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#147421 - 03/23/12 02:01 AM Mandible reconstruction by Dr. Marx?  
Joined: Nov 2011
Posts: 33
Richard T. Offline
Contributing Member (25+ posts)
Richard T.  Offline
Contributing Member (25+ posts)

Joined: Nov 2011
Posts: 33
Rockford IL
Hello;
In December 2011 I had a hemi-mandibulectomy performed by Dr. Robert Marx in Miami for radiation-induced osteosarcoma. He is prominent in his field and I am comfortable with him. I am now receiving chemotherapy just to make sure that all the cancer cells are gone. This summer I plan on going back to Miami for reconstruction of the mandible using BMP (bone morphogenic protein) to encourage me to grow a new mandible. Is there anyone on this forum who has had this done before? I would love to hear about your recovery and outcome.


2006 SCC T0 N1 M0; 2006 EBRT x 33, chemo x 3; 2010 Extraction 2 molars; 2010 HBOx30; 2011 Dx osteosarcoma of mandible; 12/20/11 mandibulectomy with temp. titanium plate; 1/31/2012 chemo x 4; 9/19/2012 Reconstruction of mandible with graft from hip and bone morphogenic protein
#147425 - 03/23/12 12:05 PM Re: Mandible reconstruction by Dr. Marx? [Re: Richard T.]  
Joined: Jun 2007
Posts: 9,467
ChristineB Offline
Administrator, Director of Patient Support Services
ChristineB  Offline
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 9,467
PA
This is new for the OCF forum. I have read about doctors building lab created trachea before but never for a new jawbone to be grown. Please keep us posted about this revolutionary procedure! There really might be hope for me to return to a normal looking person after all.

One thing I feel I need to mention. Chemo by itself is not normally used to kill SCC. This is usually only done for palliative care when all other options are have run out. Im especially curious as to why your doctor would put you on chemo when your cancer was 6 years ago.

Please let us know how your doing with your recovery. Best wishes to you with everything!!!


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07, no caregiver
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo extended hospital stay, ICU & burn unit
PICC line w/ IV antibiotics 8 mo
10/4/10, 2/14/11 reconst surg
OC 3 times in 3 years
very happy to be alive smile
#147432 - 03/23/12 04:54 PM Re: Mandible reconstruction by Dr. Marx? [Re: ChristineB]  
Joined: Nov 2011
Posts: 33
Richard T. Offline
Contributing Member (25+ posts)
Richard T.  Offline
Contributing Member (25+ posts)

Joined: Nov 2011
Posts: 33
Rockford IL
Christine;

My old cancer was SCC. My new one, for which I had the mandibulectomy, was radiation-induced osteosarcoma which is sensitive to chemo, namely, the PAM (cisPlatin, Adriomycin, Methotrexate) protocol is the gold standard and what I am currently going through.

I will keep you (and everyone else) up to date as things progress. As far as I know, Dr. Marx is the only guy doing this.


2006 SCC T0 N1 M0; 2006 EBRT x 33, chemo x 3; 2010 Extraction 2 molars; 2010 HBOx30; 2011 Dx osteosarcoma of mandible; 12/20/11 mandibulectomy with temp. titanium plate; 1/31/2012 chemo x 4; 9/19/2012 Reconstruction of mandible with graft from hip and bone morphogenic protein
#147436 - 03/23/12 07:34 PM Re: Mandible reconstruction by Dr. Marx? [Re: Richard T.]  
Joined: Jun 2007
Posts: 9,467
ChristineB Offline
Administrator, Director of Patient Support Services
ChristineB  Offline
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 9,467
PA
Richard, I didnt know you had a recurrence. Thats why I was concerned about why you were doing chemo. Thanks for clarifying things.

Wishing you continued good health!


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07, no caregiver
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo extended hospital stay, ICU & burn unit
PICC line w/ IV antibiotics 8 mo
10/4/10, 2/14/11 reconst surg
OC 3 times in 3 years
very happy to be alive smile

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