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#148339 - 04/16/12 12:46 AM to our friends "down under"
Brian Hill Offline
OCF Founder
Patient Advocate (old timer, 2000 posts)

Registered: 03/18/02
Posts: 4675
Loc: Laguna Niguel, CA
http://www.theherald.com.au/news/local/news/health/hpv-vaccine-for-boys-questioned/2521849.aspx

Please note that the vaccination of young boys is on the table for discussion in Australia, a country that is already the most enlightened in the world - as they have government funded HPV vaccination for all young girls. But there has been an MD ( not a head and neck doctor) write to suggest that the benefits do not outweigh the costs. This writer clearly has not seen any patients with an advanced oral cancer. Anyone who feels like writing a counter point to the appropriate authorities is encouraged to do so. It would be nice to see the country with the best policy for women be the one with equality for men. And if the oral cancer argument isn't enough, gender based vaccination in the cervical cancer model is only addressing half the problem. Men are vectors of the virus to women. In the next generation, Australia could be the first country in the world to be HPV16 -18 free.
_________________________
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.

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#148367 - 04/16/12 12:16 PM Re: to our friends "down under" [Re: Brian Hill]
ChristineB Offline
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

Registered: 06/23/07
Posts: 8399
Loc: PA
That would be quite a milestone to see in our lifetime!
_________________________
Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07, no caregiver
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo extended hospital stay, ICU & burn unit
PICC line w/ IV antibiotics 8 mo
10/4/10, 2/14/11 reconst surg
OC 3 times in 3 years
very happy to be alive smile

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#148389 - 04/17/12 01:55 AM Re: to our friends "down under" [Re: ChristineB]
Pandora99 Offline
"OCF Canuck"
Patient Advocate (1000+ posts)

Registered: 09/14/06
Posts: 1319
Loc: Winnipeg, Manitoba Canada
Just FYI, Canada is on the same track. (Perhaps the Aussie's are copying us???)

This made the news a day ago:

****

Boys should have access to free HPV immunization, currently only available for girls, in order to protect more people against cancer, a growing chorus of Canadian doctors say...
This week, the Canadian Cancer Advocacy Coalition called on provinces to pay for the vaccine for boys, too. In January, the National Advisory Committee on Immunization recommended HPV vaccination for males aged nine to 25.
"Now is the time for governments to apply universal vaccine coverage for our boys and our girls to protect them from disease in the future," the coalition's report concluded.

The more common HPV vaccine, Gardasil, was initially only approved in Canada for use in girls and young women, but Health Canada expanded approval to males in 2010. Another vaccine, Cervarix, is only approved for use in females.

Two strains of HPV are thought be responsible for:

80% to 90% of anal cancers.
40% to 50% of penile cancers.
35% of oropharyngeal cancers.
25% of oral cavity cancers.

"The thought is if we vaccinate men, that will contribute to protecting women as well," said London, Ont.-based physician Marina Salvadori, the Canadian Pediatric Society's representative to the National Advisory Committee on Immunization. "So they don't spread the viruses to each other, both groups are protected from cancer and it's a win-win all round."
***

Where I live in Canada (Manitoba), Grade 6 girls are vaccinated for HPV free of charge since the 2008-2009 school year as follows:

"Manitoba Health introduced a voluntary, publicly-funded vaccine program for Grade Six girls starting in the school year 2008-2009. The program is delivered by public health nurses. Before any individual receives the immunization, information about HPV infections, the vaccine, and a consent form will be provided to parents and/or legal guardians."

Just FYI.

Donna
_________________________
Donna,60,SCC L Tongue T2N1MO Stg IV 4/04 w/partial gloss;32 radtx; T2N2M0 Stg IV.New primary R tongue-2nd partial gloss w/graft 10/07; 30 radtx/2 cispl 2/08. 10 yrs from 1st dx, 6 yrs since 2nd dx. Surviving isn't easy,but grateful for EVERY day.Proudly Canadian - YES, UNIVERSAL HEALTH CARE IS WONDERFUL! Cancer does not eliminate vanity - I would still rather be 59!

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#148401 - 04/17/12 04:01 AM Re: to our friends "down under" [Re: Pandora99]
Brian Hill Offline
OCF Founder
Patient Advocate (old timer, 2000 posts)

Registered: 03/18/02
Posts: 4675
Loc: Laguna Niguel, CA
_________________________
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.

