| | Joined: Feb 2005 Posts: 118 Likes: 1 Senior Member (100+ posts) |  Senior Member (100+ posts)
Joined: Feb 2005 Posts: 118 Likes: 1 | Not sure if you have a stitch holding your PEG tube tight. I did so I just cut the stitch.
Be well. Zenda
12/04 SCC Tonsil, Stage IV T3N2BM0. Mod RND, resect right oropharynx, free-flap, resect right tongue base. Erbitux,Docetaxel,RT X 33. 6/08 Mets lung, hilar lymph node:Carboplatin, Docetaxel. 2010 2nd clinical trial:lung clear, node stable. ORN,trismus,dysphagia. 8-10/2012 cryoablation,brachytherapy,cyberknife to lymph node. 12/12 NED. 6/13 Mets RLL lung: 8/13 cyberknife. 11/13 NED.
| | | | | Joined: Nov 2010 Posts: 74 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Nov 2010 Posts: 74 | Thanks for responding. It actually is the round disc that keeps getting tighter
and tighter. I cant figure out how to move it away from my skin. I'm afraid of messing something up but its driving me crazy and causing me a lot of pain.
,
4 cancerous tumors stage4 Surgery 10/26/2010 Radiation 2x a day for 4 weeks (started Dec 13th 2010)
Reccurance discovered Nov 2011. Tumor behind left jaw. Erbitux, Taxol and Paraplatin for 6 wk. Surgery scheduled for Feb
50 year old woman smoked for 30 years quit 3 years ago light drinker HPV +16
| | | | | Joined: Mar 2008 Posts: 3,082 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Mar 2008 Posts: 3,082 | The "round disc" is usually just secured by a thread tied around its "neck". You can snip the thread - carefully- and then move the round disc up a bit, then put another thread around it and tie it off. Since the tube and round disc is a one size fits all, many doctors leave either too little or too much room in placing the round disc bumper or at least that was my experience over the last three years of getting the tubes in.
Or have the doctors do it over - right this time-. The measurements should be when the patient is lying flat and then again when sitting up, and adding them and dividing in two.
Also there is a whole internet forum on putting real food down a feeding tube - if you are interested, I'll post the link - My wife is more comfortable with me doing Jevity for breakfast and lunch but we do our dinner of the exact same food together with the Vitamix.
Sorry you have to deal with this.
Charm
Last edited by Charm2017; 03-17-2012 05:27 PM. Reason: typos
65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin
Passed away 4-29-13
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | I have had both a PEG tube and a J/G tube. I have found the plastic disc (round plastic piece by stomach about the size of a half dollar) to be easily adjusted. When its too tight it can cause alot of discomfort. I adjust mine myself very easily. If you bend the disc almost in half toward your stomach, you should be able to very gently slide the disc outwards. Just be very careful not to pull on the feeding tube while you move the disc.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | |
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