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Joined: Aug 2010
Posts: 75
Supporting Member (50+ posts)
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Supporting Member (50+ posts)

Joined: Aug 2010
Posts: 75
My heart is breaking for you. It's just not fair. I hate this disease! Be proud of all you did for and with him while he was here, now it's time to focus to taking care of you.


CG to sp age 53
4/10 BOT IVb
6/10 Ttl Gloss Lrngectmy L Mndbltmy 5+ Nodes
7/10 Cispl & Rad
1/11 recur lung mets
2/11 Clin Tr Erb Carb 5FU last 5/11
7/11 Tumor growth began wkly Bleo, Taxol, Carbo
10/28/11 Hospice; Passed 11/7/11
Joined: Aug 2011
Posts: 269
ngk Offline
Gold Member (200+ posts)
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Joined: Aug 2011
Posts: 269
I'm so sorry for your loss, so very sorry. It's been quite the difficult journey.



Nancy (53 at dx)
Metastatic SCC. Stage III. HPV positive with occult primary. N1, no ecs
7/1/11 - L-Selective neck dissection. Tonsillectomy. All clean. No rad, no chemo.
5/29/13 - Found primary
7/3/13 - TORS
7/8/13 - Emergency Surgery/Blood vessel burst in throat
8/9/13 - Peg in
9/3/13 - Radiation starts 30 IMRT, 60gy BOT, 56gy both sides of neck
10/14/13 - Radiation ended!
11/12/13 - PEG out!
Joined: Jan 2011
Posts: 571
"Above & Beyond" Member (500+ posts)
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"Above & Beyond" Member (500+ posts)

Joined: Jan 2011
Posts: 571
Dear Christine,

Matt was blessed to have your love to see him through his journey. You are the most amazing caregiver--all heart and strength and courage.

In the quiet moments when all the company is gone and you are feeling his absence the most, please let beautiful memories of Matt's love for you bring you comfort.

You know the times when cancer was doing the speaking. Don't give those times any power in your life. Remember his smile, his gentle touch, his loving words.

Mourn in your own time. Take your time and don't allow anyone to pressure you into taking any steps for which you aren't ready. Be gentle with yourself. I am sending hugs across the miles.

Keeping you in my thoughts and prayers.
Love you,
Sandy
xoxox


Ex-spouse MISDIAGNOSED with SCC-HN IVa 12/10. Tonsils out 1/11. 4 teeth out 2/11. TX Erbitux x2, IMRT x2 2/11. 2nd opinion-benign BCC-NOT CANCER 3/11. TX stopped 3/11. New doctors 4/11. ENT agrees with 2nd opinion 5/11. ENT scoped him-all clear 7/11. Ordered MRI anyway. MRI 8/22/11 Result-all clear.
Joined: Sep 2006
Posts: 1,357
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"OCF Canuck"
Patient Advocate (1000+ posts)
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"OCF Canuck"
Patient Advocate (1000+ posts)

Joined: Sep 2006
Posts: 1,357
Likes: 5
I am so very sorry for your loss Christine. There just are no words to adequately express our sorrow at the premature loss of yet another OCF angel. He was so very lucky to have you there for him every step of the way. Be kind to yourself in the coming day. Please stay connected with us. We are here for you.

Donna


Donna,69, SCC L Tongue T2N1MO Stg IV 4/04 w/partial gloss;32 radtx; T2N2M0 Stg IV; R tongue-2nd partial gloss w/graft 10/07; 30 radtx/2 cispl 2/08. 3rd Oral Cancer surgery 1/22 - Stage 1. 2022 surgery eliminated swallowing and bottom left jaw. Now a “Tubie for Life”.no food envy - Thank God! Surviving isn't easy!!!! .Proudly Canadian - YES, UNIVERSAL HEALTH CARE IS WONDERFUL! (Not perfect but definitely WONDERFUL)
Joined: Jun 2010
Posts: 58
Supporting Member (50+ posts)
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Supporting Member (50+ posts)

Joined: Jun 2010
Posts: 58
{{{Hugs}}} to you Christine.

Peace.



