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#146650 - 03/02/12 02:06 AM Re: Newbie around the corner [Re: ALZ]
ALZ Offline
Contributing Member (25+ posts)

Registered: 02/24/12
Posts: 34
Loc: KL,Malaysia
My god the surgeon suddenly act up like an asss..just because i was very busy yesterday to see him...he fwded all our documents to the oncologist to go thru chemo not even wanting to talk to us or discuss about surgery option.
_________________________
CG to Ida (33yo f)Tongue CA Stage 1
02/07/11 Biopsy
15/09/11 35x IMRT done
07/11/11 CT Scan - Cleared!
02/12 - Abnormal bump discovered -
27/0212 -Biopsy done
It's back!!! wTH....
Surgery Done , 3cm margin and 55 negative nodes cleared
Rehab begins

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#146664 - 03/02/12 08:35 AM Re: Newbie around the corner [Re: ALZ]
ALZ Offline
Contributing Member (25+ posts)

Registered: 02/24/12
Posts: 34
Loc: KL,Malaysia
updates from us... we are going through chemo option. That's what both surgeon and oncologist suggested. Why? Its to retain quality of life.

So chemo starting 21st of March for 6 shots, once every month, 2 types of drugs which I did not get the names earlier.
_________________________
CG to Ida (33yo f)Tongue CA Stage 1
02/07/11 Biopsy
15/09/11 35x IMRT done
07/11/11 CT Scan - Cleared!
02/12 - Abnormal bump discovered -
27/0212 -Biopsy done
It's back!!! wTH....
Surgery Done , 3cm margin and 55 negative nodes cleared
Rehab begins

Top
#146725 - 03/03/12 09:50 PM Re: Newbie around the corner [Re: ALZ]
ConnieFL Offline
Platinum Member (300+ posts)

Registered: 04/16/09
Posts: 329
Loc: Fort Myers, FL, Lockport, NY
ALZ,

I didn't have Chemo but from reading people on here I never heard of 6 shots once a month for Chemo.

Why didn't your Surgeon do surgery first? I don't understand seeing that's the way I think it's done here with Tongue Cancer. Biopsy, CT/PET Scan, surgery and if the lymph nodes are involved then Radiation and Chemo, that's my understanding.

I think it's time for a second opinion at a Cancer Center.

Hope all goes well for you.
Connie
_________________________
SCC. of the left lateral tongue, anterior two thirds, T1 possibly a T2.
Left partial glossectomy, left selective neck dissection 4/21/09. Nodes clean, No Rad, No Chemo.

CT Scan 9/11 clean, CT Scan 9/12 clean


Moffitt Cancer Center in Tampa, FL. A+.

My hometown Lockport, NY.




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#146730 - 03/03/12 11:09 PM Re: Newbie around the corner [Re: ConnieFL]
ChristineB Offline
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

Registered: 06/23/07
Posts: 8190
Loc: PA
Is the tumor able to be surgically removed?
_________________________
Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07, no caregiver
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo extended hospital stay, ICU & burn unit
PICC line w/ IV antibiotics 8 mo
10/4/10, 2/14/11 reconst surg
OC 3 times in 3 years
very happy to be alive smile

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#146734 - 03/04/12 12:13 AM Re: Newbie around the corner [Re: ChristineB]
klo Offline
"OCF Down Under"
"Above & Beyond" Member (500+ posts)

Registered: 05/18/10
Posts: 638
Loc: Sydney Australia
HI Alz

Just to get some clarity around this:

Does this mean that your partner will be having 2 types of chemo every month for 6 months?

Or might it be that you are getting 6 chemos, 2 at a time which means you would be doing 3 rounds or cycles of chemo over 3 months?

