| | Joined: Mar 2012 Posts: 37 Contributing Member (25+ posts) | OP  Contributing Member (25+ posts)
Joined: Mar 2012 Posts: 37 | Hi my name is Marly, 2 years ago I was diagnosed with Tongue & Lymph Node Cancer. I just found your sight, I would love to be able to help other cancer patients with what they are going through. I am Happy to say that I am a Cancer Survivor!!! I had and still have a great support system within my family & friends.
Female- Age 49, Non-smoker, I Had 6 weeks of rad/30 treatments, No Chemo. 1/2 of my tongue had to be removed as well as Lymph Nodes. Surgery was 11 & 1/2 Hours long. 40 Lymph Nodes where removed, only one was cancerous.  My Motto since my diagnoses- It's All In The Attitude!!!
| | | | | Joined: Nov 2009 Posts: 493 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Nov 2009 Posts: 493 | Hi, Marly,
I was diagnosed almost three years ago with tongue and lymph node cancer as well. I, too, am a survivor. Yea! You have come to a great place. There are the most amazing people here that you will ever find. Tell us a little more of your story, and welcome!
Female, nonsmoker, 70, diag. 5/09 after tongue biopsy: stage IV. Left hemi-gloss. and left selec. neck disec. 30 lymph nodes removed May 20. Over 7 weeks daily rads. with three chemo. PEG removed 12/4/09 Am eating mostly soft foods. Back to work 11/09 Retired 4/1/11. 7 clear scans! Port out 9/11. 2/13. It's back: base of tongue, very invasive
surgery involving lifestyle changes. 2/14: Now speaking w/Passey-Muir valve. Considering a swallow study. Grateful to be alive.
| | | | | Joined: Mar 2012 Posts: 37 Contributing Member (25+ posts) | | OP Contributing Member (25+ posts)
Joined: Mar 2012 Posts: 37 | Hi zengalib, TY for the Welcome. I posted some of my story in Survivors Stories. I was very Blessed I did not have to have any Chemo just 6 weeks / 30 treatments of rad. My cancer was caught in the early stage, by the time I had surgery one month later I was stage 3. I am also a non-smoker, my doctors feel it was from second hand smoke. Only one Lymph Node was found to have cancer but all were removed on the one side of my neck.
Female- Age 49, Non-smoker, I Had 6 weeks of rad/30 treatments, No Chemo. 1/2 of my tongue had to be removed as well as Lymph Nodes. Surgery was 11 & 1/2 Hours long. 40 Lymph Nodes where removed, only one was cancerous. My Motto since my diagnoses- It's All In The Attitude!!!
| | | | | Joined: Aug 2007 Posts: 1,301 "OCF Down Under" Patient Advocate (1000+ posts) | | "OCF Down Under" Patient Advocate (1000+ posts)
Joined: Aug 2007 Posts: 1,301 | Welcome and glad you found us Marly. Also great to see that you have posted on the survivor forum and started your own blog. Even the quote at the end of your signature tells me you are going to be a great and helpful addition to our family  Congratulations on the 2 years. Gabriele
History Leukoplakia bx 8/2006 SCC floor mouth T3N0M0- Verrucous Carcinoma.
14 hour 0p SCC-Right ND/excision/marginal mandibulectomy 9/2006, 4 teeth removed, flap from wrist, trach-ng 6 days- no chemo/rad.
6 ops and debulking (flap/tongue join) + bx's 2006-2012.
bx Jan 2012 Hyperkeratosis-Epithelial Dysplasia
24cm GIST tumour removed 8/2013. Indefinite Oral Chemo.
1/31/16 passed away peacefully surrounded by family
| | | | | Joined: Mar 2012 Posts: 37 Contributing Member (25+ posts) | | OP Contributing Member (25+ posts)
Joined: Mar 2012 Posts: 37 | Hi Gabe, Thank You!!!  I had started a blog on world press & added more once I posted what i had written on this site. If I can help out even just one person it will be worth all that I have gone through in the past 2 years. It really helps to have a great support system too. I look forward this new journey I'm now on!!!!