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#148402 - 04/17/12 05:08 AM Re: to our friends "down under" [Re: Pandora99]
klo Offline
"OCF Down Under"
"Above & Beyond" Member (500+ posts)

Registered: 05/18/10
Posts: 638
Loc: Sydney Australia
Thanks Brian

I am hopeful we have the arguments to counter this.

As you would be aware, the oral cancer angle is not so sexy and lacks political strength (too few people and no cohesive network). Best chance of success is in collaboration with other networks that would also benefit from a non-sexist access to vaccines.

The newspaper report is putting their spin on it without even understanding what is being said. The doctor they are talking about as you suggested is not a clinician, but has expertise in predicting epidemics and modelling the costs. He is speaking purely from a cost perspective and how many people are needed to treat in order to save one person. And whilst he is correct in that the gains from vaccinating boys will be nowhere near as dramatic as the vaccination of girls, his modelling does not consider the young human being behind the statistics.

The PR around this needs to continue to be about a YOUNG mother, brother, partner, father etc who is dying needlessly when we have the means to prevent it.

There is an obvious, politically heavy group bringing their power to bear.

Whilst we can continue to ensure the right people behind the scenes have the right information, we also need to keep reminding them that HPV caused oral cancer adds weight to their arguments and modelling in addition to the cost benefit argument.

We, as consumers, have the opportunity to write letters to the paper, and post on facebook etc to ensure this issue doesn't get buried or twisted.

For others reading this in Australia, the vaccine is available to boys but for them it is not yet part of the school immunisation programme as it has been for girls since the beginning of 2007.

The current negotiations are around providing the vaccine to boys on the school vaccine programme.

It is just a question of the money ...
_________________________
Karen
Love of Life to Alex T4N2M0 SCC Tonsil, BOT, R lymph nodes
Dx March 2010 51yrs. Unresectable. HPV+ve
Tx Chemo x 3+1 cycles(cisplatin,docetaxel,5FU)- complete May 31
Chemoradiation (IMRTx35 + weekly cisplatin)
Finish Aug 27
Return to work 2 years on
3 years out Aug 27 2013 NED smile
Still underweight

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#148403 - 04/17/12 05:39 AM Re: to our friends "down under" [Re: klo]
klo Offline
"OCF Down Under"
"Above & Beyond" Member (500+ posts)

Registered: 05/18/10
Posts: 638
Loc: Sydney Australia
sorry Brian, it took me so long to write my post it is now following your second post. My response above is to your original post.

Re your second post: Hear hear!!
_________________________
Karen
Love of Life to Alex T4N2M0 SCC Tonsil, BOT, R lymph nodes
Dx March 2010 51yrs. Unresectable. HPV+ve
Tx Chemo x 3+1 cycles(cisplatin,docetaxel,5FU)- complete May 31
Chemoradiation (IMRTx35 + weekly cisplatin)
Finish Aug 27
Return to work 2 years on
3 years out Aug 27 2013 NED smile
Still underweight

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#148414 - 04/17/12 02:07 PM Re: to our friends "down under" [Re: klo]
Brian Hill Offline
OCF Founder
Patient Advocate (old timer, 2000 posts)

Registered: 03/18/02
Posts: 4675
Loc: Laguna Niguel, CA
Do not forget to add anal cancers, penile cancers, vulvar cancers, oral cancer, and cervical cancers to the addition of cancer treatment costs the vaccine likely will impact. All caused by HPV16. That will increase the numbers some to the benefit of the argument. There are actually a few more that are suspect, but the data is inconclusive right now.
_________________________
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.

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#148463 - 04/18/12 12:41 PM Re: to our friends "down under" [Re: Brian Hill]
lam007 Offline
"OCF Down Under"
Supporting Member (50+ posts)

Registered: 12/01/11
Posts: 60
Loc: NSW Australia
And we must not just focus on the "it might kill you" aspect. Living isn't always so easy after treatment.
_________________________
CG to husband Stage IV SCC left tonsil 11/11. Mets to 7 nodes on left, 2 on right, no distant mets. PEG, 7 weeks radiation and weekly Cisplatin ended Feb 10, 2012. PET 04/12 areas consistent with inflammation, complete response in nodes. Recurrence 09/13 pulmonary lymphatics. Died 22 Oct following an allergic reaction to Erbitux.

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