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#147867 - 04/06/12 05:32 PM Re: Memories... [Re: CMMoore]  
Joined: Jun 2007
Posts: 9,750
ChristineB Online content
Administrator, Director of Patient Support Services
ChristineB  Online Content
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 9,750
PA
Hope you are able to enjoy yourself over the weekend. You were very smart to make lots of plans. Remember the good memories and know that Matt is smiling down on you.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
#147879 - 04/06/12 08:36 PM Re: Memories... [Re: CMMoore]  
Joined: Oct 2011
Posts: 805
KP5 Offline
"Above & Beyond" Member (500+ posts)
KP5  Offline
"Above & Beyond" Member (500+ posts)

Joined: Oct 2011
Posts: 805
NY
Happy Anniversary Honey!! Yes, very glad you are getting out with your girlfriends. Relax and have a good time.
Thinking of you daily. Wish we could all have a party night together!
Love,
Kathy


Kathy wife/caregiver to:
Kevin age:53
Dx 7/15/11
HPV16+ SCC Stage IV BOT/R
Non smoker, casual drinker
7/27/11 Cistplatin, taxotere,5FU 2/3week sessions, followed by IMRT 125cgy x 60 (2x daily) w/Erbitux weekly. Last rad 10/26/11. Last Erbitux 10/27/11
PEG placed 9/1/11 Removed 11/8/11
Clear PET 10/12 and 10/13 and ct in 6/14
#148049 - 04/10/12 05:13 AM Re: Memories... [Re: CMMoore]  
Joined: Jan 2011
Posts: 571
Sandy177 Offline
"Above & Beyond" Member (500+ posts)
Sandy177  Offline
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Joined: Jan 2011
Posts: 571
California
Love you, girl!

I agree with Wanda. Sometimes when we need them the most, they show up. I was cleaning out my mom's stuff and setting stuff aside for Goodwill. I was so sad. I reached in a coat pocket and found a tissue with a perfect lipstick lip print on it. It was like getting one more kiss from my mom.

Matt loved you tremendously. I am so happy that you have things he wrote and said to reassure you that you were loved and appreciated. Too many people let those words go unsaid and unwritten. That's tragic.

Sending hugs,
Sandy
xoxox



Ex-spouse MISDIAGNOSED with SCC-HN IVa 12/10. Tonsils out 1/11. 4 teeth out 2/11. TX Erbitux x2, IMRT x2 2/11. 2nd opinion-benign BCC-NOT CANCER 3/11. TX stopped 3/11. New doctors 4/11. ENT agrees with 2nd opinion 5/11. ENT scoped him-all clear 7/11. Ordered MRI anyway. MRI 8/22/11 Result-all clear.
#148050 - 04/10/12 05:47 AM Re: Memories... [Re: KP5]  
Joined: Jul 2009
Posts: 280
CMMoore Offline
Gold Member (200+ posts)
CMMoore  Offline
Gold Member (200+ posts)

Joined: Jul 2009
Posts: 280
MO, USA
Friday night I kept very busy, saw an awesome band, drank a LOT and hand fun. Saturday got 4 inches chopped off my hair for the summer. Went for a long peaceful drive through the country and found a CUTE property with 5 acres. It's on a dirt road, but not far from a highway. There is a creek just across the road. A huge garage/shop where my son and I could build a hot rod or start making demo derby cars (we have several fun ideas to keep us busy) Trees are everywhere so lots of rock gardens hammocks and little oasis opportunities to be created.
Would be such a nice place to heal.
When I mentioned it to my brother, he laughed really big and then showed me on a map that the property he wants to buy is about a mile due north across the creek from it. The kids would all certainly love that!
As much as I love the city and all that there is to do, I am just a country girl at heart.

Kathy, I agree, it would be SO nice to meet you all!

Anyway, just touching base.

Love,
Christine


CG to my husband, Matt. Dx June 2009 Stage IV Oropharengeal SCC right tonsil primary with distant metastases. Rad to neck- Surgeries to lungs- Every avail chemo - ran out of options Jan 2012, called for hospice help Feb 2012, at rest March 19, 2012.
#148052 - 04/10/12 06:48 AM Re: Memories... [Re: CMMoore]  
Joined: Jan 2009
Posts: 1,844
EricS Offline
Patient Advocate (1000+ posts)
EricS  Offline
Patient Advocate (1000+ posts)

Joined: Jan 2009
Posts: 1,844
Idaho
Christine, thank you for sharing my dear friend. I love reading these updates, you've been on my heart.