Female- Age 49, Non-smoker, I Had 6 weeks of rad/30 treatments, No Chemo. 1/2 of my tongue had to be removed as well as Lymph Nodes. Surgery was 11 & 1/2 Hours long. 40 Lymph Nodes where removed, only one was cancerous. My Motto since my diagnoses- It's All In The Attitude!!!
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 6 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 6 | Marly, welcome to OCF! Always happy to have another survivor join our ranks helping others. I love your positive attitude
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | | Joined: Mar 2012 Posts: 37 Contributing Member (25+ posts) | | OP Contributing Member (25+ posts)
Joined: Mar 2012 Posts: 37 | Hi Christine, Thank You!!!! It really does help to be positive, cancer doesn't run my life I do!!!
Female- Age 49, Non-smoker, I Had 6 weeks of rad/30 treatments, No Chemo. 1/2 of my tongue had to be removed as well as Lymph Nodes. Surgery was 11 & 1/2 Hours long. 40 Lymph Nodes where removed, only one was cancerous. My Motto since my diagnoses- It's All In The Attitude!!!
| | | | | Joined: Nov 2009 Posts: 493 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Nov 2009 Posts: 493 | Hi, again, Marly, I only had one positive lymph node, also, but they took over 30 out. I did have chemo in addition to the radiation, though. So far, so good! I was stage IV, though, and they didn't mess around after I was diagnosed. I had the surgery less than 2 weeks after diagnosis. I am excited to be approaching 3 years. My doctors have no idea why I got it. I wasn't even around smokers very much, but my ENT said that it could be some type of virus, one that possibly hasn't even been discovered yet. I was also negative for HPV.
Female, nonsmoker, 70, diag. 5/09 after tongue biopsy: stage IV. Left hemi-gloss. and left selec. neck disec. 30 lymph nodes removed May 20. Over 7 weeks daily rads. with three chemo. PEG removed 12/4/09 Am eating mostly soft foods. Back to work 11/09 Retired 4/1/11. 7 clear scans! Port out 9/11. 2/13. It's back: base of tongue, very invasive
surgery involving lifestyle changes. 2/14: Now speaking w/Passey-Muir valve. Considering a swallow study. Grateful to be alive.
| | | | | Joined: Dec 2010 Posts: 5,260 Likes: 3 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | | "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,260 Likes: 3 | Hi Marly - I too am in your position non smoker etc... I think mine was related to chronic irritation as No one smokes around or near me and hasn't for 30 years.. (mom was a smoker) But I work in a smoke free environment, live in a smoke free environment, etc.. I am almost a year out of rads... (May 4th last year I officially finished treatment) and hope to stay cancer free... I had a 1/3 of my tongue removed and replaced, and had 40 lymphnodes removed (1 was positive for cancer). Welcome SOOOO nice to meet you, and have you join us... you are definitely an inspiration along with everyone else here who's survivng or fighting to be a survivor... you are absolutely right... attitude is everything. hugs!
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | | Joined: Mar 2012 Posts: 37 Contributing Member (25+ posts) | | OP Contributing Member (25+ posts)
Joined: Mar 2012 Posts: 37 | Hi Cheryld It's very nice to meet you too!!! & zengalib again (LOL)!!!! I'm not sure how many lymph nodes where removed, the doctor told us that he removedf all of them on the right side of my neck. Cancer was found in only one lymph node. I was raised around smokers all of my life, my dad smoked 4 & 1/2 packs a day. My husband use to smoke until I was diagnosed then he stopped. All of my CAT-Scans have been clean, YAY!!!!!! NO CANCER!!!! (((((( BIG HUGS To All of You Too!!!!))))))
Last edited by Marly; 03-31-2012 06:20 PM.
Female- Age 49, Non-smoker, I Had 6 weeks of rad/30 treatments, No Chemo. 1/2 of my tongue had to be removed as well as Lymph Nodes. Surgery was 11 & 1/2 Hours long. 40 Lymph Nodes where removed, only one was cancerous. My Motto since my diagnoses- It's All In The Attitude!!!
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