Previous Thread
Next Thread
Print Thread
Page 2 of 6 1 2 3 4 5 6
#148640 - 04/22/12 09:36 PM Re: New to Group [Re: vandypaul]  
Joined: Jun 2007
Posts: 9,677
ChristineB Offline
Administrator, Director of Patient Support Services
ChristineB  Offline
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 9,677
PA
When your wife comes home from the hospital, she can have a visiting nurse check on her a couple times per week. This should be something arranged at the hospital. There also may be some home health aides who could come help. They can help her with simple things like bathing and dressing. I had visiting nurses weekly for 9 months. But I also had some major complications, most patients will be ok after a couple months. Most will stay 2 or 3 weeks in the hospital. Many will go to a rehab facility for a few more weeks to help them gain strength and to prepare them for being able to go home. The surgery is a big one and recovery is long but since your wife is in otherwise good health she should be ok with this. She hasnt had radiation yet so her healing should be faster than someone who already did radiation. I know its a huge decision to make.

I wish you both all the best with everything!


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
#148780 - 04/26/12 08:12 PM Re: New to Group [Re: ChristineB]  
Joined: Apr 2012
Posts: 20
vandypaul Offline
Member
vandypaul  Offline
Member

Joined: Apr 2012
Posts: 20
tn
Still in limbo. Surgeon felt we needed to talk to medical Oncologist to discuss radiation/chemo option to surgery. Have session on Monday and then big decision. Thanks for all the input.


Caregiver to wife with stage 4 oral cancer. Cheek and 2 lymph nodes.Diagnosed April 2012. At age 80 decided against major surgery.Currently doing 9 chemos and then 7 weeks of radiation/chemo.
#148853 - 04/29/12 08:35 PM Re: New to Group [Re: vandypaul]  
Joined: Apr 2012
Posts: 20
vandypaul Offline
Member
vandypaul  Offline
Member

Joined: Apr 2012
Posts: 20
tn
Tomorrow is last info day before decision. We wonder how much agony we are willing to go thru at 80 yrs of age. We all want to be healthy at any age but the cure may not help our overall health. I know we will do something but also looking at the least invasive options. Just venting. Any 80 yr old out here?


Caregiver to wife with stage 4 oral cancer. Cheek and 2 lymph nodes.Diagnosed April 2012. At age 80 decided against major surgery.Currently doing 9 chemos and then 7 weeks of radiation/chemo.
#148855 - 04/29/12 09:05 PM Re: New to Group [Re: vandypaul]  
Joined: May 2010
Posts: 638
klo Offline
"OCF Down Under"
klo  Offline
"OCF Down Under"
"Above & Beyond" Member (500+ posts)

Joined: May 2010
Posts: 638
Sydney Australia
Hi Vandypaul

Going back to your first post which asked what sort of questions you should be asking. Everyone has given great advice about getting second opinions and giving you some idea of what to expect from the OC aspect but I don't see any advice around (or missed) addressing the Crohns disease.

My question to the doctors if I were in your wife's shoes would be to ask how treatment would affect her Crohns. I am thinking specifially of chemotherapy which affects the whole body - including the entire gastro-intestinal tract. Make sure your oncologists don't forget they need to take this into account when recommending treatment.

Good luck and let us know what you and your wife decide

Karen


Karen
Love of Life to Alex T4N2M0 SCC Tonsil, BOT, R lymph nodes
Dx March 2010 51yrs. Unresectable. HPV+ve
Tx Chemo x 3+1 cycles(cisplatin,docetaxel,5FU)- complete May 31
Chemoradiation (IMRTx35 + weekly cisplatin)
Finish Aug 27
Return to work 2 years on
3 years out Aug 27 2013 NED smile
Still underweight
#148856 - 04/29/12 09:05 PM Re: New to Group [Re: vandypaul]  
Joined: Jun 2007
Posts: 9,677
ChristineB Offline
Administrator, Director of Patient Support Services
ChristineB  Offline
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 9,677
PA
I wish you all the best with your difficult decision! OCF does have an older gentleman who stops in from time to time. Look for posts by EzJim. He has gone thru heck and has shown such resiliency for a man in his 70s. He is a great example of someone who never gives up or gets discouraged, he just keep a positive outlook and keeps going. There have been others in their 80s but off the top of my head I can not remember specific screen names.