Bonnie

CG to husb John, 57, love of my life for 35 yrs.
Dx 2/10, T2N2cMx, SCC BOT & lymph nodes.
Non smoker. Biopsy HPV+.
No surgery - IMRT 35X + 7 chemos cleared BOT
9/10-mets to lungs.
2 rounds chemo, last one trial drug which did not work.

Lost the battle, but walking in Glory 9/7/11.
Joined: Dec 2010
Posts: 99
Supporting Member (50+ posts)
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Supporting Member (50+ posts)

Joined: Dec 2010
Posts: 99
My heart is with you. So sorry to read of Matt's passing but relieved as well that both of you will not have to suffer anymore with the unknown journey and all the different kinds of pains this disease brought to him, you and your family. He is at peace, you probably will be lonely and exhausted both physically and emotionally these next months but know you did everything possible for Matt in his final journey, one all of us will take someday. Time marches on and no one can stop it no matter how much we want to. I will be thinking of you in these next weeks and beyond - let us know how you are doing. Love Karen


CG 2 Emmett,7/09 DX SCC rt tongue. T2N1M0, 1 node, marg neg.4/10 PET/CT clear, 9/10 C back. 10/10 Rad hemi, 2 tmrs mod diff. resec flr of mth. Flap 4 nodes/w/ext cap. 11/10 Peg, CX3 HD, 30 rad. 1/31 & 3/21 6/11/11 - PET/CT "activity" 9/11-all Clear. 12/11 peg out. 2/15 still all clear! 9/14 Prostate cancer treated with pencil beam proton therapy, best radiation experience. Keep it in mind as a treatment option for all tumors that can be seen including head and neck.
Joined: Aug 2007
Posts: 1,301
"OCF Down Under"
Patient Advocate (1000+ posts)
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"OCF Down Under"
Patient Advocate (1000+ posts)

Joined: Aug 2007
Posts: 1,301
I have checked with Christine and she is happy to have me post the link to Matt�s Guest Book for here.
A Celebration of Life will be held Friday, March 23, 2012 at 10:00 AM in Walnut Lawn Funeral Home.
I know a lot of our OCF family would like to add a message..
http://walnutlawnfuneralhome.com/sitemaker/sites/WALNUT1/obit.cgi?user=596548Moore

Gabriele


History Leukoplakia bx 8/2006 SCC floor mouth T3N0M0- Verrucous Carcinoma.
14 hour 0p SCC-Right ND/excision/marginal mandibulectomy 9/2006, 4 teeth removed, flap from wrist, trach-ng 6 days- no chemo/rad.
6 ops and debulking (flap/tongue join) + bx's 2006-2012.
bx Jan 2012 Hyperkeratosis-Epithelial Dysplasia
24cm GIST tumour removed 8/2013. Indefinite Oral Chemo.

1/31/16 passed away peacefully surrounded by family

Joined: Jun 2007
Posts: 10,507
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Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)
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Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 10,507
Likes: 6
Thank you Gabe!

Christine, I know this is so difficult for you. My condolences to you and your family. May Matt rest in peace.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
Joined: Jul 2009
Posts: 280
CMMoore Offline OP
Gold Member (200+ posts)
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Gold Member (200+ posts)

Joined: Jul 2009
Posts: 280
Hey everyone, I am here, I am reading.
I love you all, your words are always a great comfort.


CG to my husband, Matt. Dx June 2009 Stage IV Oropharengeal SCC right tonsil primary with distant metastases. Rad to neck- Surgeries to lungs- Every avail chemo - ran out of options Jan 2012, called for hospice help Feb 2012, at rest March 19, 2012.
Joined: May 2009
Posts: 1,412
Patient Advocate (1000+ posts)
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Patient Advocate (1000+ posts)

Joined: May 2009
Posts: 1,412
Christine, I am so sorry for your loss. I will be praying for you ans your family during this most difficult time.


Angelia
31 at Dx.
DX: 4/30/09, 10/21/09 SCC on floor of mouth,
T1NOMO, T2N1M0
TX: 39 IMRT, 8 cisplatin 11/30/09
PET/CT: 11/03/09: Lymph node involvement
PEG/PORT: 11/09
TX end: 02/01/10
PET Scan: 04/05/10 clear
PEG Out: 06/21/10
Biopsy: 12/23/10: fibrosis
HBO: 01/04/11 - ORN
Baby girl born 11-30-12
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