#148640 - 04/22/12 02:36 PM
Re: New to Group
[Re: vandypaul]
|
Administrator, OCF Ambassador at Large
Patient Advocate (old timer, 2000 posts)
Registered: 06/23/07
Posts: 6831
Loc: PA
|
When your wife comes home from the hospital, she can have a visiting nurse check on her a couple times per week. This should be something arranged at the hospital. There also may be some home health aides who could come help. They can help her with simple things like bathing and dressing. I had visiting nurses weekly for 9 months. But I also had some major complications, most patients will be ok after a couple months. Most will stay 2 or 3 weeks in the hospital. Many will go to a rehab facility for a few more weeks to help them gain strength and to prepare them for being able to go home. The surgery is a big one and recovery is long but since your wife is in otherwise good health she should be ok with this. She hasnt had radiation yet so her healing should be faster than someone who already did radiation. I know its a huge decision to make.
I wish you both all the best with everything!
_________________________
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 rad end 9/27/07, no caregiver Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 155 HBO,trismus 3/09 teeth out 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma, 2 mo hospital PICC line IV antibiotics 8 mo 10/4/10, 2/14/11 reconst surg OC 3 times in 3 years very happy to be alive
|
|
Top
|
|
|
|
#148780 - 04/26/12 01:12 PM
Re: New to Group
[Re: ChristineB]
|
Member
Registered: 04/14/12
Posts: 20
Loc: tn
|
Still in limbo. Surgeon felt we needed to talk to medical Oncologist to discuss radiation/chemo option to surgery. Have session on Monday and then big decision. Thanks for all the input.
_________________________
Caregiver to wife with stage 4 oral cancer. Cheek and 2 lymph nodes.Diagnosed April 2012. At age 80 decided against major surgery.Currently doing 9 chemos and then 7 weeks of radiation/chemo.
|
|
Top
|
|
|
|
#148853 - 04/29/12 01:35 PM
Re: New to Group
[Re: vandypaul]
|
Member
Registered: 04/14/12
Posts: 20
Loc: tn
|
Tomorrow is last info day before decision. We wonder how much agony we are willing to go thru at 80 yrs of age. We all want to be healthy at any age but the cure may not help our overall health. I know we will do something but also looking at the least invasive options. Just venting. Any 80 yr old out here?
_________________________
Caregiver to wife with stage 4 oral cancer. Cheek and 2 lymph nodes.Diagnosed April 2012. At age 80 decided against major surgery.Currently doing 9 chemos and then 7 weeks of radiation/chemo.
|
|
Top
|
|
|
|
#148855 - 04/29/12 02:05 PM
Re: New to Group
[Re: vandypaul]
|
"OCF Down Under"
"Above & Beyond" Member (500+ posts)
Registered: 05/17/10
Posts: 615
Loc: Sydney Australia
|
Hi Vandypaul
Going back to your first post which asked what sort of questions you should be asking. Everyone has given great advice about getting second opinions and giving you some idea of what to expect from the OC aspect but I don't see any advice around (or missed) addressing the Crohns disease.
My question to the doctors if I were in your wife's shoes would be to ask how treatment would affect her Crohns. I am thinking specifially of chemotherapy which affects the whole body - including the entire gastro-intestinal tract. Make sure your oncologists don't forget they need to take this into account when recommending treatment.
Good luck and let us know what you and your wife decide
Karen
_________________________
Karen Love of Life to Alex T4N2M0 SCC Tonsil, BOT, R lymph nodes Dx March 2010 51yrs. Unresectable. HPV+ve Tx Chemo x 3+1 cycles(cisplatin,docetaxel,5FU)- complete May 31 Chemoradiation (IMRTx35 + weekly cisplatin) Finish Aug 27 Return to work 2 years on and doing great Still underweight
|
|
Top
|
|
|
|
#148856 - 04/29/12 02:05 PM
Re: New to Group
[Re: vandypaul]
|
Administrator, OCF Ambassador at Large
Patient Advocate (old timer, 2000 posts)
Registered: 06/23/07
Posts: 6831
Loc: PA
|
I wish you all the best with your difficult decision! OCF does have an older gentleman who stops in from time to time. Look for posts by EzJim. He has gone thru heck and has shown such resiliency for a man in his 70s. He is a great example of someone who never gives up or gets discouraged, he just keep a positive outlook and keeps going. There have been others in their 80s but off the top of my head I can not remember specific screen names.
No matter what you decide, we will be here to support you with info and a place for moral support. Best wishes!
