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#144469 - 01/03/12 10:28 PM Re: List of Easy Foods [Re: SUEZ]  
Joined: Jul 2011
Posts: 945
Maria Offline
"Above & Beyond" Member (500+ posts)
Maria  Offline
"Above & Beyond" Member (500+ posts)

Joined: Jul 2011
Posts: 945
Ohio
A trick that I do with harsh, raw veggies is to microwave them for a minute or two. When I do potato salad, I microwave the celery and onion before adding them to the other ingrediants.


CG to husband - SCC Tonsil T1N2M0 HPV+ Never Smoker
First symptoms 7/2010, DX 12/2010
TX 40 IRMT (1.8 gy) + 10 Cetuximab
PET Scans 6/2011 + 3/2012 clear, 5 year physical exam clear; chest CT's clear of cancer. On thyroid pills. Life is good.
#146771 - 03/05/12 03:46 AM Re: List of Easy Foods [Re: davidcpa]  
Joined: Feb 2012
Posts: 38
seattlepaul Offline
Contributing Member (25+ posts)
seattlepaul  Offline
Contributing Member (25+ posts)

Joined: Feb 2012
Posts: 38
Washington
One nice thing about OC, lets you think outside the box; mix foods you'd never otherwise.
Carrot salad w/raisons + canned pears
Yogurt/apple/bannana/cinnamon/bran muffin + cream of wheat
whole grain bread & milk or Mtn Dew or coffee.
Chinese wife makes boneless whitefish Chinese fashion (boiled in WOK), when osterized, is great break from chicken/beef tastes.
Wheat noodles mixed with anything makes the "anything" slippery, ditto with ensure.
I've found I can eat anything I like, as long as I can find a compatible liquid to liquidify it with.
Coffee is good liquid to add to fruit/vegies/bran muffins.
Be sure to add your fiber powers, nothing worse than constipion on puree diet
Since eating is no longer fun, you have to inject something 'odd' into it to make it interesting.

Last edited by seattlepaul; 03/05/12 03:47 AM.

69yo male, Steam Engineer, Me=4,SCC=0, loving wife, living life as it comes (no other option)
We are all born from Mother, but live and die alone.
Make the best of it, Mommie did all she could, daddy was just a guidance councelor, the rest is ALL up to you.
...and now, 3rd occurance: Surgery 5/1/12
#147502 - 03/28/12 01:14 AM Re: List of Easy Foods [Re: EzJim]  
Joined: Jun 2007
Posts: 9,469
ChristineB Offline
Administrator, Director of Patient Support Services
ChristineB  Offline
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 9,469
PA
I have found a liquid high protein drink that I began using about a week ago. I think it might be helpful to other OCF members who also struggle to get enough protein in their diets. Its 25 grams of protein in 2.9 oz. I buy mine at Rite Aid but it is easily available thru the OCF Amazon link too. I dont care for the taste but it does come in many different flavors, I put it in my J/G tube.


Last edited by Brian Hill; 03/29/12 04:14 AM.

Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07, no caregiver
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo extended hospital stay, ICU & burn unit
PICC line w/ IV antibiotics 8 mo
10/4/10, 2/14/11 reconst surg
OC 3 times in 3 years
very happy to be alive smile
#147591 - 03/30/12 01:22 PM Re: List of Easy Foods [Re: ChristineB]  
Joined: Jul 2010
Posts: 531
SUEZ Offline
"Above & Beyond" Member (500+ posts)
SUEZ  Offline
"Above & Beyond" Member (500+ posts)

Joined: Jul 2010
Posts: 531
AURORA, OH
Baked Beans is Ron's favorite meal as of the past 3 weeks. I make a smaller roaster of them and he eats them ALLLL week long, he is exclaiming how his umm "bodily functions" are working quite well daily. smile that's a good thing I told him! Also he's actually been getting down Fresh Strawberries with sugar on them. Whatever it takes and whatever he wants go for it! Also I made Tuna patties yesterday recipe from the back of one of those packets of Tuna Herb and Garlic seasoning and he ate half of one with some Miracle Whip to help it down. Wow look at him go!! Finally his mouth is feeling so much better he isn't in pain from it like he has been. Fingers crossed it is finally healing up. So happy to see him eat again! And that's without teeth and his flap sewn down! But he still refuses to drink any liquids to help swallow. Good for him! Keep them muscles going.


CG to Ron
Out of Pain 4/3/13
4/12-lung and under chin growth no treatment
1/13/12 lung biopsy
6/11 recur 6/30 resection #2 Clear margins
Clear 12/10
Surg 5/13/10 neck dis/nodes part gloss/flap R thigh all teeth out
RAD 30 8/10
DX 4/2/10 "Oral Cavity" T3NOMO
12/28/07 Non Hodg Lymph remission 7/08
#148046 - 04/10/12 03:45 AM Re: List of Easy Foods [Re: Cookey]  
Joined: Feb 2012
Posts: 26
mick Offline
Contributing Member (25+ posts)
mick  Offline
Contributing Member (25+ posts)

Joined: Feb 2012
Posts: 26
boston,ma
everyone has a different reaction to their treatment. i also thought tomato sauces would be bad, but i had no problem, which was great because i could carbo up on pasta. try anything to get the calories and just find what works


after 3 sarcma flr mouth,fially removed, reconstruct from thigh muscle. 1/2 saliva glands removed, plus more glands than i can remember
#148336 - 04/16/12 12:23 AM Re: List of Easy Foods [Re: davidcpa]  
Joined: Apr 2012
Posts: 32
KenEggman Offline
Contributing Member (25+ posts)
KenEggman  Offline
Contributing Member (25+ posts)

