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Joined: May 2007
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When we lose someone we love, it seems that time stands still.

What moves through us is a silence, a quiet sadness, a longing for one more day, one more word, one more touch, we may not understand why one has left this earth so soon, or why this one left before you were ready to say good-bye, but little by little, begin to remember not just that he died, but that he lived. And that his life gave memories too beautiful to forget.

May the peace which comes from the memories of love shared comfort you now and in the days ahead.

Kevin


9 YEAR SURVIVOR
SCC Tongue (T3N0M0) diag 06/2006.
No evidence of disease 2010
Another PET 12-2014 pre-HBO, still N.E.D.


�Remember to look up at the stars and not down at your feet. It matters that you don't just give up.�
Stephen Hawking
Joined: Jan 2009
Posts: 476
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[quote=Kevin - Memphis]When we lose someone we love, it seems that time stands still.

What moves through us is a silence, a quiet sadness, a longing for one more day, one more word, one more touch, we may not understand why one has left this earth so soon, or why this one left before you were ready to say good-bye, but little by little, begin to remember not just that he died, but that he lived. And that his life gave memories too beautiful to forget.

May the peace which comes from the memories of love shared comfort you now and in the days ahead.

Kevin [/quote]

Kevin, that was absolutely beautiful! It's sometimes hard to remember that part of living is dying and every day is a gift.

Christine, my thoughts and prayers are with you and your family. Today will be a difficult day. Take comfort knowing that we are all here thinking of you. Hugs.


Wanda (47) caregiver to husband John (56) age at diag.(2009)
1-13-09 diagnosed Stage IV BOT SCC (HPV+)
2-12-09 PEG placed, 7-6-09 removed
Cisplatin 7 weeks, 7 weeks (35) IMRT
4-15-09 - treatment completed
8-09,12-09-CT Scans clear, 4-10,6-11-PET Scans clear
4-2013 - HBO (30 dives) tooth extraction
10-2019 - tooth extraction, HBO (10 dives)
11-2019 - Left lateral tongue SCC - Stage 2
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"OCF Canuck"
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"OCF Canuck"
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Christine - I'm sorry - for two reasons - firstly I completely missed this thread and truly wish I could have been here when you needed someone to vent to - though everyone here is so fantastic and supportive - I know my absence wasn't missed! Secondly I'm sorry about the passing of your husband. Sometimes they leave us long before their physical bodies are ready to. I had a palliative patient years ago who I nursed at home until she passed it was incredibly hard to watch her family suffer, and emotionally draining - I know through reading your prior posts how insanely hard for you it was. I am so glad your last few days were somewhat peaceful with him and amazed at how strong and wonderful you were through the worst of it. Losing someone you love is hard enough but when they are stolen from you in this way it's traumatic - the man you married is now with you and watching over you and no longer struggling. Hugs to you and many blessings - you are an amazing person.


Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
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Christine,

I know today is going to be very difficult for you and your family. I'm sure you are just drained both emotionally and physically. Sending lots of prayers and comforting thoughts your way. I hope when everything calms down you will continue to share with us on this board. You are a part of our OCF family and we will always care.

Love,

Shelley


Caregiver to husband Ron. Throat Cancer. Finished 35 radiation treatments on 11/21/04. 8/2/11 small lesion on lower gum, laser Procedure to remove. 3/6/12 Doc. removed another lesion on outside of his neck. Did a skin graft from his chest to replace the skin on his neck. Went to Heaven on 6/24/12.
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It seems that everyone has posted very eloquently so I will just say that I am so sorry and will be thinking of you today.

Hugs, Deb


Deb..caregiver to husband, age 63 at diagnosis, former smoker who quit in 1997.
DIAGNOSIS: 6/26/07 SCC right tonsil/BOT T4N0M0
TREATMENT START: 8/9/07 cisplatin/taxol X 7..IMRT twice daily X 31.5.
TREATMENT END: 10/1/07
PEG OUT: 1/08
PORT OUT: 4/09
FOLLOWUP: Now only annual exams. ALL CLEAR!

Passed away 1/7/17 RIP Bill
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Christine,

Thinking of you and sending you my condolences. You were his rock all the way through this devastating illness. I commend you for being so strong through it all. Please only remember the good happy times and not the rough ride you've had with this.

I hoe that after you have grieved you will find peace and comfort in his memory and go on to live a very happy and joyful life.



XOXOXO Kate


Tongue Cancer T2 N0 M0 /
Total Glossectomy Due to Location of Tumor

Finished all treatments May 25 2007
Surviving!!!
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"OCF across the pond"
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Christine,it saddens me greatly to see that after all these years ,the end stages of this vile disease get no easier for either patient or carer.You did this journey rough just as too many of us have,but be proud girl you did it brilliantly.

love always
Liz



Liz in the UK

Husband Robin aged 44 years Dx 8th Dec 2006 poorly differentiated SCC tongue with met to neck T1N2cM0 Surgery and Radiation.Finished TX April 2007
Recurrence June/07 died July 29th/07.

Never take your eye off the ball, it may just smack you in the mouth.
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i just want to add my condolences. peace and love


after 3 sarcma flr mouth,fially removed, reconstruct from thigh muscle. 1/2 saliva glands removed, plus more glands than i can remember
Joined: Jul 2009
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CMMoore Offline OP
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Posts: 280
I wanted to share with you all a lovely paragraph I found today...

I have only slipped into the next room. I am I, you are you. Whatever we were to each other, that we still are. Call me by my old familiar name,
Speak to me in the easy way you always did. Put no difference in your tone, wear no air of solemnity or sorrow.
Play, smile, think of me, and pray for me. Laugh as we always laughed at the jokes we shared together. Let my name be ever the household name that it always was. Let it be spoken without effect, without a trace of shadow on it.

Life means all that it ever meant. It is the same that it ever was, there is unbroken continuity. Why should I be out of mind because I am out of sight. I am waiting for you, somewhere very near-just around the corner....

All is well


CG to my husband, Matt. Dx June 2009 Stage IV Oropharengeal SCC right tonsil primary with distant metastases. Rad to neck- Surgeries to lungs- Every avail chemo - ran out of options Jan 2012, called for hospice help Feb 2012, at rest March 19, 2012.
Joined: Feb 2012
Posts: 151
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Posts: 151
Very beautiful and what an appropriate time to find this, thanks for sharing.


Husband diagnosed Oct '11 Cancer of the vocal cord Nov '11 removed right vocal cord. Neck Dissection, cancer in one node, .2, very small & contained) Jan '12 Radiation and Cisplatin, 6 doses. June '12 & Dec '12 clear Pet scan. April '13 Celebrating 1 year cancer free since treatment ended.
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