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"OCF Down Under"
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"OCF Down Under"
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Joined: May 2007
Posts: 132
Eshwar,
I was so sorry to read about your Dads current situation. Many have said this already but he is very lucky to have such a knowlegable and compassionate advocate and son. This is such a difficult road to travel but having someone you love supporting and advising you makes it immeasurably easier. I hope that your fathers health improves and that more treatment options open up for you.

Love and Prayers

Sue G


55 y/o
SCC LL Tongue 3/27/07
Part. mandibulectomy 9/2/07
Left ND 5/12/08
RT/Chemo
Rec LL Tongue 07/09
Part gloss 8/5 & 8/25
Surg 10/28/09 re mets to R neck & L jaw
RT & Chemo finished 12/22/09
PEG fitted 05/06/10
L buccal SCC 10/10
freeflap (forearm)surgery 2/28/11 L buccal and gingiva
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"OCF Canuck"
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Thinking about you and your father hoping things will improve for him. Prayers and hugs to you!


Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
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Thanks all. He is still coping up with the after-treatment issues and mostly on liquid diet but Gefitinib seems to be working for him. Any thing conclusive would be known after the next PET Scan. For now, just standard blood test and X-Rays.

Had emailed his doctor to motivate him as well and he did that yesterday when we went for another review. Hopefully this should bring my dad on track of recovery.


Father; 67 yrs; RIP: 2012/05/26

TX:SCC pT2N1M0G2;Glossectomy+SND+CCRT(59.3Gy+6xCis.)[2009]
TX:Nodal Mets; 3xDCF[2011/05/05]
TX: RND + PMMC Flap[2011/07/11]
DX:SCC PNI+ECE
TX:Re-RT 60Gy[2011/09/21]
TX:Gefitinib 250mg[2011/12/18]
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Administrator, Director of Patient Support Services
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Best wishes with everything you and your father are going thru.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
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"OCF Canuck"
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"OCF Canuck"
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That's great! Glad he's getting back on track!

Last edited by Cheryld; 01-21-2012 08:17 PM.

Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
Joined: May 2011
Posts: 287
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Joined: May 2011
Posts: 287
Update to my OCF family: dad is still holding up. He is still on liquid diet and has lost around 8 lbs so far, weak and has occassional head-ache. So far X-Rays and blood jobs have been clear. MRI late this month to find out if Gefitinib has indeed helped or not.

He is currently visiting his hometown and will be back only next week. Wish he gains some more confidence.


Father; 67 yrs; RIP: 2012/05/26

TX:SCC pT2N1M0G2;Glossectomy+SND+CCRT(59.3Gy+6xCis.)[2009]
TX:Nodal Mets; 3xDCF[2011/05/05]
TX: RND + PMMC Flap[2011/07/11]
DX:SCC PNI+ECE
TX:Re-RT 60Gy[2011/09/21]
TX:Gefitinib 250mg[2011/12/18]
Joined: Dec 2010
Posts: 5,260
Likes: 3
"OCF Canuck"
Patient Advocate (old timer, 2000 posts)
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"OCF Canuck"
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Posts: 5,260
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That's great on the clear tests -slow steps... I know it takes time especially because he is older hopefully the chemo is helping. The 8 lb is not good though maybe you can find a way to add more calories to his liquids? Best of luck and take care!

Last edited by Cheryld; 03-04-2012 10:20 AM.

Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
Joined: Jul 2011
Posts: 945
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Posts: 945
Hi, Eshwar
I'm glad to hear from you and that the test results are encouraging. I think his visit to his hometime will do him good.

Ideas on the liquid diet - I started adding rice cereal powder (for babies) to my husbands protein shakes. Don't know if that would work for your dad, but thought it's worth mentioning. Not sure what you have available in New Dehli, but a stroll down the baby food isle might give you some ideas.

Best wishes and prayers for you and your whole family.
Maria


CG to husband - SCC Tonsil T1N2M0 HPV+ Never Smoker
First symptoms 7/2010, DX 12/2010
TX 40 IRMT (1.8 gy) + 10 Cetuximab
PET Scans 6/2011 + 3/2012 clear, 5 year physical exam clear; chest CT's clear of cancer. On thyroid pills. Life is good.
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