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#147853 - 04/06/12 09:05 AM Sleep - lack of  
Joined: Apr 2012
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BuffaloFan Offline
Contributing Member (25+ posts)
BuffaloFan  Offline
Contributing Member (25+ posts)

Joined: Apr 2012
Posts: 30
Rochester NY USA
How does one deal when cannot get enough sleep? I have noticed I will get up 3 - 5 times during the night to read adjust my self or go to bathroom.



squamous cell carcinomas Stage 2, 1/26/2012. Surgery 2/15/2012 - Finished Chemo 5/18/2012 Finishing Radiation 5/29/2012
So make every minute count-Jump up, jump in and seize the day-And let's make sure that in every single possible way -Today is gonna to be a great day
#147856 - 04/06/12 12:33 PM Re: Sleep - lack of [Re: BuffaloFan]  
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EricS Offline
Patient Advocate (1000+ posts)
EricS  Offline
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Idaho
Oh the joys of insomnia...I know them well. I spent the better part of the last four years struggling with it, even after getting off the opiate pain meds, which notoriously cause insomnia. They actually activate areas of the brain that keep you awake so after you've developed a tolerance to them this is a common effect.

When I think back on my treatment days the sleep deprivation was probably the leading cause of my insanity, it was horrible. My Dr's tried it all too, low dose tricyclic antidepressants, benzodiazepines, Ambien/Lunesta, the works...and where I didn't find restful sleep I did have fun with the side effects of those drugs. My wife's stories of my Ambien/Lunesta sleepwalking experiences both crack me up and scare the hell out of me. Everything from running around outside in the harsh N.Idaho winters, in my pajamas, hunting ninjas on the roof (apparently sent by the government to kill me) to putting my wife in a choke hold, which is scary as I'm a lifelong wrestler and have studied/love ju-jitsu.

Medicinal Marijuana has been prescribed for insomnia (vaporized or injested, never smoked!) with good feedback from patients. My past experience with this I'll share that it did work very well for me in this area without the harsh and potential psychotic side effects of the other drugs listed above. There are side effects however that can be rather harsh, like your kids whining that you ate all of their Doritos, my wife slapping me for finishing off the Dove Chocolate bars she hides in the Freezer to appease her viscous addiction, or probably the worst...I had the hardest time fitting into my skinny jeans that really accented my posterior. Oh what we subject ourselves to due to cancer...

Anyway BuffaloFan, I hope you find something that works for you and eases your pain and brings you comfort, lord knows your football team hasn't been up to the task...says the Seattle Seahawks fan smile

Hope that helps!

Eric




Last edited by EricS; 04/06/12 12:52 PM. Reason: always spelling

Young Frack, SCC T4N2M0, Cisplatin,35+ rads,ND, RT Mandiblectomy w fibular free flap, facial paralysis, "He who has a "why" to live can bear with almost any "how"." -Nietzche "WARNING" PG-13 due to Sarcasm & WAY too much attitude, interact at your own risk.
#147864 - 04/06/12 05:21 PM Re: Sleep - lack of [Re: EricS]  
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ChristineB Online content
Administrator, Director of Patient Support Services
ChristineB  Online Content
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PA
Sorry to hear you have insomnia. I ended up taking a prescription sleeping pill on some nights where I couldnt sleep. Check with your doc if they can prescribe something that you can take occasionally. I would also wait to take the benedryl for my sinus issues until close to bedtime. Ive finished chemo/rads Sept 2007 and I still cant sleep right at night. Of course everybody is different and most wont have long lasting sleep problems. I just have too much on my mind to spend much time sleeping.





Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
#147868 - 04/06/12 05:34 PM Re: Sleep - lack of [Re: ChristineB]  
Joined: Apr 2012
Posts: 30
BuffaloFan Offline
Contributing Member (25+ posts)
BuffaloFan  Offline
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Joined: Apr 2012
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Rochester NY USA
Saw LNP today when I went for my first treatment. She recommend taking some benadryl before bed and this would help keep me a sleep. She also recommend not drinking water close, and if getting dry mouth take a sip not a gulp.


squamous cell carcinomas Stage 2, 1/26/2012. Surgery 2/15/2012 - Finished Chemo 5/18/2012 Finishing Radiation 5/29/2012
So make every minute count-Jump up, jump in and seize the day-And let's make sure that in every single possible way -Today is gonna to be a great day
#147872 - 04/06/12 05:44 PM Re: Sleep - lack of [Re: BuffaloFan]  
Joined: Jun 2007
Posts: 9,651
ChristineB Online content
Administrator, Director of Patient Support Services
ChristineB  Online Content
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Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 9,651
PA
You can also try some of the Biotene line of products. There is a mouth gel that helps keep your mouth moist.

