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#146660 03-01-2012 09:33 PM
Joined: Feb 2012
Posts: 38
Contributing Member (25+ posts)
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Joined: Feb 2012
Posts: 38
As a qualified member of the Club-Infirm, I have come to recognize the power that Care Givers give to us all.
Not only the targeted-infirm, but also those who simply notice your attention and concern given to other humans in your presence.

The older I get, the more Respect I have for Care Givers, those of you willing to touch us with your hands, your attention, your concern, your time; I know it makes you feel good to do these things, however, I�m not sure you appreciate how much MAGIC you carry in your actions.

You truly help us Want to continue our life force, to continue appreciating sunrises, rainbows, flowers, birds, children playing, hearing laughter, thunder, rain, all the gifts Mother Earth has bestowed on us.

Your efforts help us remember the pleasant points of our own lives, your efforts help us want to NOT disappoint you, nor waste your efforts.

GOD Bless you, as you bless us.

My 2centz


69yo male, Steam Engineer, Me=4,SCC=0, loving wife, living life as it comes (no other option)
We are all born from Mother, but live and die alone.
Make the best of it, Mommie did all she could, daddy was just a guidance councelor, the rest is ALL up to you.
...and now, 3rd occurance: Surgery 5/1/12
Joined: Feb 2005
Posts: 118
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Joined: Feb 2005
Posts: 118
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What a loving tribute, SeattlePaul. I'm in total agreement. Thank you.


Be well. Zenda
12/04 SCC Tonsil, Stage IV T3N2BM0. Mod RND, resect right oropharynx, free-flap, resect right tongue base. Erbitux,Docetaxel,RT X 33. 6/08 Mets lung, hilar lymph node:Carboplatin, Docetaxel. 2010 2nd clinical trial:lung clear, node stable. ORN,trismus,dysphagia. 8-10/2012 cryoablation,brachytherapy,cyberknife to lymph node. 12/12 NED. 6/13 Mets RLL lung: 8/13 cyberknife. 11/13 NED.
ZendaT #146965 03-08-2012 09:30 PM
Joined: Jan 2011
Posts: 571
"Above & Beyond" Member (500+ posts)
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Posts: 571
Hi Paul,

Thank you for writing such a beautiful thank you note to the caregivers here. You are kind and thoughtful to express in writing the heartfelt appreciation that so many caregivers often long to hear.

I feel blessed to count the wonderful people on this forum among my family. There is an incredible generosity of spirit here from patients, survivors, caregivers and co-survivors. I would have been lost if not for their support. I can only hope that I would rise to the challenge with as much courage and strength as they possess if I have the opportunity to be a caregiver again.

Thank you. God bless you, dear survivor!

Love,
Sandy
xoxox


Ex-spouse MISDIAGNOSED with SCC-HN IVa 12/10. Tonsils out 1/11. 4 teeth out 2/11. TX Erbitux x2, IMRT x2 2/11. 2nd opinion-benign BCC-NOT CANCER 3/11. TX stopped 3/11. New doctors 4/11. ENT agrees with 2nd opinion 5/11. ENT scoped him-all clear 7/11. Ordered MRI anyway. MRI 8/22/11 Result-all clear.
Joined: Nov 2006
Posts: 2,671
Patient Advocate (old timer, 2000 posts)
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Posts: 2,671
So well said, Sandy - I, too feel blessed to have found this wonderful family. When I first came here, years ago � my heart was breaking and I didn�t know what was ahead for my son. I felt as though I was hanging on to a sharp cliff by my fingernails, slowly slipping off into the darkness below. I was sitting alone in the Rad waiting room waiting for my son when young man, as he left for his treatment, bent over and whispered to me: �Go to Oralcancerfoundation.org�. I did and I found caregivers and patients all here for me, helping me to climb up that cliff to sanity and the most compassionate help, good practical advice and the most accurate and latest information found anywhere. Caregivers and survivors alike helped to guide my son and me through the really rough spots. Some of the survivors were going through their own hell in surviving but took the time to help my son in his own battle of surviving. Yes, we are a family here, and if I can help anyone on this difficult journey, it is only because of what I�ve learned from others who, with such giving hearts, helped my son to survive. What a wonderful thing Brian did to make this all possible for all of us!


Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)



Joined: Oct 2011
Posts: 805
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"Above & Beyond" Member (500+ posts)
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Posts: 805
Amen Anne-Marie!!


Kathy wife/caregiver to:
Kevin age:53
Dx 7/15/11
HPV16+ SCC Stage IV BOT/R
Non smoker, casual drinker
7/27/11 Cistplatin, taxotere,5FU 2/3week sessions, followed by IMRT 125cgy x 60 (2x daily) w/Erbitux weekly. Last rad 10/26/11. Last Erbitux 10/27/11
PEG placed 9/1/11 Removed 11/8/11
Clear PET 10/12 and 10/13 and ct in 6/14
KP5 #147042 03-11-2012 04:02 AM
Joined: Aug 2009
Posts: 207
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Posts: 207
thank you for the acknowledgement Paul, and may love and light keep you well and free of cancer on your journey...xx


Jeanna
Wife/Carer of Rod, 56, Dx 5/3/09, SCC Oropharnyx T4 N2, End Tx 28th 07/09, 7wks Rad, 3 Cisplatin, primary tonsil, 4cm Lymph right of neck, 1cm left, in jaw & soft palate & base of tongue. Peg 06/09. CT & PET scans 02/11 - NED. Dentures 20/09/11, PEG out 28/10/11.

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