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#148385 - 04/17/12 12:43 AM Good bye trach  
Joined: Jun 2007
Posts: 5,260
EzJim Offline
Patient Advocate (old timer, 2000 posts)
EzJim  Offline
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 5,260
Mingo Jct., Ohio
I went to Pittsburgh today and they removed the trach. It was in too long and now I have to wear a cork for 48 hrs to make sure my breathing is good and my swallowing works too. I went to the 8th floor where I lived from Oct 28 last year until almost New Years. That was the best welcome home I ever experienced. Just like before all of the nirse and staff had to give me a big hug and tell me how good I looked. We all know that tale. LOL I loved it anyway. Now for my Oncologist tomorrow in Wheeling, W Va for his check up. Then call the surgeon that did my Esophagus in 1996 for a scope if they say it's it to do it. I get to try my new tractor tomorrow. That's my present to myself, so I mow grass to make it feel good. LOL Luv ya all


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
#148386 - 04/17/12 01:34 AM Re: Good bye trach [Re: EzJim]  
Joined: Sep 2006
Posts: 1,332
Pandora99 Offline
"OCF Canuck"
Pandora99  Offline
"OCF Canuck"
Patient Advocate (1000+ posts)

Joined: Sep 2006
Posts: 1,332
Winnipeg, Manitoba Canada
Jim - all sounds like good progress!! Especially the part about you getting to go out and mow your grass. That means the world is operating as it should be!! Miss seeing your posts - come by more often and keep us up to date!! Hugs

Donna


Donna,63, SCC L Tongue T2N1MO Stg IV 4/04 w/partial gloss;32 radtx; T2N2M0 Stg IV.New primary R tongue-2nd partial gloss w/graft 10/07; 30 radtx/2 cispl 2/08. 11 yrs from 1st dx, 7 yrs since 2nd dx. Surviving isn't easy,but grateful for EVERY day.Proudly Canadian - YES, UNIVERSAL HEALTH CARE IS WONDERFUL!
#148388 - 04/17/12 01:40 AM Re: Good bye trach [Re: EzJim]  
Joined: Nov 2006
Posts: 2,671
Anne-Marie Offline
Patient Advocate (old timer, 2000 posts)
Anne-Marie  Offline
Patient Advocate (old timer, 2000 posts)

Joined: Nov 2006
Posts: 2,671
TN
Good for you, Jim! I hope the Oncologist gives you a good check-up tomorrow. You sure have had a lot of stuff done. Congratulations on the new tractor, too!


Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)



#148399 - 04/17/12 03:30 AM Re: Good bye trach [Re: Anne-Marie]  
Joined: Jun 2007
Posts: 9,745
ChristineB Offline
Administrator, Director of Patient Support Services
ChristineB  Offline
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 9,745
PA
Glad you wrote an update. When you arent around for long periods of time we worry about you. Hope you are feeling ok. Heal quickly!


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
#148404 - 04/17/12 07:33 AM Re: Good bye trach [Re: ChristineB]  
Joined: Aug 2007
Posts: 1,301
Gabe Offline
"OCF Down Under"
Gabe  Offline
"OCF Down Under"
Patient Advocate (1000+ posts)

Joined: Aug 2007
Posts: 1,301
Sydney NSW Australia
Hope your breathing is good enought to get rid of the cork soon like you did the trach Jim.
Sorry that you still have so much going on but it does give you a chance to catch up with all the nurses.
Enjoy your new boy toy mowing that grass wink
Please continue to keep us updated.
Love and hugs
Gabriele


History Leukoplakia bx 8/2006 SCC floor mouth T3N0M0- Verrucous Carcinoma.
14 hour 0p SCC-Right ND/excision/marginal mandibulectomy 9/2006, 4 teeth removed, flap from wrist, trach-ng 6 days- no chemo/rad.
6 ops and debulking (flap/tongue join) + bx's 2006-2012.
bx Jan 2012 Hyperkeratosis-Epithelial Dysplasia
24cm GIST tumour removed 8/2013. Indefinite Oral Chemo.

