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#147933 - 04/08/12 12:51 AM Vertigo from Radiation, SERC as medication?  
Joined: Apr 2012
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Cindyac1 Offline
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Cindyac1  Offline
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Joined: Apr 2012
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Canada
My mother had 29 radiation sessions last month to her cheek, she had minor salivary gland cancer and surgery in January, is experiencing terribly debilating vertigo (her oncologist said it is not from treatments...sure!) Should she do her last (30th) radiation session next week or forego it? The radiation will probably worsen the Vertigo. She can't get off the bed. And, is there a medication that can help, like SERC? "Meclizine" is no longer available in Canada. Also, can the vertigo be permanent damage? Thanks.

#147948 - 04/08/12 04:17 AM Re: Vertigo from Radiation, SERC as medication? [Re: Cindyac1]  
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Cheryld Offline
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Toronto canada
Hi since no one has answered I did a little research - first off vertigo - I do get it ocassionally - but its usually when I move too fast - so I chalk I up to hypotension, rather than rads damage- but with rads aimed at your cheek, or neck, it's definitely possible since there's generally a certain - amount of spray hat hits other areas. (inner ear?!!) that said I found a few postings similar to yours an meds didn't help but apparently There's such a thing as the brandt-daroff exercise for vertigo - and apparently others have had the same issue. As for the last rads -- I'd do it vertigo or no.god luck! Sendin healing vibe you moms way.


Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
#147960 - 04/08/12 02:05 PM Re: Vertigo from Radiation, SERC as medication? [Re: Cheryld]  
Joined: Mar 2012
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LBB Offline
"OCF Canuck"
LBB  Offline
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Posts: 15
Ontario, Canada
Hi Cindy,
I am sorry to hear that your mother is experiencing vertigo. I have had episodes of vertigo since the end of my radiation in July of 2009. Not to the point of being debilitating, but not very pleasant. I reached out to my Family MD and she suggested the Epley Maneuver to manage my bouts of vertigo. It might be helpful for you and your mother to speak with her MD about what is going on with her. FYI, my RO didn't really have much to offer by way of explanation or suggestions either but I find the Eply Maneuver works quite well for me when I am having episodic vertigo.
It is really important to get through the full course of radiation for your mother to have the best chance she can at survival. Hang in there, Cindy. Best of Luck and let us know how it goes! Take Care.


Lori - SCC R-Tongue, T1 / R-soft palate, T2 N1M0
Age 46 at DX
RT June - July 2009
#147974 - 04/08/12 06:36 PM Re: Vertigo from Radiation, SERC as medication? [Re: LBB]  
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Posts: 805
KP5 Offline
"Above & Beyond" Member (500+ posts)
KP5  Offline
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Joined: Oct 2011
Posts: 805
NY
Agreed. Do the last rads and then look into the Epley Maneuver. I had that done when I was having vertigo issues and it really helped.
Keep in touch,
Kathy


Kathy wife/caregiver to:
Kevin age:53
Dx 7/15/11
HPV16+ SCC Stage IV BOT/R
Non smoker, casual drinker
7/27/11 Cistplatin, taxotere,5FU 2/3week sessions, followed by IMRT 125cgy x 60 (2x daily) w/Erbitux weekly. Last rad 10/26/11. Last Erbitux 10/27/11
PEG placed 9/1/11 Removed 11/8/11
Clear PET 10/12 and 10/13 and ct in 6/14
#147986 - 04/08/12 11:33 PM Re: Vertigo from Radiation, SERC as medication? [Re: KP5]  
Joined: Jun 2007
Posts: 9,716
ChristineB Offline
Administrator, Director of Patient Support Services
ChristineB  Offline
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Joined: Jun 2007
Posts: 9,716
PA
Welcome to OCF, Cindy. Sorry but I do not have info about vertigo. Your mother should finish her treatments. In my opinion if you have to choose what is more important to cure, it is more important to get rid of the cancer than to suffer from vertigo.

PS... I deleted 2 of your other posts as they were exact duplicates of this post. Its only necessary to make one post per topic. This forum is not like others where it can take 2 weeks to get a response.

Best wishes with your mother's recovery.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
#147991 - 04/09/12 12:59 AM Re: Vertigo from Radiation, SERC as medication? [Re: ChristineB]  
Joined: May 2010
Posts: 638
klo Offline
"OCF Down Under"
klo  Offline
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"Above & Beyond" Member (500+ posts)

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Sydney Australia
I have read about this and someone on the forum talked about the sense of falling when descending stairs. The solution was not to look at his feet. Was it one of the Davids???


