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#148014 - 04/09/12 02:04 PM Ear Pain again  
Joined: Mar 2011
Posts: 124
MaineWill Offline
Senior Member (100+ posts)
MaineWill  Offline
Senior Member (100+ posts)

Joined: Mar 2011
Posts: 124
Portland Maine
So I'm starting to feel the same ear pain when I yawn that I used to get. It has me worried. I'm do for a scan at MHG anyway and will be going in the next week probably but I was wondering if anyone had any input concering post TX ear pain.
Thanks

Will


Lump in left side neck discovered Sept 2009
Misdiagnosed & FNA inconclusive
Large lymph node removed Nov. 2010 SCC and HPV16 pos
PET pointed tonsilectomy Feb. 2011
1ml tumor left side tonsil
Rads scheduled March 14th 2011. 2X36 GY's (72)
CarboTaxol once a week X 4 or 5 starting 4/5/11
No PEG
#148015 - 04/09/12 02:29 PM Re: Ear Pain again [Re: MaineWill]  
Joined: Dec 2010
Posts: 5,260
Cheryld Offline
"OCF Canuck"
Cheryld  Offline
"OCF Canuck"
Patient Advocate (old timer, 2000 posts)

Joined: Dec 2010
Posts: 5,260
Toronto canada
I sometimes get ear pain... Not all the time - if it's continuous have it looked at but rads causes fibrosis of the muscles, etc. so there are ocassionally some tender area. Ear paini find sometimes happens when I drink something, I think my swallow is off and it sometimes backwashes into my ear canal... Or you may just have an ear infection... Definitely have it checked out. Hugs - hopefully its nothing.


Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
#148017 - 04/09/12 02:33 PM Re: Ear Pain again [Re: Cheryld]  
Joined: Mar 2011
Posts: 124
MaineWill Offline
Senior Member (100+ posts)
MaineWill  Offline
Senior Member (100+ posts)

Joined: Mar 2011
Posts: 124
Portland Maine
I love you very much Cheryl and....your hair cut rocks!


Lump in left side neck discovered Sept 2009
Misdiagnosed & FNA inconclusive
Large lymph node removed Nov. 2010 SCC and HPV16 pos
PET pointed tonsilectomy Feb. 2011
1ml tumor left side tonsil
Rads scheduled March 14th 2011. 2X36 GY's (72)
CarboTaxol once a week X 4 or 5 starting 4/5/11
No PEG
#148021 - 04/09/12 05:30 PM Re: Ear Pain again [Re: MaineWill]  
Joined: Dec 2010
Posts: 5,260
Cheryld Offline
"OCF Canuck"
Cheryld  Offline
"OCF Canuck"
Patient Advocate (old timer, 2000 posts)

Joined: Dec 2010
Posts: 5,260
Toronto canada
smile it's my post rad hair!,, thanks! AnneO posted to someone else in a post just below yours also about ear pain - she was talking about TMJ read her post - it also is relevant! Hugs and keep on trucking!l you'll get through it. I have an appointment with my SO weekday..
Hoping for an all clear... smile for both of us!


Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
#148035 - 04/09/12 09:52 PM Re: Ear Pain again [Re: Cheryld]  
Joined: Jun 2007
Posts: 9,471
ChristineB Online content
Administrator, Director of Patient Support Services
ChristineB  Online Content
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 9,471
PA
Hope it turns out to be nothing serious, Will. I will be watching for your update saying you are good for another 6 months smile


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07, no caregiver
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo extended hospital stay, ICU & burn unit
PICC line w/ IV antibiotics 8 mo
10/4/10, 2/14/11 reconst surg
OC 3 times in 3 years
very happy to be alive smile
#148074 - 04/11/12 03:57 AM Re: Ear Pain again [Re: ChristineB]  
Joined: Mar 2011
Posts: 124
MaineWill Offline
Senior Member (100+ posts)
MaineWill  Offline
Senior Member (100+ posts)

Joined: Mar 2011
Posts: 124
Portland Maine
Thanks Christine, I'm actually really worried about this. Getting strange feelings in throat and ear similar to what I had before my diagnosis. making a CT apt. tomorrow.


Lump in left side neck discovered Sept 2009
Misdiagnosed & FNA inconclusive
Large lymph node removed Nov. 2010 SCC and HPV16 pos
PET pointed tonsilectomy Feb. 2011
1ml tumor left side tonsil
Rads scheduled March 14th 2011. 2X36 GY's (72)
CarboTaxol once a week X 4 or 5 starting 4/5/11
No PEG
#148096 - 04/11/12 03:17 PM Re: Ear Pain again [Re: MaineWill]  
Joined: Dec 2010
Posts: 5,260
Cheryld Offline
"OCF Canuck"
Cheryld  Offline
"OCF Canuck"
Patient Advocate (old timer, 2000 posts)

Joined: Dec 2010
Posts: 5,260
Toronto canada
Hi there... I am keeping my fingers crossed this is a side effect and nothing more... hugs dear... and god bless.


Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
#148495 - 04/19/12 01:06 PM Re: Ear Pain again [Re: Cheryld]  
Joined: Mar 2011
Posts: 124
MaineWill Offline
Senior Member (100+ posts)
MaineWill  Offline
Senior Member (100+ posts)

Joined: Mar 2011
Posts: 124
Portland Maine
CT scan yesterday. Results tomorrow I'm guessing. I have a bad feeling. Headaches, ear pain, all the stuff I had prior to tx.


Lump in left side neck discovered Sept 2009
Misdiagnosed & FNA inconclusive
Large lymph node removed Nov. 2010 SCC and HPV16 pos
PET pointed tonsilectomy Feb. 2011
1ml tumor left side tonsil
Rads scheduled March 14th 2011. 2X36 GY's (72)
CarboTaxol once a week X 4 or 5 starting 4/5/11
No PEG
#148501 - 04/19/12 04:34 PM Re: Ear Pain again [Re: MaineWill]  
Joined: Apr 2012
Posts: 10
ilyse Offline
Member
ilyse  Offline
Member

Joined: Apr 2012
Posts: 10
california
MaineWill,

Good luck with your scan. I have been there with the earpain. I pray it is nothing. I know the feeling. my last scan was not clear due to radiation. Next scan May 4th. Waiting is the hardest part. Again my thoughts are with you.























Ilyse
46 non smoker non drinker.
SCC stage 2 in 1999 and 2010.
Recurrence 2011. Stage 4. Modified neck, thyroid cancer found. 7 weeks IMRT/Chemo cisplatin. Aug - Sept 2011.
2012 shwanna tumor on right auditory nerve. Not Cancerous only 20% removed. Wll do Gamma
knife.

#148504 - 04/19/12 04:50 PM Re: Ear Pain again [Re: ilyse]  
Joined: Jun 2007
Posts: 9,471
ChristineB Online content
Administrator, Director of Patient Support Services
ChristineB  Online Content
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 9,471
PA
Sorry to hear you are having a problem. Please dont panic yet! Scar tissue can be a tricky thing and sure play some tricks on you making you think something is alot more serious than it is. Hope you can find some relief very soon. Please check back with your results no matter what they are. You have your OCF pals in your corner!


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07, no caregiver
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo extended hospital stay, ICU & burn unit
PICC line w/ IV antibiotics 8 mo
10/4/10, 2/14/11 reconst surg
OC 3 times in 3 years
very happy to be alive smile
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