1/31/16 passed away peacefully surrounded by family

#148410 - 04/17/12 12:25 PM Re: Good bye trach [Re: Gabe]  
Joined: Dec 2010
Posts: 5,260
Cheryld Offline
"OCF Canuck"
Cheryld  Offline
"OCF Canuck"
Patient Advocate (old timer, 2000 posts)

Joined: Dec 2010
Posts: 5,260
Toronto canada
So glad things are finally getting better!!! smile


Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
#148416 - 04/17/12 02:23 PM Re: Good bye trach [Re: Cheryld]  
Joined: Jun 2009
Posts: 875
julieann Offline
"Above & Beyond" Member (500+ posts)
julieann  Offline
"Above & Beyond" Member (500+ posts)

Joined: Jun 2009
Posts: 875
Alabama
Goodness, Jim. You're getting to be a world traveler. It is so good hearing from you. Like the others said, we miss you and worry about you when we don't hear from you. Sounds like things are looking up - let us know what the doctors say and all of the latest results - it's about time things turn around for the good. I know you can't wait to get on that tractor - don't try to show off too much and get a speeding ticket - be careful and please keep in touch with us. We love you and miss hearing from you. Hugs from julieann
(((((((((((((((((((((((JIM)))))))))))))))))))))))))))))))


Julieann
Nov 2007 SCC on right tonsil following tonsillectomy. Was smoker, QUIT. (Stage IV T2 N2b) 7 weeks radiation one day/wk chemo (carboplatin and 5-FU). Allergic to Taxol; PEG in, lost 30 lbs. TX completed January 2008. PEG out mid- 2008. PET/CT 1/17/2011;2/3/12 NEGATIVE for cancer smile
#148417 - 04/17/12 03:05 PM Re: Good bye trach [Re: julieann]  
Joined: Jul 2011
Posts: 945
Maria Offline
"Above & Beyond" Member (500+ posts)
Maria  Offline
"Above & Beyond" Member (500+ posts)

Joined: Jul 2011
Posts: 945
Ohio
Hi, Jim - what kind of tractor? We replace our Johne Deere last year when my husband was just out of therapy - he was the only one that could keep the old one running and was not up to it then. I got to do the first and half of the second mow, and then he took over.


CG to husband - SCC Tonsil T1N2M0 HPV+ Never Smoker
First symptoms 7/2010, DX 12/2010
TX 40 IRMT (1.8 gy) + 10 Cetuximab
PET Scans 6/2011 + 3/2012 clear, 5 year physical exam clear; chest CT's clear of cancer. On thyroid pills. Life is good.
#148418 - 04/17/12 03:16 PM Re: Good bye trach [Re: Maria]  
Joined: Jul 2009
Posts: 1,374
David2 Offline
Patient Advocate (1000+ posts)
David2  Offline
Patient Advocate (1000+ posts)

Joined: Jul 2009
Posts: 1,374
Los Angeles
Nothing like a new tractor to buck a man up!

That's all great to hear, Jim. I had a trache only for a week and it was a week too long. Really glad to hear that things are improving for you.

Now get out there on the North 40!


David 2
SCC of occult origin 1/09 (age 55)| Stage III TXN1M0 | HPV 16+, non-smoker, moderate drinker | Modified radical neck dissection 3/09 | 31 days IMRT finished 6/09 | Hit 8 years all clear in 6/17
#148556 - 04/20/12 12:39 PM Re: Good bye trach [Re: David2]  
Joined: Sep 2006
Posts: 8,311
davidcpa Offline
Administrator, Senior Patient Advocate
davidcpa  Offline
Administrator, Senior Patient Advocate
Patient Advocate (old timer, 2000 posts)

Joined: Sep 2006
Posts: 8,311
Gulfport, Florida
That's great Jim.


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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