| | Joined: Apr 2012 Posts: 3 Member | OP  Member
Joined: Apr 2012 Posts: 3 | Hi Everyone,
I'm a newbie. I was just told a biopsy of my tongue showed mild dysplasia of the squamous cell type and I am trying to get as informed as I can right now. I found this community and I hope I can learn from your advice.
I am a former second grade teacher living in the USA.
dianemary | | | | | Joined: Jan 2009 Posts: 1,844 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jan 2009 Posts: 1,844 | Hello Diane!
Welcome to OCF! Glad you found us, sorry you had to!
Fantastic News is that you've found this early. Early detection gives you the best chance for a favorable outcome with minimal side effects, less invasive procedures etc.
The best advice I've ever heard given to "newbies" is to get the absolute "best" medical advice available to you, which is a Comprehensive Cancer Center (CCC). At least as a second opinion if you are comfortable with your current medical team if it doesn't happen to be one. CCC's deal with cancers like this everyday and are usually up on all of the most current treatment protocols. Prudence saves lives when dealing with cancer and 2nds are just prudence.
After choosing your medical team, attitude and nutrition are all that you are really able to control as the rest is up to your medical team and how your body responds to treatment etc. What I've learned is that no matter what stage cancer is found in, or where it's found, support and guidance from those who've traveled a similar path is the just good sense. Strength in numbers.
Again, welcome, glad you found us!
Keep your chin up!
Eric
Young Frack, SCC T4N2M0, Cisplatin,35+ rads,ND, RT Mandiblectomy w fibular free flap, facial paralysis, "He who has a "why" to live can bear with almost any "how"." -Nietzche "WARNING" PG-13 due to Sarcasm & WAY too much attitude, interact at your own risk.
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 6 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 6 | Diane, welcome to OCF! Glad you have found the very best site for information. You are very very fortunate to get mild dysplasia results!!! The stats are that only 5-18% of patients diagnosed with epithelial dysplasia end up with getting oral cancer. It is a 'pre-cancer'. Not every patient who has dysplasia will become a cancer patient. There is lots of info on the main OCF pages about dysplasia. Here is a link to the info.... Dysplasia
Last edited by ChristineB; 04-03-2012 02:32 PM. Reason: + link
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: May 2009 Posts: 1,412 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: May 2009 Posts: 1,412 | Welcome. I agree with what Christine said. This is the best place for information. Glad you found us.
Angelia
31 at Dx.
DX: 4/30/09, 10/21/09 SCC on floor of mouth,
T1NOMO, T2N1M0
TX: 39 IMRT, 8 cisplatin 11/30/09
PET/CT: 11/03/09: Lymph node involvement
PEG/PORT: 11/09
TX end: 02/01/10
PET Scan: 04/05/10 clear
PEG Out: 06/21/10
Biopsy: 12/23/10: fibrosis
HBO: 01/04/11 - ORN
Baby girl born 11-30-12
| | | | | Joined: Dec 2010 Posts: 5,260 Likes: 3 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | | "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,260 Likes: 3 | Hi welcome. Keep a close eye I. The area and have it checked out regularly prevention is the best medicine! nice to meet you!
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
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