#147318 - 03/19/12 01:17 PM
Re: Wading through the wait
[Re: KP5]
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"Above & Beyond" Member (500+ posts)
Registered: 07/15/11
Posts: 707
Loc: Ohio
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Thank heavens! Glad to hear the good news!
_________________________
Caregiver to husband - SCC Tonsil T1N2M0 HPV+ Never Smoker DX 12/2010
TX 40 IRMT (1.8 gy) + 10 Cetuximab
PET Scans 6/2011 and 3/2012 clear, 1/2013 physical exam clear
On thyroid pills. Getting slightly less sensitive to hot peppers, and can handle sweet hungarian paprika again. Life is good.
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#147320 - 03/19/12 02:44 PM
Re: Wading through the wait
[Re: Maria]
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Administrator, OCF Ambassador at Large
Patient Advocate (old timer, 2000 posts)
Registered: 06/23/07
Posts: 6706
Loc: PA
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Congrats Kathy! So glad it turned out to be nothing serious. Just another false positive PET. Those darn things can scare a person to death!
_________________________
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 rad end 9/27/07, no caregiver Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 155 HBO,trismus 3/09 teeth out 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma, 2 mo hospital PICC line IV antibiotics 8 mo 10/4/10, 2/14/11 reconst surg OC 3 times in 3 years very happy to be alive 
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#147322 - 03/19/12 03:29 PM
Re: Wading through the wait
[Re: ChristineB]
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Platinum Member (300+ posts)
Registered: 04/16/09
Posts: 321
Loc: Fort Myers, FL, Lockport, NY
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Great News.....
Take care,
Connie
_________________________
SCC. of the left lateral tongue, anterior two thirds, T1 possibly a T2.
Left partial glossectomy, left selective neck dissection 4/21/09. Nodes clean, No Rad, No Chemo.
CT Scan 9/11 clean, CT Scan 9/12 clean
Moffitt Cancer Center in Tampa, FL. A+.
My hometown Lockport, NY.
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#147326 - 03/19/12 03:56 PM
Re: Wading through the wait
[Re: ConnieFL]
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"OCF Down Under"
Patient Advocate (1000+ posts)
Registered: 08/02/07
Posts: 1189
Loc: Sydney NSW Australia
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Wonderful news Kathy...now you can breathe!
Cheers
Gabriele
_________________________
Leukoplakia bx dx 8/2006 SCC floor of mouth/tongue T3N0M0- Verrucous Carcinoma.
14 hour 0p-right ND/excision/marginal mandibulectomy 9/2006, 4 teeth removed, flap from wrist, trach-ng 6 days- no chemo/rad.
6 ops (flap/tongue join) + bx's 2006-2012.
bx Jan 2012 Hyperkeratosis-Epithelial Dysplasia
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#147333 - 03/19/12 05:44 PM
Re: Wading through the wait
[Re: Gabe]
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"OCF Kiwi Down Under"
Platinum Member (300+ posts)
Registered: 03/10/11
Posts: 323
Loc: New zealand
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Absolutely fantastic news.
Now, enjoy your lives.
Tammy
_________________________
Caregiver/advocate to Husband Kris age 59.
DX Dec '10 SCC BOT T4aN2bM0 HPV+ve.Cisplatin x3 35 IMRT.
PET 6/11 clear.. R) level 2-4 neck dissection 8/1/11.
Feb '12 Ca back.. 3/8/12 total glossectomy/laryngectomy/bilat neck dissection/partial pharyngectomy etc. PEG in
3/13 12 months post surgery NED
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#147337 - 03/19/12 05:55 PM
Re: Wading through the wait
[Re: KP5]
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"OCF Canuck"
Patient Advocate (old timer, 2000 posts)
Registered: 12/22/10
Posts: 3446
Loc: Toronto canada
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That's so awesome! Hugs!
_________________________
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
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#147340 - 03/19/12 06:29 PM
Re: Wading through the wait
[Re: Cheryld]
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"Above & Beyond" Member (500+ posts)
Registered: 10/09/11
Posts: 670
Loc: NY
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Thanks everyone. We now know what a false positive feels like! Maybe next time we will be more able to remain calm....doubtful, but maybe!! Thanks again for the support. Onward we go...
_________________________
Kathy wife/caregiver to:
Kevin age:53
Dx 7/15/11
HPV16+ SCC Stage IV BOT/R
Non smoker, casual drinker
7/27/11 Cistplatin, taxotere,5FU 2/3week sessions, followed by IMRT 125cgy x 60 (2x daily) w/Erbitux weekly. Last rad 10/26/11. Last Erbitux 10/27/11
PEG placed 9/1/11 Removed 11/8/11
Clear PET 10/2012
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#147346 - 03/19/12 08:47 PM
Re: Wading through the wait
[Re: KP5]
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Platinum Member (300+ posts)
Registered: 08/08/11
Posts: 409
Loc: MA
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Wooooooooo hooooooo!!! This makes me so happy!
_________________________
37 y/o fem at Dx (23 wks preg @ dx on 3/16/11)
SCC L oral tongue (no risk factors)
L partial gloss/SND 3/28/11 @ 25 wks preg
T1-2N0M0; no rads/chemo
Tonsillectomy on 8/6/12 +SCC L tonsil T2-3N1M0 (HPV-)
treated with 35 rads/7 carbo & taxol
1/22/13 MRI w/ contrast no evidence of disease!
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#147358 - 03/20/12 06:52 AM
Re: Wading through the wait
[Re: Kerri]
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Patient Advocate (1000+ posts)
Registered: 05/12/09
Posts: 1376
Loc: Oklahoma
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YEAH!! I am so glad to read that. I was goint to tell you I had a Hot PET scan, and a visible area that was causing apain. We were all worried about it being cancer again. I did have the surgery to remove that portion, and it was necrosis, not cancer. The PET that was HOT was the inflammation from the area around it.
_________________________
Angelia
31 at Dx.
DX: 4/30/09, 10/21/09 SCC on floor of mouth,
T1NOMO, T2N1M0
TX: 39 IMRT, 8 cisplatin 11/30/09
PET/CT: 11/03/09: Lymph node involvement
PEG/PORT: 11/09
TX end: 02/01/10
PET Scan: 04/05/10 clear
PEG Out: 06/21/10
Biopsy: 12/23/10: fibrosis
HBO: 01/04/11 - ORN
Baby girl born 11-30-12
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