Try sleeping with a humidifier. The extra moisture in the room can be a big help. Plus the sound of it can help to lull you to sleep.



Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
#147874 - 04/06/12 05:48 PM Re: Sleep - lack of [Re: ChristineB]  
Joined: Apr 2012
Posts: 30
BuffaloFan Offline
Contributing Member (25+ posts)
BuffaloFan  Offline
Contributing Member (25+ posts)

Joined: Apr 2012
Posts: 30
Rochester NY USA
Originally Posted By: ChristineB
Try sleeping with a humidifier. The extra moisture in the room can be a big help. Plus the sound of it can help to lull you to sleep.



I sleep with one and does not help with the sleep. Thanks for the suggestions. I think what I need right now is a big teddy bear


squamous cell carcinomas Stage 2, 1/26/2012. Surgery 2/15/2012 - Finished Chemo 5/18/2012 Finishing Radiation 5/29/2012
So make every minute count-Jump up, jump in and seize the day-And let's make sure that in every single possible way -Today is gonna to be a great day
#147877 - 04/06/12 08:07 PM Re: Sleep - lack of [Re: BuffaloFan]  
Joined: Jul 2011
Posts: 945
Maria Offline
"Above & Beyond" Member (500+ posts)
Maria  Offline
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Posts: 945
Ohio
I don't think there any one magic cure for insomnia - sometimes trying several things may help. Other stuff to try -
don't 'try' to sleep - just say I will rest and relax
meditative breathing - concentrating on following your breath in and out.
dvd's - movies you have already seen, but that are soothing to watch.
The teddy bear (or a nice memory foam pillow) isn't a bad idea
My neurologist friend recommends a lavender pillow to help with stress reduction. Now, I know that sounds wacky for a football fan, but seriously, why not give it a try.

Last edited by Maria; 04/06/12 08:16 PM. Reason: lavender

CG to husband - SCC Tonsil T1N2M0 HPV+ Never Smoker
First symptoms 7/2010, DX 12/2010
TX 40 IRMT (1.8 gy) + 10 Cetuximab
PET Scans 6/2011 + 3/2012 clear, 5 year physical exam clear; chest CT's clear of cancer. On thyroid pills. Life is good.
#147878 - 04/06/12 08:30 PM Re: Sleep - lack of [Re: Maria]  
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KP5 Offline
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KP5  Offline
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NY
One thought. Benadryl is used for allergies and to dry up the mucus/ runny nose as well as itchy watery eyes. Where there is already dry mouth potential, that would not be a good choice. Just my opinion!! Might want to try the Lunesta or Ambien instead, or just some good old Tylenol PM. You could also try Melatonin.
But really, the Benadryl dries me out terrible and I don't have dry mouth.
Kathy


Kathy wife/caregiver to:
Kevin age:53
Dx 7/15/11
HPV16+ SCC Stage IV BOT/R
Non smoker, casual drinker
7/27/11 Cistplatin, taxotere,5FU 2/3week sessions, followed by IMRT 125cgy x 60 (2x daily) w/Erbitux weekly. Last rad 10/26/11. Last Erbitux 10/27/11
PEG placed 9/1/11 Removed 11/8/11
Clear PET 10/12 and 10/13 and ct in 6/14
#147952 - 04/08/12 11:12 AM Re: Sleep - lack of [Re: BuffaloFan]  
Joined: Apr 2012
Posts: 30
BuffaloFan Offline
Contributing Member (25+ posts)
BuffaloFan  Offline
Contributing Member (25+ posts)

Joined: Apr 2012
Posts: 30
Rochester NY USA
I actually got 6 hours straight sleep with no meds!!!!!!!!


squamous cell carcinomas Stage 2, 1/26/2012. Surgery 2/15/2012 - Finished Chemo 5/18/2012 Finishing Radiation 5/29/2012
So make every minute count-Jump up, jump in and seize the day-And let's make sure that in every single possible way -Today is gonna to be a great day
#147956 - 04/08/12 12:33 PM Re: Sleep - lack of [Re: BuffaloFan]  
Joined: Nov 2006
Posts: 2,671
Anne-Marie Offline
Patient Advocate (old timer, 2000 posts)
Anne-Marie  Offline
Patient Advocate (old timer, 2000 posts)

Joined: Nov 2006
Posts: 2,671
TN
BuffaloFan - Fantastic! Do the happy dance! I know the feeling. Last time I had 6 hours straight sleep I was on vacation in Mexico.


Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)



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