#147867 - 04/06/12 10:32 AM
Re: Memories...
[Re: CMMoore]
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Administrator, OCF Ambassador at Large
Patient Advocate (old timer, 2000 posts)
Registered: 06/23/07
Posts: 6713
Loc: PA
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Hope you are able to enjoy yourself over the weekend. You were very smart to make lots of plans. Remember the good memories and know that Matt is smiling down on you.
_________________________
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 rad end 9/27/07, no caregiver Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 155 HBO,trismus 3/09 teeth out 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma, 2 mo hospital PICC line IV antibiotics 8 mo 10/4/10, 2/14/11 reconst surg OC 3 times in 3 years very happy to be alive 
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#147879 - 04/06/12 01:36 PM
Re: Memories...
[Re: CMMoore]
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"Above & Beyond" Member (500+ posts)
Registered: 10/09/11
Posts: 671
Loc: NY
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Happy Anniversary Honey!! Yes, very glad you are getting out with your girlfriends. Relax and have a good time.
Thinking of you daily. Wish we could all have a party night together!
Love,
Kathy
_________________________
Kathy wife/caregiver to:
Kevin age:53
Dx 7/15/11
HPV16+ SCC Stage IV BOT/R
Non smoker, casual drinker
7/27/11 Cistplatin, taxotere,5FU 2/3week sessions, followed by IMRT 125cgy x 60 (2x daily) w/Erbitux weekly. Last rad 10/26/11. Last Erbitux 10/27/11
PEG placed 9/1/11 Removed 11/8/11
Clear PET 10/2012
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#148049 - 04/09/12 10:13 PM
Re: Memories...
[Re: CMMoore]
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"Above & Beyond" Member (500+ posts)
Registered: 01/16/11
Posts: 571
Loc: California
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Love you, girl!
I agree with Wanda. Sometimes when we need them the most, they show up. I was cleaning out my mom's stuff and setting stuff aside for Goodwill. I was so sad. I reached in a coat pocket and found a tissue with a perfect lipstick lip print on it. It was like getting one more kiss from my mom.
Matt loved you tremendously. I am so happy that you have things he wrote and said to reassure you that you were loved and appreciated. Too many people let those words go unsaid and unwritten. That's tragic.
Sending hugs,
Sandy
xoxox
_________________________
Ex-spouse MISDIAGNOSED with SCC-HN IVa 12/10. Tonsils out 1/11. 4 teeth out 2/11. TX Erbitux x2, IMRT x2 2/11. 2nd opinion-benign BCC-NOT CANCER 3/11. TX stopped 3/11. New doctors 4/11. ENT agrees with 2nd opinion 5/11. ENT scoped him-all clear 7/11. Ordered MRI anyway. MRI 8/22/11 Result-all clear.
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#148050 - 04/09/12 10:47 PM
Re: Memories...
[Re: KP5]
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Gold Member (200+ posts)
Registered: 07/01/09
Posts: 280
Loc: MO, USA
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Friday night I kept very busy, saw an awesome band, drank a LOT and hand fun. Saturday got 4 inches chopped off my hair for the summer. Went for a long peaceful drive through the country and found a CUTE property with 5 acres. It's on a dirt road, but not far from a highway. There is a creek just across the road. A huge garage/shop where my son and I could build a hot rod or start making demo derby cars (we have several fun ideas to keep us busy) Trees are everywhere so lots of rock gardens hammocks and little oasis opportunities to be created.
Would be such a nice place to heal.
When I mentioned it to my brother, he laughed really big and then showed me on a map that the property he wants to buy is about a mile due north across the creek from it. The kids would all certainly love that!
As much as I love the city and all that there is to do, I am just a country girl at heart.
Kathy, I agree, it would be SO nice to meet you all!
Anyway, just touching base.
Love,
Christine
_________________________
CG to my husband, Matt. Dx June 2009 Stage IV Oropharengeal SCC right tonsil primary with distant metastases. Rad to neck- Surgeries to lungs- Every avail chemo - ran out of options Jan 2012, called for hospice help Feb 2012, at rest March 19, 2012.
