| | Joined: Apr 2011 Posts: 2 Member |  Member
Joined: Apr 2011 Posts: 2 | I am so glad you mentioned tiramisu. It is one of my husband's favorites, and I did not think of it. I am going shopping!
Thanks,
Diane
| | | | | Joined: Nov 2009 Posts: 493 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Nov 2009 Posts: 493 | Creme brulee is great, too!
Female, nonsmoker, 70, diag. 5/09 after tongue biopsy: stage IV. Left hemi-gloss. and left selec. neck disec. 30 lymph nodes removed May 20. Over 7 weeks daily rads. with three chemo. PEG removed 12/4/09 Am eating mostly soft foods. Back to work 11/09 Retired 4/1/11. 7 clear scans! Port out 9/11. 2/13. It's back: base of tongue, very invasive
surgery involving lifestyle changes. 2/14: Now speaking w/Passey-Muir valve. Considering a swallow study. Grateful to be alive.
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 6 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | OP Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 6 | Oh yeah, I forgot about creme brulee. I love that stuff!!!
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Feb 2011 Posts: 82 "OCF Down Under" Supporting Member (50+ posts) | | "OCF Down Under" Supporting Member (50+ posts)
Joined: Feb 2011 Posts: 82 | Hey everyone.my newfound favorite food is sour cream!I wasn't a big fan of it before all this happened,but it's honestly made me enjoy my food alot more since I tried it recently.you can mix it with almost anything,and it's been delicious..you just get enough taste out of it.it's good with pastas,lasagna,etc.but I add it to almost everything I eat now.it makes swallowing easier too.just an idea..so if you're capable of eating it,it's definitely worth a shot.my fridge is now full of them
21 @ diagnosis. Tongue cancer(SCC) non smoker,HPV negative. 11 hour Surgery (30+ glands removed-left side neck dissection, 'jaw split' for 'access'-left side tongue dissection, graft & artery from left thigh for re-construction of tongue.44 rad t'ments.4x cisplatin.no peg.Clear PET scan 12/5/2011!
| | | | | Joined: Aug 2007 Posts: 1,301 "OCF Down Under" Patient Advocate (1000+ posts) | | "OCF Down Under" Patient Advocate (1000+ posts)
Joined: Aug 2007 Posts: 1,301 | Hi Dave, Have a look at my post on Page 7 of this topic on the 6th Nov 2010. If you love the sour cream ya gotta love the dips and there are so many flavours there is no need to mix...Give it a go mate 
History Leukoplakia bx 8/2006 SCC floor mouth T3N0M0- Verrucous Carcinoma.
14 hour 0p SCC-Right ND/excision/marginal mandibulectomy 9/2006, 4 teeth removed, flap from wrist, trach-ng 6 days- no chemo/rad.
6 ops and debulking (flap/tongue join) + bx's 2006-2012.
bx Jan 2012 Hyperkeratosis-Epithelial Dysplasia
24cm GIST tumour removed 8/2013. Indefinite Oral Chemo.
1/31/16 passed away peacefully surrounded by family
| | | | | Joined: Feb 2011 Posts: 82 "OCF Down Under" Supporting Member (50+ posts) | | "OCF Down Under" Supporting Member (50+ posts)
Joined: Feb 2011 Posts: 82 | Will do Gabe.cheers!I have tried a few different dips recently with cabana &/or soft,suitable buiscuts.very nice
21 @ diagnosis. Tongue cancer(SCC) non smoker,HPV negative. 11 hour Surgery (30+ glands removed-left side neck dissection, 'jaw split' for 'access'-left side tongue dissection, graft & artery from left thigh for re-construction of tongue.44 rad t'ments.4x cisplatin.no peg.Clear PET scan 12/5/2011!
| | | | | Joined: Jun 2011 Posts: 188 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Jun 2011 Posts: 188 | going to bump this one up hoping it helps someone. the foods listed are great and we tried most of them. with limited to no taste buds, flavor wasnt really an issue.
his bigger thing is mental, my dad antcipates texture, chewing, how the food will "grow" in his mouth, leaving our best cullinary attempts untouched. carnation vhc only, and only vanilla works. we force him to drink one of those a day mixed with unflavored wey and vanilla icecream, and believe me, he still looks like a chipmunk storing nuts. he does make it work though as it is this or a peg, and he would not hear of a peg.
Caco
CG to Dad. Biopsy 5/11 non-op, SCC stage IV poorly dif at base of tongue with nodes, quit smoking in '85, ChemoRad began 8/2/11 ended 9/22/11 with NED. Distant mets 11/11, clinical trials. War raging on!
| | | | | Joined: Jul 2010 Posts: 531 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jul 2010 Posts: 531 | Ron always eats spoonfuls of Helluva Good onion chip dip! He also eats lots of small curd cottage cheese. The other day he got down for the first time Sourkraut and a little bit of Hillshire Farm smoked Keilbasa he cut up real small. He also always eats those little Michelena frozen meals in those little boxes or smart ones cuz he likes certain ones. He eats canned asparagus but has to watch out for the harder pcs and spinich he can get down too. He's sucked down fat from my brisket I made on the grill too! Also Bob Evans sausage biscuit and gravy and Stouffer's chip beef on toast he can suck down. So he's doing pretty good I'd say. Still skinny though but looking a "healthier" skinny.
CG to Ron
Out of Pain 4/3/13
4/12-lung and under chin growth no treatment
1/13/12 lung biopsy
6/11 recur 6/30 resection #2 Clear margins
Clear 12/10
Surg 5/13/10 neck dis/nodes part gloss/flap R thigh all teeth out
RAD 30 8/10
DX 4/2/10 "Oral Cavity" T3NOMO
12/28/07 Non Hodg Lymph remission 7/08
passed away 4.3.15, RIP Ron, you are greatly missed
| | | | | Joined: Aug 2011 Posts: 10 Member | | Member
Joined: Aug 2011 Posts: 10 | I puree Chunky soup and he eats that with mashed potatoes(with butter and milk). I also make gravy (or use canned) mix it with chopped up meat(beef or chicken usually) poured over potatoes.He eats lots of ice cream, Carnation, Boost. He recently discovered cake soaked in milk or cake mashed up in ice cream. I will make him anything he is willing to try because he has always been a picky eater.
Wife, he was diagnosed early 8/11, SCC-floor of mouth. Surgery 9/6/11, removal of cancer, part of tongue, salivary gland and lymphnodes, skin and vessels from arm to reconstruct, graft from leg to repair arm. T3N0. Radiation to start 10/11.
| | | | | Joined: Nov 2011 Posts: 5 "OCF Canuck" Member | | "OCF Canuck" Member
Joined: Nov 2011 Posts: 5 | This has been very helpful, I have not had any treatments yet but being able to plan ahead is very much appreciated! | | |
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