give me a big hug and tell me how good I looked. We all know that tale. LOL I loved it anyway. Now for my Oncologist tomorrow in Wheeling, W Va for his check up. Then call the surgeon that did my Esophagus in 1996 for a scope if they say it's it to do it. I get to try my new tractor tomorrow. That's my present to myself, so I mow grass to make it feel good. LOL Luv ya all
_________________________
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April
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#148386 - 04/16/12 06:34 PM
Re: Good bye trach
[Re: EzJim]
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"OCF Canuck"
Patient Advocate (1000+ posts)
Registered: 09/14/06
Posts: 1279
Loc: Winnipeg, Manitoba Canada
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Jim - all sounds like good progress!! Especially the part about you getting to go out and mow your grass. That means the world is operating as it should be!! Miss seeing your posts - come by more often and keep us up to date!! Hugs
Donna
_________________________
Donna,59,SCC L Tongue T2N1MO Stg IV 4/04 w/partial gloss;32 radtx; T2N2M0 Stg IV.New primary R tongue-2nd partial gloss w/graft 10/07; 30 radtx/2 cispl 2/08. 9 yrs from 1st dx,5 yrs since 2nd dx. Surviving isn't easy,but grateful for EVERY day.Proudly Canadian-YES,UNIVERSAL HEALTH CARE IS WONDERFUL!
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#148388 - 04/16/12 06:40 PM
Re: Good bye trach
[Re: EzJim]
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Patient Advocate (old timer, 2000 posts)
Registered: 11/03/06
Posts: 2250
Loc: TN
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Good for you, Jim! I hope the Oncologist gives you a good check-up tomorrow. You sure have had a lot of stuff done. Congratulations on the new tractor, too!
_________________________
Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)
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#148399 - 04/16/12 08:30 PM
Re: Good bye trach
[Re: Anne-Marie]
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Administrator, OCF Ambassador at Large
Patient Advocate (old timer, 2000 posts)
Registered: 06/23/07
Posts: 6827
Loc: PA
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Glad you wrote an update. When you arent around for long periods of time we worry about you. Hope you are feeling ok. Heal quickly!
_________________________
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 rad end 9/27/07, no caregiver Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 155 HBO,trismus 3/09 teeth out 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma, 2 mo hospital PICC line IV antibiotics 8 mo 10/4/10, 2/14/11 reconst surg OC 3 times in 3 years very happy to be alive 
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#148404 - 04/17/12 12:33 AM
Re: Good bye trach
[Re: ChristineB]
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"OCF Down Under"
Patient Advocate (1000+ posts)
Registered: 08/02/07
Posts: 1197
Loc: Sydney NSW Australia
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Hope your breathing is good enought to get rid of the cork soon like you did the trach Jim. Sorry that you still have so much going on but it does give you a chance to catch up with all the nurses. Enjoy your new boy toy mowing that grass  Please continue to keep us updated. Love and hugs Gabriele
_________________________
Leukoplakia bx dx 8/2006 SCC floor of mouth/tongue T3N0M0- Verrucous Carcinoma.
14 hour 0p-right ND/excision/marginal mandibulectomy 9/2006, 4 teeth removed, flap from wrist, trach-ng 6 days- no chemo/rad.
6 ops (flap/tongue join) + bx's 2006-2012.
bx Jan 2012 Hyperkeratosis-Epithelial Dysplasia
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#148410 - 04/17/12 05:25 AM
Re: Good bye trach
[Re: Gabe]
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"OCF Canuck"
Patient Advocate (old timer, 2000 posts)
Registered: 12/22/10
Posts: 3565
Loc: Toronto canada
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So glad things are finally getting better!!!
_________________________
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
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#148416 - 04/17/12 07:23 AM
Re: Good bye trach
[Re: Cheryld]
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"Above & Beyond" Member (500+ posts)
Registered: 06/23/09
Posts: 846
Loc: Alabama
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Goodness, Jim. You're getting to be a world traveler. It is so good hearing from you. Like the others said, we miss you and worry about you when we don't hear from you. Sounds like things are looking up - let us know what the doctors say and all of the latest results - it's about time things turn around for the good. I know you can't wait to get on that tractor - don't try to show off too much and get a speeding ticket - be careful and please keep in touch with us. We love you and miss hearing from you. Hugs from julieann
(((((((((((((((((((((((JIM)))))))))))))))))))))))))))))))
_________________________
Julieann Nov 2007 – SCC on right tonsil following tonsillectomy. Was smoker, QUIT. (Stage IV T2 N2b) 7 weeks radiation - one day/wk chemo (carboplatin and 5-FU). Allergic to Taxol; PEG in, lost 30 lbs. TX completed January 2008. PEG out mid- 2008. PET/CT 1/17/2011; 2/3/12 NEGATIVE for cancer
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#148417 - 04/17/12 08:05 AM
Re: Good bye trach
[Re: julieann]
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"Above & Beyond" Member (500+ posts)
Registered: 07/15/11
Posts: 743
Loc: Ohio
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Hi, Jim - what kind of tractor? We replace our Johne Deere last year when my husband was just out of therapy - he was the only one that could keep the old one running and was not up to it then. I got to do the first and half of the second mow, and then he took over.
_________________________
CG to husband - SCC Tonsil T1N2M0 HPV+ Never Smoker
First symptoms 7/2010, DX 12/2010
TX 40 IRMT (1.8 gy) + 10 Cetuximab
PET Scans 6/2011 + 3/2012 clear, 6/2013 physical exam and chest CT clear of cancer. On thyroid pills. Can handle poblano peppers again. Life is good.
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#148418 - 04/17/12 08:16 AM
Re: Good bye trach
[Re: Maria]
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Patient Advocate (1000+ posts)
Registered: 07/12/09
Posts: 1050
Loc: Los Angeles
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Nothing like a new tractor to buck a man up!
That's all great to hear, Jim. I had a trache only for a week and it was a week too long. Really glad to hear that things are improving for you.
Now get out there on the North 40!
_________________________
David 2
SCC of occult origin 1/09 (age 55)| Stage II TXN1M0 | HPV 16+, non-smoker, moderate drinker | Modified radical neck dissection 3/09 | 31 days IMRT finished 6/09 PET-CTs clear through 1/13!
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#148556 - 04/20/12 05:39 AM
Re: Good bye trach
[Re: David2]
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Administrator, Senior Patient Advocate
Patient Advocate (old timer, 2000 posts)
Registered: 09/28/06
Posts: 7488
Loc: Gulfport, Florida
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That's great Jim.
_________________________
David
Age 58 at Dx, HPV 16+ SCC, T1N2bM0, Stage IV BOT and 2 nodes, non smoker, casual drinker and exercise nut, Cisplatin x 3 with concurrent IMRT x 35, (70 Gy), no surgery, no Peg, Tx at Moffitt over 8/28/06. June 2007, back to riding my bike 100 miles a week as if nothing happened.
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