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#148052 - 04/09/12 11:48 PM
Re: Memories...
[Re: CMMoore]
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Patient Advocate (1000+ posts)
Registered: 01/02/09
Posts: 1811
Loc: Idaho
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Christine, thank you for sharing my dear friend. I love reading these updates, you've been on my heart.
Love you lady
Eric
_________________________
Young Frack, SCC T4N2M0, Cisplatin,35+ rads,ND, RT Mandiblectomy w fibular free flap, facial paralysis, "He who has a "why" to live can bear with almost any "how"." -Nietzche "WARNING" PG-13 due to Sarcasm & WAY too much attitude, interact at your own risk.
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#148059 - 04/10/12 11:38 AM
Re: Memories...
[Re: EricS]
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"Above & Beyond" Member (500+ posts)
Registered: 07/15/11
Posts: 707
Loc: Ohio
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Christine,
our three acres attach us to the earth and the turning of the seasons; I hope you are able to manage your own patch of green (and the fabulous garage). Be sure to budget enough for the equipment to manage your property so it will be a joy and not overwhelming! Love and best wishes.
Maria
_________________________
Caregiver to husband - SCC Tonsil T1N2M0 HPV+ Never Smoker DX 12/2010
TX 40 IRMT (1.8 gy) + 10 Cetuximab
PET Scans 6/2011 and 3/2012 clear, 1/2013 physical exam clear
On thyroid pills. Getting slightly less sensitive to hot peppers, and can handle sweet hungarian paprika again. Life is good.
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#148060 - 04/10/12 12:28 PM
Re: Memories...
[Re: Maria]
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Platinum Member (300+ posts)
Registered: 11/30/09
Posts: 433
Loc: Ohio
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Christine,
Thank you for continuing to share with us. Buying the land sounds like a really neat idea. I'll bet Matt is smiling down on you right now.
_________________________
Female, nonsmoker, 67, diag. 5/09 after tongue biopsy: stage IV. Left hemi-gloss. and left selec. neck disec. 30 lymph nodes removed May 20. Over 7 weeks daily rads. with three chemo. PEG removed 12/4/09 Am eating mostly soft foods. Back to work 11/09 Retired 4/1/11. 6 clear scans! Port out 9/11.
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#148067 - 04/10/12 04:18 PM
Re: Memories...
[Re: zengalib]
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Administrator, OCF Ambassador at Large
Patient Advocate (old timer, 2000 posts)
Registered: 06/23/07
Posts: 6713
Loc: PA
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Christine, its nice to read your positive updates. Glad you enjoyed yourself over the weekend. Buying the property would be a good fresh start for your family. Hope it all works out for you.
_________________________
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 rad end 9/27/07, no caregiver Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 155 HBO,trismus 3/09 teeth out 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma, 2 mo hospital PICC line IV antibiotics 8 mo 10/4/10, 2/14/11 reconst surg OC 3 times in 3 years very happy to be alive
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#148077 - 04/10/12 10:25 PM
Re: Memories...
[Re: ChristineB]
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Gold Member (200+ posts)
Registered: 07/01/09
Posts: 280
Loc: MO, USA
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Glad you all don't mind the continued updates... I am totally addicted to talking to you all :P
_________________________
CG to my husband, Matt. Dx June 2009 Stage IV Oropharengeal SCC right tonsil primary with distant metastases. Rad to neck- Surgeries to lungs- Every avail chemo - ran out of options Jan 2012, called for hospice help Feb 2012, at rest March 19, 2012.
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#148081 - 04/11/12 02:08 AM
Re: Memories...
[Re: CMMoore]
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Patient Advocate (old timer, 2000 posts)
Registered: 11/03/06
Posts: 2220
Loc: TN
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Your updates are a wonderful inspiration to everyone here. It's great to see that there is a beautiful life possible after coming though the dark tunnel of the big "C".
_________________________
Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)
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