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#148685 - 04/23/12 08:26 PM Re: Possible trouble swallowing [Re: Cheryld]
SUEZ Offline
"Above & Beyond" Member (500+ posts)

Registered: 07/21/10
Posts: 531
Loc: AURORA, OH
I think if he is swallowing the water and it is going down his swallowing is OK no? Ron didn't eat alot but he drank coffee and I'd put in his can formula and make him iced coffee and actually put it in a Starbucks glass bottle (he didn't know it was his formula!) and I added sugar and it pretty much tasted like it and he'd drink that AND be getting his nutrition, he didn't have a PEG he had a NG twice but he pulled them out. Does he like coffee? Or soda or something other than water? Can you put your signature with more info? Ron complained all the time bout taste of food, it was nasty but he forced it down because he was hungry. Unfortunately he went from 189lbs down to 130 he just weighed himself Saturday and that was with his darn boots on so I said subtract 3lbs for clothing and he's 6'1! He said he is fine he has "maintained" that weight since his surgeries for Oral Cancer. He eats good too but he was never really big before the cancer either. Tall and thin man. Now he looks even more thin no muscle mass at all and I try so hard to fatten him up! So don't fret he will pull thru this, as you can see Ron has no teeth and a flap and he is eating alot of foods, he had a thin sliced ribeye steak and lobster tail with butter 2 weeks ago! And I made a homemade Pizza Pot Pie and he finally got his pizza taste he's been wanting for years! So it can be done!
_________________________
CG to Ron
Out of Pain 4/3/13
4/12-lung and under chin growth no treatment
1/13/12 lung biopsy
6/11 recur 6/30 resection #2 Clear margins
Clear 12/10
Surg 5/13/10 neck dis/nodes part gloss/flap R thigh all teeth out
RAD 30 8/10
DX 4/2/10 "Oral Cavity" T3NOMO
12/28/07 Non Hodg Lymph remission 7/08

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#148697 - 04/23/12 10:37 PM Re: Possible trouble swallowing [Re: SUEZ]
ChristineB Offline
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

Registered: 06/23/07
Posts: 8187
Loc: PA
I found chocolate milk to be very soothing to my sore mouth and throat. It also is loaded with calories and thicker than water so it might be easier to swallow. Chocolate milk is also very good to drink if eating something thats too spicy.
_________________________
Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07, no caregiver
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo extended hospital stay, ICU & burn unit
PICC line w/ IV antibiotics 8 mo
10/4/10, 2/14/11 reconst surg
OC 3 times in 3 years
very happy to be alive smile

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#152673 - 08/01/12 09:07 PM Re: Possible trouble swallowing [Re: Dawnb]
KenEggman Offline
Contributing Member (25+ posts)

Registered: 04/14/12
Posts: 32
Loc: VA, USA
DawnB, hope your husband is doing better. Based on the amounts of liquid and nutrition drinks he was taking in it sounded like he was taking in great amounts:) I am three weeks from last rad treatment and I gag, choke or worse, if taking a drink thru mouth and it goes wrong way. I also have lots of mucus which I unknowingly must be swallowing and it causes nausa or worse. This is becoming a problem for me in many ways.

Christine, where can we get the liquid protein? I cannot drink as much as I would like but need to speed up my recovery and if I can change my whey protein powder for liquid please let me know where I can get it. Again you offer a home run based on your experience.

Ken
_________________________
48YO M, hlthy, xsmkr(quit 14yrs ago), mod drinkr
1 mo sore throat w/neck lump 3/12
SCC tonsil, lym nodes
4/12/12 rad tonslctmy, mets in lymph nodes
5/8 PEG, 5/10 PORT 7/3/12 Last Chemo (Cisplatin)| 7/10/12 Last RAD | 9/6/12 MRI=No New Cancer
BSA Scout Ldr w/strng desire to live & beat cancer

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#152683 - 08/01/12 11:57 PM Re: Possible trouble swallowing [Re: Dawnb]
ChristineB Offline
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

Registered: 06/23/07
Posts: 8187
Loc: PA
Ken, the dry whey protein powder can easily mix into any liquid. I add it to my liquid formula, but also adding extra water or it becomes a bit too thick for my stomach to tolerate. The liquid protein shots are available at any pharmacy or thru the OCF Amazon link. They run about $3 or $4 each and are about 3 oz. Ive bought them at Rite Aid next to where they sell Ensure and Boost.
_________________________
Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07, no caregiver
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo extended hospital stay, ICU & burn unit
PICC line w/ IV antibiotics 8 mo
10/4/10, 2/14/11 reconst surg
OC 3 times in 3 years
very happy to be alive smile

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#153103 - 08/11/12 06:48 AM Re: Possible trouble swallowing [Re: Dawnb]
CubanKeith Offline
"OCF across the pond"
Contributing Member (25+ posts)

Registered: 04/28/12
Posts: 47
Loc: London UK
CubanKeith
This is LONDON calling we are doing well in the Olympics I cant afford a ticket but still feel the BUZZ. What a great summer to have Chemo?Radiation treatment, Euros football(soccer) the Open golf, Wimbeldon next year Andy Murray qand now the Olympics. Enough positive this chemo?rad is nasty sh*t. Only a novices advice.
NHS England all my feed is provided I got a Nebulizer it improved the Gunk and mouth smell and lets me talk 500% better than pain killers and better than mouth washes ask for a Nebulizer with sodium Chloride and hang in there, hint No2 love your PEG.I dont believe I will eat right for 2 or 3 months.But I need to stop losing weight so it bottle food and the pump for me.
cheers CB
_________________________
21st March squall cells.Endescopy not oesophagus, ENT .April endo nose CAT MRI general Panendoscopy prim-HPV 16 base of left tongue one node-stage 2.23rd of May.14/5/12 9 teeth out.8/6/12 PICC inserted.11/6/12 1st Chemos 25/6/12 2nd Chemo Cisplatin5FU:27/6/12 PEG23/8/12 Radiation finished 1/9/12.

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#153456 - 08/21/12 04:08 AM Re: Possible trouble swallowing [Re: Dawnb]
Jay Tee Offline
Member

Registered: 08/21/12
Posts: 8
Loc: Oregon, USA
My swallowing therapist suggested I drink carbonated water and I found it was much easier to swallow than "flat" water. It also feels like it is cleansing your mouth. I still drink 1-2 liters/day.
_________________________
JT

Age 58 Dx Dec 2011, HPV 16+ SCC, T2N2M0, Stage IVa BOT and 2 nodes L&R, non smoker, casual drinker, Tx 27 Jan - 6 Mar 2012, Cisplatin x 3 with concurrent IMRT x 35, (70 Gy), Bilat & size (3.3 cm) made tumor inop, Peg Jan - May 2012, Esophageal Dilation x2, PET Clear 6 Jun 2012. Lost 60 lbs!

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