_________________________
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 rad end 9/27/07, no caregiver Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 155 HBO,trismus 3/09 teeth out 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma, 2 mo hospital PICC line IV antibiotics 8 mo 10/4/10, 2/14/11 reconst surg OC 3 times in 3 years very happy to be alive
|
|
Top
|
|
|
|
#148975 - 05/02/12 11:59 AM
Re: New to Group
[Re: ChristineB]
|
Member
Registered: 04/14/12
Posts: 20
Loc: tn
|
Decision has been made to go with chemo/radiation.Impact of Crohns is a little less than the 10 hr surgery option. Hopefully begin next week-go for mask fitting tomorrow.Hard choice and only time will tell. She finally fully understands the side effects after our meeting with thw rad oncologist Thanks for all the inputs.Our choice of Vanderbilt and their team approach helped tremendously in making the decision.
_________________________
Caregiver to wife with stage 4 oral cancer. Cheek and 2 lymph nodes.Diagnosed April 2012. At age 80 decided against major surgery.Currently doing 9 chemos and then 7 weeks of radiation/chemo.
|
|
Top
|
|
|
|
#148979 - 05/02/12 01:03 PM
Re: New to Group
[Re: vandypaul]
|
"Above & Beyond" Member (500+ posts)
Registered: 07/15/11
Posts: 743
Loc: Ohio
|
Vanderbilt's a great center - my husband's ENT trained there. It will be a difficult journey, but the good doctors at Vanderbilt are supporting it because there is a good chance it WILL be worth it. Younger people have us on physical strength and stamina, but age brings its own emotional fortitude, courage and patience. My very best wishes to you both.
_________________________
CG to husband - SCC Tonsil T1N2M0 HPV+ Never Smoker First symptoms 7/2010, DX 12/2010 TX 40 IRMT (1.8 gy) + 10 Cetuximab PET Scans 6/2011 + 3/2012 clear, 6/2013 physical exam and chest CT clear of cancer. On thyroid pills. Can handle poblano peppers again. Life is good.
|
|
Top
|
|
|
|
#148982 - 05/02/12 01:50 PM
Re: New to Group
[Re: LAW]
|
Member
Registered: 04/14/12
Posts: 20
Loc: tn
|
Your post arrived
_________________________
Caregiver to wife with stage 4 oral cancer. Cheek and 2 lymph nodes.Diagnosed April 2012. At age 80 decided against major surgery.Currently doing 9 chemos and then 7 weeks of radiation/chemo.
|
|
Top
|
|
|
|
#148983 - 05/02/12 01:56 PM
Re: New to Group
[Re: vandypaul]
|
Administrator, OCF Ambassador at Large
Patient Advocate (old timer, 2000 posts)
Registered: 06/23/07
Posts: 6831
Loc: PA
|
It was deleted as it took away from your thread responses.
Nutrition and hydration will play a huge factor in your wife's success with getting thru this easier. Every single day she needs 2500 calories and 48 oz of water. Do not skimp even one day thinking it can be made up the next one. It never happens. If you push for even more per day that is even better! Try to get her to enjoy all her favorite foods now as her sense of taste will be altered for a while.
So glad you have chosen a cancer center!!!!
Good Luck!!!!
_________________________
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 rad end 9/27/07, no caregiver Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 155 HBO,trismus 3/09 teeth out 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma, 2 mo hospital PICC line IV antibiotics 8 mo 10/4/10, 2/14/11 reconst surg OC 3 times in 3 years very happy to be alive
|
|
Top
|
|
|
|
#148992 - 05/02/12 04:45 PM
Re: New to Group
[Re: ChristineB]
|
"OCF Canuck"
Patient Advocate (old timer, 2000 posts)
Registered: 12/22/10
Posts: 3572
Loc: Toronto canada
|
Best of luck! You'll get through it. Hugs!
_________________________
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
|
|
Top
|
|
|
|
|
|
1 registered (Anne-Marie),
42
Guests and
1
Spider online. |
|
Key:
Admin,
Global Mod,
Mod
|
|
8953 Members
22 Forums
14554 Topics
164721 Posts
Max Online: 141 @ 05/15/13 03:09 AM
|
|
|
|
|
|
|
|
1
|
2
|
|
3
|
4
|
5
|
6
|
7
|
8
|
9
|
|
10
|
11
|
12
|
13
|
14
|
15
|
16
|
|
17
|
18
|
19
|
20
|
21
|
22
|
23
|
|
24
|
25
|
26
|
27
|
28
|
29
|
30
|
|
|