Agreed. I felt so alone until we found this site. Kevin only spent a brief time here, then he was overwhelmed and swore off, but he had turned me on to the forums and help flooded in. It was in the last week of rads and things were pretty bad. It was sooo good to know what we were going through was normal.
Thanks Brian, for giving us a soft place to fall. Thanks to everyone who helps everyone....we ROCK!!
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Kathy wife/caregiver to:
Kevin age:53
Dx 7/15/11
HPV16+ SCC Stage IV BOT/R
Non smoker, casual drinker
7/27/11 Cistplatin, taxotere,5FU 2/3week sessions, followed by IMRT 125cgy x 60 (2x daily) w/Erbitux weekly. Last rad 10/26/11. Last Erbitux 10/27/11
PEG placed 9/1/11 Removed 11/8/11
Clear PET 10/2012