Karen
Love of Life to Alex T4N2M0 SCC Tonsil, BOT, R lymph nodes
Dx March 2010 51yrs. Unresectable. HPV+ve
Tx Chemo x 3+1 cycles(cisplatin,docetaxel,5FU)- complete May 31
Chemoradiation (IMRTx35 + weekly cisplatin)
Finish Aug 27
Return to work 2 years on
3 years out Aug 27 2013 NED smile
Still underweight
#148000 - 04/09/12 04:58 AM Re: Vertigo from Radiation, SERC as medication? [Re: klo]  
Joined: Jun 2007
Posts: 9,716
ChristineB Offline
Administrator, Director of Patient Support Services
ChristineB  Offline
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Posts: 9,716
PA
Ive heard mention of getting dizzy too. Cant remember who it was and not sure if vertigo was ever mentioned. I get dizzy easily too ever since getting cancer treatments.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
#148056 - 04/10/12 12:36 PM Re: Vertigo from Radiation, SERC as medication? [Re: ChristineB]  
Joined: Mar 2012
Posts: 15
LBB Offline
"OCF Canuck"
LBB  Offline
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Member

Joined: Mar 2012
Posts: 15
Ontario, Canada
Vertigo can feel like dizzy, or it can feel like whirling or spinning. I am usually lying down when it hits and it may sound funny to say, but it can sort of feel like you are falling too. To sleep, I had to lay inclined, which can cause a bit of a sore neck. At first, I thought it might be a withdrawal from pain meds. It kept happening, though, which lead me to seek medical advice. I am three years out from radiation and in my case, the vertigo has gotten less often.


Lori - SCC R-Tongue, T1 / R-soft palate, T2 N1M0
Age 46 at DX
RT June - July 2009
#148069 - 04/11/12 01:03 AM Re: Vertigo from Radiation, SERC as medication? [Re: LBB]  
Joined: Jul 2008
Posts: 507
DonB Offline
"Above & Beyond" Member (500+ posts)
DonB  Offline
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Posts: 507
San Diego, California
Likewise I started having vertigo after RT. My ENT diagnosed it, and explained what was going on, but wouldn't definitively say it was due to the RT.

Whenever it acts up I have to start doing the Epley Maneuvers. If the maneuvers don't re-orient the crystals in my right inner ear then I have to go to the clinic and they have a "motion chair" they strap me in with "sci-fi helmet" device hooked up to a computerized console and the audiologist will jossle me around in the chair until the problem is resolved.

I was told this can be a recurring problem for years and I seem to have it every four month or so, although it seems to be occuring less fequently.


Don
TXN2bM0 Stage IVa SCC-Occult Primary
FNA 6/6/08-SCC in node<2cm
PET/CT 6/19/08-SCC in 2nd node<1cm
HiRes CT 6/21/08
Exploratory,Tonsillectomy(benign),Right SND 6/23/08
PEG 7/3/08-11/6/08
35 TomoTherapy 7/16/08-9/04/08 No Chemo
Clear PET/CT 11/15/08, 5/15/09, 5/28/10, 7/8/11

#148083 - 04/11/12 10:02 AM Re: Vertigo from Radiation, SERC as medication? [Re: DonB]  
Joined: May 2010
Posts: 638
klo Offline
"OCF Down Under"
klo  Offline
"OCF Down Under"
"Above & Beyond" Member (500+ posts)

Joined: May 2010
Posts: 638
Sydney Australia
What is it with doctors that they won't admit to the treatment as the culprit or at least a possible suspect? Is it because they are frightened they will somehow be blamed, or maybe it is simply that they don't want to fill out the paperwork they are required to complete when an adverse event is reported to them?


Karen
Love of Life to Alex T4N2M0 SCC Tonsil, BOT, R lymph nodes
Dx March 2010 51yrs. Unresectable. HPV+ve
Tx Chemo x 3+1 cycles(cisplatin,docetaxel,5FU)- complete May 31
Chemoradiation (IMRTx35 + weekly cisplatin)
Finish Aug 27
Return to work 2 years on
3 years out Aug 27 2013 NED smile
Still underweight
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