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MissBazinet #148030 04-09-2012 01:10 PM
Joined: Jul 2010
Posts: 531
"Above & Beyond" Member (500+ posts)
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"Above & Beyond" Member (500+ posts)

Joined: Jul 2010
Posts: 531
I haven't been on here for a while been very busy but as everybody has told you it will get better Marie. Hang in there. Believe me I was the B from hell with trying to get Ron to eat, I didn't understand the pain he was going thru but after joining I learned how much pain he WAS in and to be patient I cried out for help and I got it from all these wonderful folks on this forum. Now Ron is eating again, not like he used to but he is really eating alot more different foods and it just tickles his mom like crazy I thought she was going to cry when I told her on the phone to guess what he just ate for dinner and it was a very thin ribeye steak and small lobster tail! And Yes salt bothered the heck out of him and I just didn't get it especially after that man put salt heavily on everything he ate BEFORE the cancer and pepper...eh he will put some on some things now as well as salting and he eats vinegar on his spinach and he so loved tomato soup that he just let the burn go and eat his tomato soup or stewed tomatoes. And taste is smell, you do have tastebuds and I don't know exactly where which ones are at but you can look that up online. Good Luck my young friend and hang in there!! I still have to get Ron to try darn pancakes or waffles I keep telling him...thanks for reminding me! smile


CG to Ron
Out of Pain 4/3/13
4/12-lung and under chin growth no treatment
1/13/12 lung biopsy
6/11 recur 6/30 resection #2 Clear margins
Clear 12/10
Surg 5/13/10 neck dis/nodes part gloss/flap R thigh all teeth out
RAD 30 8/10
DX 4/2/10 "Oral Cavity" T3NOMO
12/28/07 Non Hodg Lymph remission 7/08
passed away 4.3.15, RIP Ron, you are greatly missed
SUEZ #148037 04-09-2012 03:07 PM
Joined: Jun 2007
Posts: 10,507
Likes: 6
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)
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Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 10,507
Likes: 6
Glad to hear you are working hard at keeping up your calories. That will make a huge difference in how you feel. Right now your body is working so hard fighting this and trying to rebuild itself that you are burning up calories at an amazing pace. Push yourself to get a minimum of 2500 calories and 48 oz of water every single day. You probably have realized you cant skimp one day and make it up the next. If you can hit 3000 calories and 60 oz of water or more thats even better!

Hang in there and before you know it this will be over and you will be in recovery mode. Next month this time you will be feeling much better and it only gets better from there.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
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