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#148032 - 04/09/12 08:40 PM Re: Am I Crazy [Re: SUEZ]
KP5 Offline
"Above & Beyond" Member (500+ posts)

Registered: 10/09/11
Posts: 795
Loc: NY
If he's itching he's allergic. That what they told me anyway. I had taken Vicodin for a torn hamstring. It was fine for a week or so, but then I would literally claw myself til I was bleeding. They said to stop it immediately.
Kevin took Lortab. He was in a GREAT mood from it. Just FYI.
Kathy
_________________________
Kathy wife/caregiver to:
Kevin age:53
Dx 7/15/11
HPV16+ SCC Stage IV BOT/R
Non smoker, casual drinker
7/27/11 Cistplatin, taxotere,5FU 2/3week sessions, followed by IMRT 125cgy x 60 (2x daily) w/Erbitux weekly. Last rad 10/26/11. Last Erbitux 10/27/11
PEG placed 9/1/11 Removed 11/8/11
Clear PET 10/2012

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#148051 - 04/10/12 06:45 AM Re: Am I Crazy [Re: KP5]
EricS Offline
Patient Advocate (1000+ posts)

Registered: 01/03/09
Posts: 1844
Loc: Idaho
Actually Kathy itching is a common non-allergic reaction to most opiates. Here is a link to an article that explains it a little better than I could, however it has to do with the opiate receptors. It's an interesting read

http://www.sciencedaily.com/releases/2011/10/111013121516.htm
_________________________
Young Frack, SCC T4N2M0, Cisplatin,35+ rads,ND, RT Mandiblectomy w fibular free flap, facial paralysis, "He who has a "why" to live can bear with almost any "how"." -Nietzche "WARNING" PG-13 due to Sarcasm & WAY too much attitude, interact at your own risk.

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#148062 - 04/10/12 07:37 PM Re: Am I Crazy [Re: EricS]
SUEZ Offline
"Above & Beyond" Member (500+ posts)

Registered: 07/21/10
Posts: 531
Loc: AURORA, OH
Ya it's weird, cuz I have a cough medicine prescription for Hydrocodone I think it is and all of sudden when I took it before I went to bed when I needed it last time I started friggin itchin like crazy!! So I just thought it was me. So I had to take it again I only took it when I needed it for bad coughing spells WHICH I learned were really from my GERD and Nexium fixed that as well as my burning mouth! Whew I got scared there for a bit but anyway I took it again and damn if I didn't claw myself to near death again so guess what I don't take anymore! Yep. I have to read that up there Eric to find out why it just happened to me after all the years I've taken it before and it never happened. What is Lortab? Oh I'll look it up lol.
_________________________
CG to Ron
Out of Pain 4/3/13
4/12-lung and under chin growth no treatment
1/13/12 lung biopsy
6/11 recur 6/30 resection #2 Clear margins
Clear 12/10
Surg 5/13/10 neck dis/nodes part gloss/flap R thigh all teeth out
RAD 30 8/10
DX 4/2/10 "Oral Cavity" T3NOMO
12/28/07 Non Hodg Lymph remission 7/08

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#148071 - 04/11/12 01:49 AM Re: Am I Crazy [Re: SUEZ]
KP5 Offline
"Above & Beyond" Member (500+ posts)

Registered: 10/09/11
Posts: 795
Loc: NY
Really Eric? I will read up cuz' they acted like it could kill me and told me to stop taking it right away. Even if it wasn't that dangerous, the itching was so horrible even the pain was better. Thanks for the info!!
_________________________
Kathy wife/caregiver to:
Kevin age:53
Dx 7/15/11
HPV16+ SCC Stage IV BOT/R
Non smoker, casual drinker
7/27/11 Cistplatin, taxotere,5FU 2/3week sessions, followed by IMRT 125cgy x 60 (2x daily) w/Erbitux weekly. Last rad 10/26/11. Last Erbitux 10/27/11
PEG placed 9/1/11 Removed 11/8/11
Clear PET 10/2012

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#148405 - 04/17/12 07:52 AM Re: Am I Crazy [Re: KP5]
MargieL Offline
"OCF Down Under"
Supporting Member (50+ posts)

Registered: 06/19/08
Posts: 51
Loc: Coffs Harbour, Australia
Thank you all for your replies....some gave me a good laugh...which is probably what I needed.
the only medication which gives me some reprieve from the pain is Ordine which not takes he pain away but also makes me feel better within my self. I dont know what it is called in the northern hemisphere but will look it up and post it on here.
Margie
_________________________
SCC Base of tongue stage 4. 10 hour operation Radical neck dissection and hemiglossectomy 23/10/06 35 Rad treatments and 3 high dose Cistplatin Dec 06 - Feb 07. Ex casual smoker 6 to 8 a day - casual drinker. Very fit and diet conscious.