Joined: Apr 2012
Posts: 32
VA, USA
Thanks for all the good info. Great suggestions.
Ken


48YO M, hlthy, xsmkr(quit 14yrs ago), mod drinkr
1 mo sore throat w/neck lump 3/12
SCC tonsil, lym nodes
4/12/12 rad tonslctmy, mets in lymph nodes
5/8 PEG, 5/10 PORT 7/3/12 Last Chemo (Cisplatin)| 7/10/12 Last RAD | 9/6/12 MRI=No New Cancer
BSA Scout Ldr w/strng desire to live & beat cancer
#149267 - 05/08/12 01:31 PM Re: List of Easy Foods [Re: ChristineB]  
Joined: Feb 2012
Posts: 117
John of arc Offline
Senior Member (100+ posts)
John of arc  Offline
Senior Member (100+ posts)

Joined: Feb 2012
Posts: 117
New York
What do you do when everything makes your tongue burn?


Taking a break from the forum for a while. Thank you so much for your support if you've been supportive.
#149268 - 05/08/12 01:48 PM Re: List of Easy Foods [Re: John of arc]  
Joined: Jan 2009
Posts: 1,844
EricS Offline
Patient Advocate (1000+ posts)
EricS  Offline
Patient Advocate (1000+ posts)

Joined: Jan 2009
Posts: 1,844
Idaho
Ask your Dr for Magic Mouthwash, it has lidocaine in it and will help with the burning. Pain meds should be your friend at the moment


Young Frack, SCC T4N2M0, Cisplatin,35+ rads,ND, RT Mandiblectomy w fibular free flap, facial paralysis, "He who has a "why" to live can bear with almost any "how"." -Nietzche "WARNING" PG-13 due to Sarcasm & WAY too much attitude, interact at your own risk.
#149276 - 05/08/12 04:54 PM Re: List of Easy Foods [Re: EricS]  
Joined: May 2012
Posts: 25
PepperPotts Offline
Contributing Member (25+ posts)
PepperPotts  Offline
Contributing Member (25+ posts)

Joined: May 2012
Posts: 25
South Carolina
I haven't had to have radiation or chemo but my tongue has felt as if it was burning from pretty much right after my surgery. My surgeon prescribed viscous lidocaine - it doesn't taste great but it helps a lot. I take some gauze and pretty much kind of soak it with the lidocaine and shove that in my mouth - just sort of leave it in there - right at the spot where my stitches are on my tongue - it takes a little bit to work but when it does, it is a HUGE relief. That stuff has saved me because the burning I was feeling was pretty intense and Lortab wasn't helping that at all.

For what to eat - I have a "Magic Bullet" which is basically a little blender system that blends 1-cup at a time. I became quite proficient at pulverizing chicken noodle soup to the right consistency so that I could take it through a straw. I also added a teaspoon of metamucil for fiber since all the meds can make you constipated. I tell you, it works like a charm and I was able to get all my protein that way. The Home Health people came by to check on me after surgery because they were going to teach me to feed myself through the feeding tube at home but I didn't need it when they saw how I was able to manage soups and such through a straw.

Gross as it may sound, I stocked up on some basic baby foods - I would use the green beans and sweet potato baby food and mix it with some chicken noodle soup and pulverize it in my bullet until I got it to the right consistency and that way I got my protein from the chicken, carbs from the noodles and veggies. The home health lady was a bit surprised but she said i was doing great. I was determined not to have the feeding tube when I left the hospital so that was my goal.

I use Biotene mouthwash and it doesn't irritate me at all - I also use their toothpaste because it doesn't burn like regular toothpastes do.

I have to be careful with some fruit juices because the acidity makes them burn my mouth - some tomato sauces, too...

Plain mashed potatoes were great when I wanted something a little more substantial but I still couldn't do anything solid... I also had cream of wheat but that can be challenging because you really, really have to rinse well afterward.


Carpe Diem!!
38, non-smoker, otherwise perfect health. Biopsy: 3/8/2012, SCC Dx Right Underside Tongue: 3/12/2012, Surgery: 4/11/2012 Partial Gloss + Neck Dissection to remove 29 nodes (all clear). No Rads or Chemo req'd. I believe my SCC was caused by product used in dental work.
#157291 - 11/08/12 06:50 PM Re: List of Easy Foods [Re: ChristineB]  
Joined: Oct 2012
Posts: 118
Bette Offline
Senior Member (100+ posts)
Bette  Offline
Senior Member (100+ posts)

Joined: Oct 2012
Posts: 118
Central California
My husband loves Scandi-Shakes made with ice cream. I buy them on the internet. They're a little pricey but well worth it. 600 calories without the icecream and just made with milk. And they don't taste like medicine.


Bette/CG to husband Reggie 66

dx 1: SCC Soft Palate (12/06)
tx: chemo and rad

dx 2: SCC 6 cm tum rt. vocal chord (12/09)
tx: total laryngectomy with stoma, 2 nodes

dx 3: SCC 4 cm tum BOT (10/16/12)
Tx: partial gloss w/ mod deck dis 4 nodes incl. part. pharyngectomy
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