No matter what you decide, we will be here to support you with info and a place for moral support. Best wishes!


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
#148975 - 05/02/12 06:59 PM Re: New to Group [Re: ChristineB]  
Joined: Apr 2012
Posts: 20
vandypaul Offline
Member
vandypaul  Offline
Member

Joined: Apr 2012
Posts: 20
tn
Decision has been made to go with chemo/radiation.Impact of Crohns is a little less than the 10 hr surgery option. Hopefully begin next week-go for mask fitting tomorrow.Hard choice and only time will tell. She finally fully understands the side effects after our meeting with thw rad oncologist Thanks for all the inputs.Our choice of Vanderbilt and their team approach helped tremendously in making the decision.


Caregiver to wife with stage 4 oral cancer. Cheek and 2 lymph nodes.Diagnosed April 2012. At age 80 decided against major surgery.Currently doing 9 chemos and then 7 weeks of radiation/chemo.
#148979 - 05/02/12 08:03 PM Re: New to Group [Re: vandypaul]  
Joined: Jul 2011
Posts: 945
Maria Offline
"Above & Beyond" Member (500+ posts)
Maria  Offline
"Above & Beyond" Member (500+ posts)

Joined: Jul 2011
Posts: 945
Ohio
Vanderbilt's a great center - my husband's ENT trained there. It will be a difficult journey, but the good doctors at Vanderbilt are supporting it because there is a good chance it WILL be worth it. Younger people have us on physical strength and stamina, but age brings its own emotional fortitude, courage and patience. My very best wishes to you both.


CG to husband - SCC Tonsil T1N2M0 HPV+ Never Smoker
First symptoms 7/2010, DX 12/2010
TX 40 IRMT (1.8 gy) + 10 Cetuximab
PET Scans 6/2011 + 3/2012 clear, 5 year physical exam clear; chest CT's clear of cancer. On thyroid pills. Life is good.
#148982 - 05/02/12 08:50 PM Re: New to Group [Re: LAW]  
Joined: Apr 2012
Posts: 20
vandypaul Offline
Member
vandypaul  Offline
Member

Joined: Apr 2012
Posts: 20
tn
Your post arrived


Caregiver to wife with stage 4 oral cancer. Cheek and 2 lymph nodes.Diagnosed April 2012. At age 80 decided against major surgery.Currently doing 9 chemos and then 7 weeks of radiation/chemo.
#148983 - 05/02/12 08:56 PM Re: New to Group [Re: vandypaul]  
Joined: Jun 2007
Posts: 9,677
ChristineB Offline
Administrator, Director of Patient Support Services
ChristineB  Offline
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 9,677
PA
It was deleted as it took away from your thread responses.


Nutrition and hydration will play a huge factor in your wife's success with getting thru this easier. Every single day she needs 2500 calories and 48 oz of water. Do not skimp even one day thinking it can be made up the next one. It never happens. If you push for even more per day that is even better! Try to get her to enjoy all her favorite foods now as her sense of taste will be altered for a while.

So glad you have chosen a cancer center!!!!

Good Luck!!!!


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
#148992 - 05/02/12 11:45 PM Re: New to Group [Re: ChristineB]  
Joined: Dec 2010
Posts: 5,260
Cheryld Offline
"OCF Canuck"
Cheryld  Offline
"OCF Canuck"
Patient Advocate (old timer, 2000 posts)

Joined: Dec 2010
Posts: 5,260
Toronto canada
Best of luck! You'll get through it. Hugs!


Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
Page 2 of 6 1 2 3 4 5 6

Support OCF


Help OCF

Shop Amazon and Help OCF

Who's Online Now
0 registered members (), 24 guests, and 4 spiders.
Key: Admin, Global Mod, Mod
Forum Statistics
Forums23
Topics16,971
Posts190,222
Members11,312
Most Online306
Aug 21st, 2016
Top Posters(All Time)
ChristineB 9,677
davidcpa 8,311
Cheryld 5,260
Brian Hill 4,738
Gary 3,552
Newest Members
Cindygullo, Gerard, Eric C., BarbC, carolysan
11311 Registered Users
Brag Box
Powered by UBB.threads™ PHP Forum Software 7.6.0