Love you lady

Eric


Young Frack, SCC T4N2M0, Cisplatin,35+ rads,ND, RT Mandiblectomy w fibular free flap, facial paralysis, "He who has a "why" to live can bear with almost any "how"." -Nietzche "WARNING" PG-13 due to Sarcasm & WAY too much attitude, interact at your own risk.
#148059 - 04/10/12 06:38 PM Re: Memories... [Re: EricS]  
Joined: Jul 2011
Posts: 945
Maria Offline
"Above & Beyond" Member (500+ posts)
Maria  Offline
"Above & Beyond" Member (500+ posts)

Joined: Jul 2011
Posts: 945
Ohio
Christine,
our three acres attach us to the earth and the turning of the seasons; I hope you are able to manage your own patch of green (and the fabulous garage). Be sure to budget enough for the equipment to manage your property so it will be a joy and not overwhelming! Love and best wishes.
Maria


CG to husband - SCC Tonsil T1N2M0 HPV+ Never Smoker
First symptoms 7/2010, DX 12/2010
TX 40 IRMT (1.8 gy) + 10 Cetuximab
PET Scans 6/2011 + 3/2012 clear, 5 year physical exam clear; chest CT's clear of cancer. On thyroid pills. Life is good.
#148060 - 04/10/12 07:28 PM Re: Memories... [Re: Maria]  
Joined: Nov 2009
Posts: 493
zengalib Offline
Platinum Member (300+ posts)
zengalib  Offline
Platinum Member (300+ posts)

Joined: Nov 2009
Posts: 493
NW Ohio
Christine,
Thank you for continuing to share with us. Buying the land sounds like a really neat idea. I'll bet Matt is smiling down on you right now.


Female, nonsmoker, 70, diag. 5/09 after tongue biopsy: stage IV. Left hemi-gloss. and left selec. neck disec. 30 lymph nodes removed May 20. Over 7 weeks daily rads. with three chemo. PEG removed 12/4/09 Am eating mostly soft foods. Back to work 11/09 Retired 4/1/11. 7 clear scans! Port out 9/11. 2/13. It's back: base of tongue, very invasive
surgery involving lifestyle changes. 2/14: Now speaking w/Passey-Muir valve. Considering a swallow study. Grateful to be alive.
#148067 - 04/10/12 11:18 PM Re: Memories... [Re: zengalib]  
Joined: Jun 2007
Posts: 9,750
ChristineB Online content
Administrator, Director of Patient Support Services
ChristineB  Online Content
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 9,750
PA
Christine, its nice to read your positive updates. Glad you enjoyed yourself over the weekend. Buying the property would be a good fresh start for your family. Hope it all works out for you.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
#148077 - 04/11/12 05:25 AM Re: Memories... [Re: ChristineB]  
Joined: Jul 2009
Posts: 280
CMMoore Offline
Gold Member (200+ posts)
CMMoore  Offline
Gold Member (200+ posts)

Joined: Jul 2009
Posts: 280
MO, USA
Glad you all don't mind the continued updates... I am totally addicted to talking to you all :P


CG to my husband, Matt. Dx June 2009 Stage IV Oropharengeal SCC right tonsil primary with distant metastases. Rad to neck- Surgeries to lungs- Every avail chemo - ran out of options Jan 2012, called for hospice help Feb 2012, at rest March 19, 2012.
#148081 - 04/11/12 09:08 AM Re: Memories... [Re: CMMoore]  
Joined: Nov 2006
Posts: 2,671
Anne-Marie Offline
Patient Advocate (old timer, 2000 posts)
Anne-Marie  Offline
Patient Advocate (old timer, 2000 posts)

Joined: Nov 2006
Posts: 2,671
TN
Your updates are a wonderful inspiration to everyone here. It's great to see that there is a beautiful life possible after coming though the dark tunnel of the big "C".


Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)



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