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CMMoore Offline OP
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Thanks Anne-Marie. I love you all so much for your encouragement through this journey.
When the shower aide came by today she noticed a change in him immediately and stated that she believes he is in the active stages of dying.
The nurse came by and confirmed. Could be anytime from now to a few days, but likely not the week left to go.
I am prepared as I can be, other than the crematory arrangements which i will take care of today.
I will update you as I can, you all understand the emotional roller coaster that is coming, and I know will forgive me if I am out of touch for a little bit.


CG to my husband, Matt. Dx June 2009 Stage IV Oropharengeal SCC right tonsil primary with distant metastases. Rad to neck- Surgeries to lungs- Every avail chemo - ran out of options Jan 2012, called for hospice help Feb 2012, at rest March 19, 2012.
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I agree. Ministering Angels are placed perfectly in His Perfectness!! Blessings Christine. We love you!!


Kathy wife/caregiver to:
Kevin age:53
Dx 7/15/11
HPV16+ SCC Stage IV BOT/R
Non smoker, casual drinker
7/27/11 Cistplatin, taxotere,5FU 2/3week sessions, followed by IMRT 125cgy x 60 (2x daily) w/Erbitux weekly. Last rad 10/26/11. Last Erbitux 10/27/11
PEG placed 9/1/11 Removed 11/8/11
Clear PET 10/12 and 10/13 and ct in 6/14
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Posts: 307
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We love you Christine....sending tons of prayers for you and Matt.

Hugs,

Shelley


Caregiver to husband Ron. Throat Cancer. Finished 35 radiation treatments on 11/21/04. 8/2/11 small lesion on lower gum, laser Procedure to remove. 3/6/12 Doc. removed another lesion on outside of his neck. Did a skin graft from his chest to replace the skin on his neck. Went to Heaven on 6/24/12.
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Glad that your mom will be with you. Peace be with you and your family.
Maria


CG to husband - SCC Tonsil T1N2M0 HPV+ Never Smoker
First symptoms 7/2010, DX 12/2010
TX 40 IRMT (1.8 gy) + 10 Cetuximab
PET Scans 6/2011 + 3/2012 clear, 5 year physical exam clear; chest CT's clear of cancer. On thyroid pills. Life is good.
Joined: Jul 2010
Posts: 531
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My heart is breaking for you and your husband and family Christine...I don't know if I could do it. I think I am strong but I don't think I could handle what you are going thru. I hate to say it but I think IF it ever happens with Ron I'm sorry but he would have to go into a nursing home only because nobody is home at all with him all day except the dogs and his mom his elderly herself and his sister works full time as well as I do. I think Ron already knows this but as depressing as it sounds we need to talk about it if he doesn't know.
God Bless you Christine, as bad as this sounds, soon it will be all over for you and Matt and you all can rest peacefully once again.
OOOOOOOXXXXXX!


CG to Ron
Out of Pain 4/3/13
4/12-lung and under chin growth no treatment
1/13/12 lung biopsy
6/11 recur 6/30 resection #2 Clear margins
Clear 12/10
Surg 5/13/10 neck dis/nodes part gloss/flap R thigh all teeth out
RAD 30 8/10
DX 4/2/10 "Oral Cavity" T3NOMO
12/28/07 Non Hodg Lymph remission 7/08
passed away 4.3.15, RIP Ron, you are greatly missed
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Christine, we are right there with you. Im so sorry that you are going thru this horror with your husband! I cant begin to know how difficult your days are. Take things day by day, hour by hour and do the best you can. (((HUGS)))


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
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Posts: 135
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Christine, my heart is hurting for you and Matt. I hope the transition is peaceful and quick. Please know you are loved by many who will support you however we can. Words seem so inadequate. Just know that much love is being sent your way.

Dodie


Aunt diag. 2/4/10 with SCC Stage I/II on left side of tongue. Surgery 2/19/10 part. gloss./neck diss. on left side/free flap from chest muscle. TI/II,NO,MO. Clear margins with perineural invasion. Started rads 4/8/10 - 35 treatments, finished 5/26/10.
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Posts: 280
CMMoore Offline OP
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Oh my goodness... I hate this! My parents were here for about three hours, they took my son with them for spring break. I made sure he knew the possibility of Matt passing before he made it back and that he had the chance to say anything on his heart.
My step daughters came around 5 and stayed until after 10. Matt spent most of that time unresponsive, though for a moment he opened his eyes and said Hi to me. That one little word holds my heart in its grasp. I hang desperately onto each utterance, longing for just 5 more minutes to reminisce, to say silly I love yous and call each other honey bunny and baby doll, just one more smile on that face that I adore meant for me.
Oh wow... I am so not liking being alone right now. I sit next to his bed and try and massage his legs and arms. I am going to end up snuggled right in that hospital bed with him before the morning. There just is no preparing for this reality and how much it hurts and scares me.


CG to my husband, Matt. Dx June 2009 Stage IV Oropharengeal SCC right tonsil primary with distant metastases. Rad to neck- Surgeries to lungs- Every avail chemo - ran out of options Jan 2012, called for hospice help Feb 2012, at rest March 19, 2012.
Joined: Jan 2011
Posts: 123
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Posts: 123
I am so sorry to read this. I wish you all strength and peace during these hard times.


Jill..CG to Ken, age 43,mom of 1yr old girl.
DIAG:12/9/10 SCC BOT T4N0M0 HPV+
START:1/3/11 IMRT dailyX35 and 7 chemo
END:2/23/11 PEG IN:1/15/11 Out:4/26/11
CT/MRI 4/25/11-marked improvement CT 6/11 new spots
BX 6/23-cancer present
Total Glossectomy sched 7/20/11
7/19/11 Ken's suffering ended
Joined: Jun 2009
Posts: 875
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Christine:
Know that I am thinking and praying for you and Matt not to suffer, and that you both will soon have peace. May God bless you both.
Love and hugs from julieann


Julieann
Nov 2007 SCC on right tonsil following tonsillectomy. Was smoker, QUIT. (Stage IV T2 N2b) 7 weeks radiation one day/wk chemo (carboplatin and 5-FU). Allergic to Taxol; PEG in, lost 30 lbs. TX completed January 2008. PEG out mid- 2008. PET/CT 1/17/2011;2/3/12 NEGATIVE for cancer smile
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