Patient / Survivor Header
Page 2 of 2 < 1 2
Topic Options
#147567 - 03/29/12 06:23 PM Re: Fear of the unknown [Re: Maria]
Anne-Marie Offline
Patient Advocate (old timer, 2000 posts)

Registered: 11/03/06
Posts: 2603
Loc: TN
Maria - you just mentioned another great reason for doing everything you can to find ways to think the good thoughts: stress and the immune system which can definitely interfere with health. And coming here to vent is a way of being able to climb out of the darkness. Now, don't start worrying about how you are worrying over stress! That's a double whammy in itself. Maria - Make some cheery times with your son this Easter weekend!
_________________________
Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)




Top
#147568 - 03/29/12 06:57 PM Re: Fear of the unknown [Re: Anne-Marie]
Maria Offline
"Above & Beyond" Member (500+ posts)

Registered: 07/15/11
Posts: 874
Loc: Ohio
Thanks, Anne-Marie!
Maria
_________________________
CG to husband - SCC Tonsil T1N2M0 HPV+ Never Smoker
First symptoms 7/2010, DX 12/2010
TX 40 IRMT (1.8 gy) + 10 Cetuximab
PET Scans 6/2011 + 3/2012 clear, 06/2014 physical exam clear; chest CT's clear of cancer. On thyroid pills. Saliva slowly returning. Life is good.

Top
#147590 - 03/30/12 12:27 PM Re: Fear of the unknown [Re: Maria]
Cheryld Offline
"OCF Canuck"
Patient Advocate (old timer, 2000 posts)

Registered: 12/22/10
Posts: 4976
Loc: Toronto canada
Maria -test time always sucks. But particularly because of your autoimmune issue.you shouldn't have to wait more than 24 hrs for a scan result. Call get your answer right away and remember forget about the guilt there's only so much tou can be responsible for, hugs
_________________________
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan

Top
#147643 - 03/31/12 11:26 PM Re: Fear of the unknown [Re: Cheryld]
CMMoore Offline
Gold Member (200+ posts)

Registered: 07/01/09
Posts: 280
Loc: MO, USA
I have to agree with Donna, cancer has already taken from you, don't give it anymore.
I believe that God is in control. Any circumstances we endure are meant to happen for a reason, Kathy.
Try and rejoice in the small moments of each day. When those thoughts come up, take a moment. The fears are valid! Just use those moments to thank God for all that you do have. Turn them around into something good.
Love to you.

Christine
_________________________
CG to my husband, Matt. Dx June 2009 Stage IV Oropharengeal SCC right tonsil primary with distant metastases. Rad to neck- Surgeries to lungs- Every avail chemo - ran out of options Jan 2012, called for hospice help Feb 2012, at rest March 19, 2012.

Top
#147644 - 03/31/12 11:27 PM Re: Fear of the unknown [Re: CMMoore]
CMMoore Offline
Gold Member (200+ posts)

Registered: 07/01/09
Posts: 280
Loc: MO, USA
ps - easier said than done... YES! But, it's worth a shot. And we are always here too!
_________________________
CG to my husband, Matt. Dx June 2009 Stage IV Oropharengeal SCC right tonsil primary with distant metastases. Rad to neck- Surgeries to lungs- Every avail chemo - ran out of options Jan 2012, called for hospice help Feb 2012, at rest March 19, 2012.

Top
#147749 - 04/04/12 01:27 AM Re: Fear of the unknown [Re: Maria]
Jeanna F Offline
"OCF Down Under"
Gold Member (200+ posts)

Registered: 08/19/09
Posts: 207
Loc: Melbourne, Australia
Hi Kathy....sadly, that fear never goes away. Rod found a lump at the back of his ear where his neck has been sore, this morning. Feels like hard bone...he is 'shitting' himself. I fear too, I just try to keep it under wraps - sometimes though he says he feels like I don't care. But quite the contrary. He is seeing a physio in the morning, she might be able to shed some light on the lump. No one wants a reccurance, and as a carer, I feel sometimes that I'm not sure I'd have the strength for a recurrance, but I know I would get it from somewhere. You just need to act on lumps, bumps, and pain etc, immediately, so your mind can be put at rest for a bit, and during that time, make the most of a good day. Everyone is here for you guys.....xxxx
_________________________
Jeanna
Wife/Carer of Rod, 56, Dx 5/3/09, SCC Oropharnyx T4 N2, End Tx 28th 07/09, 7wks Rad, 3 Cisplatin, primary tonsil, 4cm Lymph right of neck, 1cm left, in jaw & soft palate & base of tongue. Peg 06/09. CT & PET scans 02/11 - NED. Dentures 20/09/11, PEG out 28/10/11.

Top
#147755 - 04/04/12 01:43 AM Re: Fear of the unknown [Re: Jeanna F]
KP5 Offline
"Above & Beyond" Member (500+ posts)

Registered: 10/09/11
Posts: 795
Loc: NY
Thanks everyone.
Jeanna, I pray this is not recurrence for you guys. You're right though. We will pull the strength from somewhere and get through it if it happens.
Christine, wonderful to hear from you. Thank you for your words. It's better right now cuz' Kev is in Alaska at work so we are not in each other's face all the time. He says he's checking things daily. That's all we can do.
Thanks again. Jeanna, please keep in touch.
Kathy
_________________________
Kathy wife/caregiver to:
Kevin age:53
Dx 7/15/11
HPV16+ SCC Stage IV BOT/R
Non smoker, casual drinker
7/27/11 Cistplatin, taxotere,5FU 2/3week sessions, followed by IMRT 125cgy x 60 (2x daily) w/Erbitux weekly. Last rad 10/26/11. Last Erbitux 10/27/11
PEG placed 9/1/11 Removed 11/8/11
Clear PET 10/2012

Top
#148514 - 04/19/12 07:05 PM Re: Fear of the unknown [Re: Maria]
Barb Offline
"Above & Beyond" Member (300+ posts)

Registered: 05/27/05
Posts: 497
Loc: Ohio
Kathy all people in all walks of life who experience a great illness have a fear of the unknown I believe. As for me everytime I get a sore throat even after all these years my first thought is "Oh no! It's back!" Then again my father-in-law had a massive heart attack and he refused to get out of bed for fear of having another one if he did so much as speak to long.

In the end we just have to make use of each day and be grateful for it. Not always easy I know but if you can do it 5 days out of 7 it makes for a better quality of life for sure. My prayers are with you husband and your as I was once also in your shoes when my husband had "c" and I was the caregiver.

Meanwhile every day you get is another day of hope.
Blessings,
Barb~
_________________________
[i]"The artist, a traveler on this earth, leaves behind imperishable traces of his being." -Fran

Top
Page 2 of 2 < 1 2


Support OCF


Help OCF

Shop Amazon and Help OCF

Who's Online
0 registered (), 40 Guests and 5 Spiders online.
Key: Admin, Global Mod, Mod
Forum Stats
10183 Members
23 Forums
16092 Topics
182528 Posts

Max Online: 141 @ 05/15/13 10:09 AM
Top Posters
ChristineB 8512
davidcpa 8309
Cheryld 4976
Brian Hill 4685
Gary 3544
Newest Members
docdorrance, HeatherB, Bluecrab, Cindy54, smc
10182 Registered Users
Brag Box