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#149631 - 05/16/12 04:27 AM Re: Am I Crazy [Re: zengalib]
CubanKeith Offline
"OCF across the pond"
Contributing Member (25+ posts)

Registered: 04/28/12
Posts: 47
Loc: London UK
dear am i crazy, possibly you are? Mad as a brush?
I chose this thread because I wish to ask the same question? I am fairly new and am all set to start a 15 week journey into hell?
I have two lovely daughters 2 and 3 I used to run marathons and do Triathlons. I have no pain no discomfort but have squalumus cells in a lymph gland that resemble a Bollock.(But on my neck)I was feeling the centre of attention and (warpped thinking)enjoying a break from work? Lovely nice people looking after me. The point is are you saying was it all worth it and quality of life and all that?
It is always worth it, the grand children adore you,you gave up smoking,sound like you have let your drinking fall away, I would recommend a Mojito on a sunny day and a single malt maybe Lauguvalin when the melancholy hits and loose the casual give the whisky the attention it deserves. These are 'Big Man' times to scream at the Moon. Your post helped me.

Since they took out eight healthy teeth and I am looking at and just becoming aware that the Rad damage is nasty and long lastin.I have lost my sense of humour.
I want them to say its a misdignosis? I want to be there when my daughter is 30? Iam 53 now. If I run and hide and decline treatment do I get swallowed up by Cancer in 3 or 4 years?
Sorry if its all me me me.On your post. I am learning the protocols?
I cant even right a good present history.
Pets, cats enescopy = Barrets disease one week of oesophagus cancer nightmare me jumping the gun.Now its root of tongue pea shaped primary,large lymph node General> biopsi. HPV host with one lymph node SCC.
Next Thursday Picc line insertion.Then 6 weeks of chemo followed by 6 weeks of rad and chemo. I am going in painless and health and coming out a mess ??? Should I make a run for it??

[b]"I love you guys"[/b]








_________________________
21st March squall cells.Endescopy not oesophagus, ENT .April endo nose CAT MRI general Panendoscopy prim-HPV 16 base of left tongue one node-stage 2.23rd of May.14/5/12 9 teeth out.8/6/12 PICC inserted.11/6/12 1st Chemos 25/6/12 2nd Chemo Cisplatin5FU:27/6/12 PEG23/8/12 Radiation finished 1/9/12.

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#149650 - 05/16/12 01:42 PM Re: Am I Crazy [Re: CubanKeith]
Charm2017 Offline
Patient Advocate (old timer, 2000 posts)

Registered: 03/03/08
Posts: 3082
Loc: Alexandria VA
Cuban Keith
Quote:

If I run and hide and decline treatment do I get swallowed up by Cancer in 3 or 4 years?
YES and it will be more painful than you can even imagine.
Charm
_________________________
65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin

Passed away 4-29-13

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#149654 - 05/16/12 03:10 PM Re: Am I Crazy [Re: Charm2017]
EricS Offline
Patient Advocate (1000+ posts)

Registered: 01/03/09
Posts: 1844
Loc: Idaho
Keith,

You're relatively young my friend and should be able to withstand treatment fairly well. Don't let fear stop you from not taking the steps to keep you from spending precious time with those you love. Treatment is the only way to beat this disease, a disease that will kill you in an extremely painful manner, something I don't wish on anyone, or any family to have to witness.

We all understand how bad treatment is, some of us like Charm has had to endure it more than once. Keep your chin up, walk the road to be with your family and let us help you through.


You got this.

Eric
_________________________
Young Frack, SCC T4N2M0, Cisplatin,35+ rads,ND, RT Mandiblectomy w fibular free flap, facial paralysis, "He who has a "why" to live can bear with almost any "how"." -Nietzche "WARNING" PG-13 due to Sarcasm & WAY too much attitude, interact at your own risk.

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#149686 - 05/18/12 12:42 PM Re: Am I Crazy [Re: EricS]
davidcpa Offline

Administrator, Senior Patient Advocate
Patient Advocate (old timer, 2000 posts)

Registered: 09/28/06
Posts: 8309
Loc: Gulfport, Florida
Our experience on this site is that patients who refuse Tx are no longer associated with this world within a year and as Charm stated above this is possibly the last way I would want to die. Now please don't take this the wrong way BUT STOP YOUR WHINING AND EMBRACE THIS TX AND RID YOUR BODY OF THIS CANCER!!!
_________________________
David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 14, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.

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#149702 - 05/18/12 10:05 PM Re: Am I Crazy [Re: davidcpa]
tamvonk Offline
"OCF Kiwi Down Under"
"Above & Beyond" Member (500+ posts)

Registered: 03/11/11
Posts: 715
Loc: New Zealand
Yep. The time for self pity and denial has gone.
Time to just do it now.
You have to be here to see those little ones of yours grow up.
This treatment is very doable. We have done it . You too can do it. Hug your family, they need you.
Tammy
_________________________
Caregiver/advocate to Husband Kris age 59@ diagnosis
DX Dec '10 SCC BOT T4aN2bM0 HPV+ve.Cisplatin x3 35 IMRT.
PET 6/11 clear.
R) level 2-4 neck dissection 8/1/11 to remove residual node - necrotic with NED
Feb '12 Ca back.. 3/8/12 total glossectomy/laryngectomy/bilat neck dissection/partial pharyngectomy etc. clear margins. All nodes negative for disease. PEG in. March 2014 2 years post surgery .NED

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