Our doctor drew our treatment plan as a picture as we did not understand her terminology or the process. This helped us a lot and over time we learned the time between the doses of chemo was called a cycle. So we had 3 cycles with 3 types of chemo administered each time. Our cycles were 3 weeks long so the total time undergoing chemo was 9 weeks
Good luck
_________________________
Karen
Love of Life to Alex T4N2M0 SCC Tonsil, BOT, R lymph nodes
Dx March 2010 51yrs. Unresectable. HPV+ve
Tx Chemo x 3+1 cycles(cisplatin,docetaxel,5FU)- complete May 31
Chemoradiation (IMRTx35 + weekly cisplatin)
Finish Aug 27
Return to work 2 years on
3 years out Aug 27 2013 NED smile
Still underweight

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#146775 - 03/05/12 07:19 AM Re: Newbie around the corner [Re: klo]
ALZ Offline
Contributing Member (25+ posts)

Registered: 02/24/12
Posts: 34
Loc: KL,Malaysia
Hi all

We are seeing another doctor for second opinion.. Yes surgery is the way we see it now.. Too bad we were confused since it started.. Pushed to wrong direction.. Now sitting at the hospital waiting for Ida doing MRI scan.. Moving forward to PET scan on wed and meeting another surgeon. Fix date for surgery... We need to make the right decission this time... Chemo is definately not the answer.... I dont know why the surgeon who diagnosed pushed us away.. His reason was quality of life.. But we want to cure while its still not spread... Hmmm.. Its been tiring..
_________________________
CG to Ida (33yo f)Tongue CA Stage 1
02/07/11 Biopsy
15/09/11 35x IMRT done
07/11/11 CT Scan - Cleared!
02/12 - Abnormal bump discovered -
27/0212 -Biopsy done
It's back!!! wTH....
Surgery Done , 3cm margin and 55 negative nodes cleared
Rehab begins

Top
#146778 - 03/05/12 10:45 AM Re: Newbie around the corner [Re: ALZ]
Anne-Marie Offline
Patient Advocate (old timer, 2000 posts)

Registered: 11/03/06
Posts: 2554
Loc: TN
Al - So glad you are getting a second opinion! Hope things go a LOT better for Ida and you.
_________________________
Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)




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#146783 - 03/05/12 01:26 PM Re: Newbie around the corner [Re: Anne-Marie]
ALZ Offline
Contributing Member (25+ posts)

Registered: 02/24/12
Posts: 34
Loc: KL,Malaysia
MRI done, confirmed its just a localized tumor 1.9cm, no nodes affected (thanks to radiation). We are meeting the surgeon tomorrow for his planning. Thank god we met second doctor.. or else we will be kept in dark again with chemo and it keeps coming back worst.

Wish us luck.. we need to get this right.

Hugs to all...been a tiring day
_________________________
CG to Ida (33yo f)Tongue CA Stage 1
02/07/11 Biopsy
15/09/11 35x IMRT done
07/11/11 CT Scan - Cleared!
02/12 - Abnormal bump discovered -
27/0212 -Biopsy done
It's back!!! wTH....
Surgery Done , 3cm margin and 55 negative nodes cleared
Rehab begins

Top
#146787 - 03/05/12 02:18 PM Re: Newbie around the corner [Re: ALZ]
ChristineB Offline
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

Registered: 06/23/07
Posts: 8190
Loc: PA
Sounds to be a much better prognosis than originally thought. It also sounds like she is in very good capable hands. See what a difference a doctor can make! Let us know when surgery is scheduled for. Best wishes with everything you both are facing!
_________________________
Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07, no caregiver
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo extended hospital stay, ICU & burn unit
PICC line w/ IV antibiotics 8 mo
10/4/10, 2/14/11 reconst surg
OC 3 times in 3 years
very happy to be alive smile

Top
#147161 - 03/15/12 06:39 PM Re: Newbie around the corner [Re: ALZ]
Michelle Ann Offline
Senior Member (100+ posts)

Registered: 01/17/11
Posts: 168
Loc: Massachusetts
Welcome. Hope all is going well. I found this site very valuable when I was going through treatment. I got and still get (though I go on less) lots of good advice, sometimes for practical stuff and sometimes for the emotional. -Michelle
_________________________
SCC left tonsil, stage IV, HPV+, metastatic to one lymph node. Biopsy 12/23/10; tonsillectomy 1/13/11; DX 1/25/11; Peg in 1/28/11. Peg out 6/29. TX 1/31/11-3/21/11: 35 IMRT plus 3 Cisplatin. Pet-Scan 6/20/11 = CLEAR! Three years out, learning to live with the long-term side effects of radiation while reminding myself to feel blessed.

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